#111632 - 02/04/10 09:01 AM
suction machine
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"Above & Beyond" Member (500+ posts)
Registered: 05/12/09
Posts: 942
Loc: Oklahoma
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I got my suction maching today. it works great for getting the stuff in the mouh, but what do I do about the stuff deep down in my throat. They did not show me how to use they just came and set it up for me and made sure it was working. I did get some smaller tubes and what not, but sure how to get the mucous out of the throat. Any ideas?
_________________________
Angelia 31 at Dx. DX: 4/30/09 SCC on floor of mouth, T1NOMO. PEt 07-09-09: All clear Reccurrence: 10/21/09, BOT, SCC, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 Biopsy: 02/24/10 negative PET Scan: 04/05/10 clear PEG Out: 06/21/10
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#111650 - 02/04/10 04:58 PM
Re: suction machine
[Re: walknlite]
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Patient Advocate (1000+ posts)
Registered: 03/03/08
Posts: 1549
Loc: Alexandria VA
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Angelia
GARGLE & SPIT with Seltzer water: the carbonation breaks up the deep mucous like those scrubbing bubbles you see on the TV commercials. It does sting a little bit at first but I found it refreshing. Even plain water will help bring up that stuff if you gargle & spit. focus on the roof of your mouth as you do it, and the mucous should come up enough to suction it out Good luck - at least they showed you how to set it up, my suction machine was just left at the doorstep in a box. charm
_________________________
62 yr Old Frack 07:Stage IV BOT T3N2 HPV 16+ 40 IMRT:72 GY 8 ERBITUX No PEG 08:CANCER BACK Salvage Surgery&G-tube 5 CyberKnife:25GY 3 Carboplatin Thyroid pills Can't swallow to eat or drink
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#111837 - 02/06/10 03:44 PM
Re: suction machine
[Re: Charm2017]
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"Above & Beyond" Member (500+ posts)
Registered: 05/12/09
Posts: 942
Loc: Oklahoma
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I love this suction machine. I was able to actually sleep for three hours last night without interuption. I felft like a new woman, well until I all the mucous that settled in my throat decided to start coming up. Thankful I had the suction machine to get most of it out.
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Angelia 31 at Dx. DX: 4/30/09 SCC on floor of mouth, T1NOMO. PEt 07-09-09: All clear Reccurrence: 10/21/09, BOT, SCC, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 Biopsy: 02/24/10 negative PET Scan: 04/05/10 clear PEG Out: 06/21/10
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#111838 - 02/06/10 04:16 PM
Re: suction machine
[Re: walknlite]
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Patient Advocate (1000+ posts)
Registered: 05/21/02
Posts: 1991
Loc: Trenton, New Jersey
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I also was given Guaifenex (RX) to help with the mucous. The tablets are large so you may have difficulty swallowing them. Many people take Robitussin which contains Guiafenex. Glad the suction machine is helping. Glad you finally got some sleep.
Take care, Eileen
_________________________
---------------------- Aug 1997 unknown primary, Stage III metastasis to one lymph node in neck; right neck disection, 36 XRT rad treatments Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left neck disection June 5, 2010 dx early stage breast cancer
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#111849 - 02/06/10 05:51 PM
Re: suction machine
[Re: Eileen]
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Contributing Member (25+ posts)
Registered: 01/06/09
Posts: 33
Loc: Tucson, AZ
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I also picked up a suction machine yesterday. I have only 4 more treatments left, but was starting to have issues where I'd wake up from naps having difficulty breathing my throat was so clogged with mucus. I have to agree, I really love my machine! Angelia, I admire you. When things get rough, I just remind myself how rough you had it and that you made it through. I know I can get through these last 4 treatments.
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9.29.08: Dx @ 24 w/ T2 SCC, tongue 10.14.08: Partial gloss. & r. neck dissection. Margins/nodes all clear. No HPV. No rad. 10.06.09: Recurrence in l. lymphnode 11.16.09: L. neck dissection + lost nerve XII 12.28.09: 33xIMRT w/ concurrent 3xCisplatin (no PEG) 02.15.10: Done with treatment!
