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#111981 - 02/08/10 05:21 PM Re: VOTE TODAY AND EVERY DAY FOR OCF AT PEPSI [Re: rosie]
boatswife Online   content
Senior Member (100+ posts)

Registered: 09/13/09
Posts: 185
Loc: Kingsland, GA
I just went to vote for the day and we're sitting at 20!!
_________________________
Patty
08-05-09 Triple Endoscopy w/Bx of lateral tongue
08-07-09 PET/CT scan - clear
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
10-21-09 Direct Laryngoscopy w/Bx and laser
02-24-10 Triple Endoscopy w/Bx - all negative

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#111983 - 02/08/10 05:34 PM Re: VOTE TODAY AND EVERY DAY FOR OCF AT PEPSI [Re: boatswife]
ChristineB Offline
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 2852
Loc: PA
Yippeeee moving up to #20!!!!!

Do we have anyone on here that has school aged young children? It would make a great class project to get involved with the voting. Anyone involved with any organizations or churches who would get the word out quickly to vote for OCF? Since newsletters are usually planned well in advance, word of mouth works.

I have some of my friends working on promoting OCF. Ive checked up on my friends and they tell me they are still voting daily. Eric has quite a network going with the promoting. Wish I had more contacts to help.
_________________________
Christine

Stg 1 SCC 6/15/07 L chk & by L molar, age45
2x cispltn-35 rad end 9/27/07
4/4/08 recur L cheek
surg 4/16/08 clr marg
125 HBO, trismus
3/09 teeth out
7/2/09 its back..Stg 4
8/24/09 trach, ND, 10hr surg L jaw removd
slowly recovering

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#111994 - 02/08/10 06:35 PM Re: VOTE TODAY AND EVERY DAY FOR OCF AT PEPSI [Re: ESikon]
Brian Hill Administrator Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Registered: 03/18/02
Posts: 3853
Loc: Laguna Niguel, CA
I agree with Eric. This is our shot, This month. Pepsi's marketing team really had a smart idea here. 30 times a person has to come and see the Pepsi logo, hear that Pepsi is doing good in the world etc. and the number of email address they are collecting for future marketing plans has to be astronomical.

But most people, even me, have a life besides this, and while I am obsessed about this, if it wasn't my cause, I would be way less enthusiastic about staying with it for a second month. Enthusiasm will wain. That is only human nature. This is THE month to get it done. If we give it our best shot and don't make it, there will be other opportunities that we can channel our energies and those who join with us as friends in our extended networks, to make happen. We are asking for a daily commitment already.... another month? I think that we will have gotten from people a lot already, and they won't be there as strongly. This is the month.
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. "The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant."

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#112034 - 02/09/10 09:49 AM Re: VOTE TODAY AND EVERY DAY FOR OCF AT PEPSI [Re: Brian Hill]
Eileen Offline
Patient Advocate (1000+ posts)

Registered: 05/21/02
Posts: 1991
Loc: Trenton, New Jersey
Bringing this back to the top. Please remember to vote everyone.

Take care,
Eileen
_________________________
----------------------
Aug 1997 unknown primary, Stage III
metastasis to one lymph node in neck; right neck disection, 36 XRT rad treatments
Aug 2001 tiny tumor on larynx, Stage I
total laryngectomy; left neck disection
June 5, 2010 dx early stage breast cancer

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#112036 - 02/09/10 10:03 AM Re: VOTE TODAY AND EVERY DAY FOR OCF AT PEPSI [Re: Eileen]
Charm2017 Offline
Patient Advocate (1000+ posts)

Registered: 03/03/08
Posts: 1553
Loc: Alexandria VA
I agree with Brian and Eric that this is indeed the month to push and win. and yes enthusiasm will wane. Still I had gotten the impression from previous similar efforts that when we are #20 and need to be #1 or #2, that some posters get too discouraged. With the recurrence, I have gotten used to always having a plan B, hence my mention of technicality.
Vote, Vote vote.
Charm
_________________________
62 yr Old Frack 07:Stage IV BOT T3N2 HPV 16+ 40 IMRT:72 GY 8 ERBITUX No PEG 08:CANCER BACK Salvage Surgery&G-tube 5 CyberKnife:25GY 3 Carboplatin Thyroid pills Can't swallow to eat or drink

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#112041 - 02/09/10 10:33 AM Re: VOTE TODAY AND EVERY DAY FOR OCF AT PEPSI [Re: Charm2017]
EricS Offline
"Above & Beyond" Member (500+ posts)

Registered: 01/02/09
Posts: 605
Loc: Idaho
Yesterday was a great day for OCF on the Facebook end...well done. Even with the changes on Facebook (ugh) there were several posters from OCF on my News Feed.

