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#111816 - 02/06/10 09:37 AM Re: stall in treatment...again [Re: homershoney]
AnitaFrances Offline
Gold Member (200+ posts)

Registered: 09/24/09
Posts: 290
Loc: Media, PA
Teresa,

You are dealing with an enormous amount of stress now. Please let yourself off the hook and don't worry about telling everyone anything. Clark and I have been through similar things--as soon as one of us said something positive about his recovery to our family and friends, almost the next day another unexpected issue would arise. People heal differently and at their own pace. You are doing a great job as Andy's caregiver. Hang in there.

Anita
_________________________
Anita (56)
CG to husband, Clark, 66,
DX SCC R mandib trigone 11/07,
Resect, recon w/free flap, T4N0Mx,
trach, NG tube 8 wks, PEG 1/08,
RAD 6 wks, post rad infection 3/08,
surg, HBOT 40 dives, all PETs clear,
ORN, Surg 11/09 rebuild jaw, fibular graft
free flap redo 4/10, PET/CT 7/10

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#111821 - 02/06/10 10:43 AM Re: stall in treatment...again [Re: AnitaFrances]
Gary Administrator Offline
Administrator
Patient Advocate (old timer, 2000 posts)

Registered: 11/27/02
Posts: 3156
Loc: San Francisco CA
Amofostine has nothing to do with blood cell counts. It's purpose is to preserve salivary function and most patients don't tolerate it very well. Most here have had to stop it's use long before the end of treatment. If he is getting IMRT then he probably doesn't need it anyway.

Procrit is the drug they sometimes administer to help with blood count issues.

See http://www.mayoclinic.com/health/cancer-treatment/CA00066
_________________________
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)

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#111845 - 02/06/10 04:58 PM Re: stall in treatment...again [Re: Gary]
Eileen Offline
Patient Advocate (1000+ posts)

Registered: 05/21/02
Posts: 1994
Loc: Trenton, New Jersey
Teresa,
Did you say he already has completed 35 treatments? Most of us only get 35 treatments so maybe that is why the RO is willing to give him a break. Why did they think he needed extra weeks?

Take care,
Eileen
_________________________
----------------------
Aug 1997 unknown primary, Stage III
metastasis to one lymph node in neck; right neck disection, 36 XRT rad treatments
Aug 2001 tiny tumor on larynx, Stage I
total laryngectomy; left neck disection
June 5, 2010 dx early stage breast cancer

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#111847 - 02/06/10 05:20 PM Re: stall in treatment...again [Re: Eileen]
Kelly211 Offline
Platinum Member (300+ posts)

Registered: 09/01/09
Posts: 329
Loc: Michigan
Eileen,

I was thinking the same thing. I know I got 70 gy over 35 treatments. I asked about this specifically after hearing it on this site. Originally, someone had listed 40 treatments on my chart. After coming here members thought that was a bit long so I asked. My RO said it was a mistake on an early assessment and that after the planning stage they put in the 35. He also said it was 70 grey units (gy)

Kelly
_________________________
Kelly

Male
48, SCC Oropharnyx (Soft Palet) Right side,
Stage 1, T3n0m0,
Heavy Smoker, Quit after Dx
Dx, 8-09, Start IMRT 35 x 70gy 9-2-09 finished 10-21-09
04-20-10 NED (No Evidence of Disease)

Life's challenges are not supposed to paralyze you; they're supposed to help you discover who you are.

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#111863 - 02/07/10 03:07 AM Re: stall in treatment...again [Re: Kelly211]
Gary Administrator Offline
Administrator
Patient Advocate (old timer, 2000 posts)

Registered: 11/27/02
Posts: 3156
Loc: San Francisco CA
The maximum I have seen is 72 Gy and at 1.8 Gy/day (maximum fractional daily dose) that would still only add 2 days. 70 to 72 Gy's would be 35 to 37 days respectively.
_________________________
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)

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#111867 - 02/07/10 05:27 AM Re: stall in treatment...again [Re: Gary]
homershoney Offline
Platinum Member (300+ posts)

Registered: 11/19/09
Posts: 392
Loc: spring, texas (houston)
ur right gary (of course grin) . the amifostine is the shot he got each day with the IMRT. he did have to stop taking that one a while back. he does get a shot 2 days after his chemo although i dont know the name of this one.
yes he has already done 35. his planned treatment is 40.

he has a dr appt tomorrow, i will find out more.
_________________________
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10

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#111874 - 02/07/10 12:08 PM Re: stall in treatment...again [Re: homershoney]
Gary Administrator Offline
Administrator
Patient Advocate (old timer, 2000 posts)

Registered: 11/27/02
Posts: 3156
Loc: San Francisco CA
If he was getting Procrit it would be administered in his stomach, by injection, daily.

Evidently since the last time I explored prcrit there are additional warning and contraindications for use with H&N patients refer to this link if you are on Procrit.

http://www.procrit.com/
_________________________
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)

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#111894 - 02/07/10 05:05 PM Re: stall in treatment...again [Re: Gary]
homershoney Offline
Platinum Member (300+ posts)

Registered: 11/19/09
Posts: 392
Loc: spring, texas (houston)
his injections are neupogen once a week.
_________________________
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10

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#111919 - 02/07/10 09:51 PM Re: stall in treatment...again [Re: homershoney]
SusanW Offline
Gold Member (200+ posts)

Registered: 02/05/10
Posts: 205
Loc: NYC
Hi Theresa, just noticed your husband's Drs appt is tomorrow. Hope you get some of the answers you are looking for.
From a fellow NY sports fan...
_________________________
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!

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#111985 - 02/08/10 05:38 PM Re: stall in treatment...again [Re: SusanW]
homershoney Offline
Platinum Member (300+ posts)

Registered: 11/19/09
Posts: 392
Loc: spring, texas (houston)
didnt make it to the dr today. had severe thunderstorms, tornado warnings. almost blew the top of our gazebo off.
_________________________
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10

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