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#111854 - 02/06/10 08:58 PM
Re: suction machine
[Re: Jen in AZ]
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"Above & Beyond" Member (500+ posts)
Registered: 05/12/09
Posts: 942
Loc: Oklahoma
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Oh, Jen you can do it. Yeah it was rough, but that just means I will be able to help others who go through the same thing. I have also learned a lot from this experience and have become a stronger person. Yes, you can do it. We are all cheering for you.
_________________________
Angelia 31 at Dx. DX: 4/30/09 SCC on floor of mouth, T1NOMO. PEt 07-09-09: All clear Reccurrence: 10/21/09, BOT, SCC, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 Biopsy: 02/24/10 negative PET Scan: 04/05/10 clear PEG Out: 06/21/10
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#111856 - 02/06/10 09:00 PM
Re: suction machine
[Re: walknlite]
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"Above & Beyond" Member (500+ posts)
Registered: 05/12/09
Posts: 942
Loc: Oklahoma
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I also need to add the I take Robitussin DM, It has the guafenesin and a cough suppressant which has been a life saver as well. I do not cough nearly as much, and if I take it on schedule , every 4 hours the mucous is not as bad. I just have to remember to put it down the tube every 4 hours.
_________________________
Angelia 31 at Dx. DX: 4/30/09 SCC on floor of mouth, T1NOMO. PEt 07-09-09: All clear Reccurrence: 10/21/09, BOT, SCC, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 Biopsy: 02/24/10 negative PET Scan: 04/05/10 clear PEG Out: 06/21/10
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#111871 - 02/07/10 07:01 AM
Re: suction machine
[Re: walknlite]
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Administrator, Senior
Patient Advocate (old timer, 2000 posts)
Registered: 09/28/06
Posts: 5761
Loc: Gulfport, Florida
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Angelia,
Add your Tx end date to your Signature Line as that will help us help you thru your recovery period.
Also maybe, just maybe, your thick stuff is decreasing.
Glad the suction machine is helping.
_________________________
David
Age 58 at Dx, HPV 16+ SCC, T1N2bM0, Stage IV BOT and 2 nodes, non smoker, casual drinker and exercise nut, Cisplatin x 3 with concurrent IMRT x 35, (70 Gy), no surgery, no Peg, Tx at Moffitt over 8/28/06. June 2007, back to riding my bike 100 miles a week as if nothing happened.
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#111878 - 02/07/10 01:42 PM
Re: suction machine
[Re: davidcpa]
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Administrator
Patient Advocate (old timer, 2000 posts)
Registered: 11/27/02
Posts: 3156
Loc: San Francisco CA
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Selzter water helped me dislodge the deep stuff once I could tolerate the carbonation. Prior to that plain water helped during the mucositus phase. Try to drink some water first thing when you get up in the morning.
One day it just stopped, about 2-6 weeks post Tx, which has been the average experience here.
Taking decongestants is tricky because it can exacerbate the zerostomia, which makes the mucous harder to dislodge. My doctor prescribed Guaifen/P-ephed (Entex) for me with mixed results.
The best thing to do is stay properly hydrated. 2-3 liters a day. It will also help with the constipation issues from pain meds and protect the kidneys from damage from chemo.
If you didn't have patience before this disease you will have a new found appreciation for it afterwards...
Edited by Gary (02/07/10 01:42 PM)
_________________________
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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#111949 - 02/08/10 10:10 AM
Re: suction machine
[Re: Gary]
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Patient Advocate (old timer, 2000 posts)
Registered: 06/12/07
Posts: 4506
Loc: Barnesville,Ohio
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My insurance turned me down for a suction machine. I understand the choking from phlem very well and not only at nite in bed, but all day long. maybe if I use my 6 HP air compressor I can blow it down because it sure doesn't like to come up.
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I finally found my list and dates but will do it this way to save time..From April 2007 - now. 144 trips for Drs and treatments-10 MRIs-14 CTScans-9 scopes- 7 Pets- 24 surgeries. Dates and procedures are to many to have room for. Another time for that. The Heart tests are not here either.
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