Christine had great suggestions as far as getting the word out, students and religious organizations. Larger companies are taking a different approach to marketing towards the younger crowds (16-24y/o) by using "campus advocates". Basically they give a student an internship and have them raise awareness on campus, driving others by word of mouth and relationship. The companies will generally choose a high profile, student "leader" for this. It's highly effective too as word of mouth is the most effective form of advertising and it's hard to find a more driven force then "youth with a cause".

The same can be said with religious and faith based groups who wish to make a difference...historically speaking there is not a more powerful influence.

This being said, it's worth talking with either teachers or students to help drive voting or faith based groups. Key thing here is talking and relationship...motivating people to action usually takes more then a flyer or AD. Think about how often we see print or tv ads and ignore them due to how often we are inundated with them. Now ask yourself when the last time you saw a movie or bought something from a friends recommendation...

Way to step up guys let's keep rollin.

Eric
_________________________
Young Frack, SCC T4N2M0 right molar diagnosed 1/24/08. 33 at diagnosis, nonsmoker, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche

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#112055 - 02/09/10 02:06 PM Re: VOTE TODAY AND EVERY DAY FOR OCF AT PEPSI [Re: EricS]
Eileen Offline
Patient Advocate (1000+ posts)

Registered: 05/21/02
Posts: 1991
Loc: Trenton, New Jersey
I was thinking of students last night. How about all those dental students that keep organizing the walks at least in Philly and NYC. Brian or Megan - do you have any contacts you could you to get them moving?

Take care,
Eileen
_________________________
----------------------
Aug 1997 unknown primary, Stage III
metastasis to one lymph node in neck; right neck disection, 36 XRT rad treatments
Aug 2001 tiny tumor on larynx, Stage I
total laryngectomy; left neck disection
June 5, 2010 dx early stage breast cancer

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#112112 - 02/10/10 08:06 AM Re: VOTE TODAY AND EVERY DAY FOR OCF AT PEPSI [Re: Eileen]
rosie Offline
"Above & Beyond" Member (500+ posts)

Registered: 10/19/02
Posts: 546
Loc: Pennsylvania
Christine,

There is a more direct link. It eliminates two steps in the process, takes you directly to the OCF page. I know eliminating two clicks seems insignificant, but the quicker and easier it is, the more people may stick with doing it daily.

http://www.refresheverything.com/oralcancerfoundation
_________________________
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.

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#112114 - 02/10/10 08:21 AM Re: VOTE TODAY AND EVERY DAY FOR OCF AT PEPSI [Re: rosie]
Charm2017 Offline
Patient Advocate (1000+ posts)

Registered: 03/03/08
Posts: 1553
Loc: Alexandria VA
Wow, great ideas. I'm putting on my thinking cap to see which groups would be a possibility but most of my close circle have died (Cancer, AIDS, car accidents, murdered in street robbery, etc) and my secondary circles are problematic in actual follow-thru on daily voting.
While it is very sad to see such young people in the prime of life like Suzanne and EricS (no slight to any of the other wonderful young posters, I got to run as my wife's computer just crashed with blue screen of death and give microsoft XP loop)
it is wonderful to see such energy and new ways of communicating using all the social tools that were only science fiction for me
I voted today just in case we lose electricity again with the new 10 inches of snow
Charm
_________________________
62 yr Old Frack 07:Stage IV BOT T3N2 HPV 16+ 40 IMRT:72 GY 8 ERBITUX No PEG 08:CANCER BACK Salvage Surgery&G-tube 5 CyberKnife:25GY 3 Carboplatin Thyroid pills Can't swallow to eat or drink

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#112121 - 02/10/10 10:46 AM Re: VOTE TODAY AND EVERY DAY FOR OCF AT PEPSI [Re: Charm2017]
MeganCannon Administrator Offline
Supporting Member (50+ posts)

Registered: 03/19/09
Posts: 62
Loc: Newport Beach, CA
We do have several student contacts at NYU, UCLA, USC, Penn State and a few others. I've sent out emails that should have reached to them but I'm thinking today I will send them all personalized emails.

Just reached out to my younger brother's girlfriend who is head of her Sorority at VCU. She said they are always looking for ways to give back to non-profits and this is right up her alley. She will be emailing all of her sisters and encouraging them to post links on their facebook pages as well. I will be looking for other ways to reach out to multiple frats and sorority's today as well.
_________________________
Megan Cannon
Communications Manager
OCF
www.theothersideoforalcancer.blogspot.com

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