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#111451 02-02-2010 10:02 AM
Joined: Mar 2008
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

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There was an inspirational article in today's Washington Post by a Rheumatoid arthritis sufferer that seemed equally applicable to us oral cancer survivors. Here is the relevant excerpt
[quote]-- Learn about your illness. The success of your outcome is directly correlated to being the most effective patient possible.
-- Get over it. There is no lemon law for your body.
-- Minimize pain by using medications aggressively.
-- Think healthy: Take good care of your body.
-- Be in the moment: Do not live in the past nor dwell on the future.[/quote]
The entire article is here:
5 Tips
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: May 2007
Posts: 621
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: May 2007
Posts: 621
The other 3 I found just as important
[quote]
-- Do not hesitate to ask for help; it is not weakness.

-- Never lose hope; medical history is rewritten every day.

-- Surgery can have a positive impact.
[/quote]


Kevin


9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
Joined: Jan 2009
Posts: 1,844
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Patient Advocate (1000+ posts)

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Love it.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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OCF Founder
Patient Advocate (old timer, 2000 posts)
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OCF Founder
Patient Advocate (old timer, 2000 posts)

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Nice find. I just wrote to the author and asked it we could take all the points and use them on the OCF web site. I know we could rewrite them, but they are so succinct and appropriate for us, I really do not wish to change them.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
This is just about how I have been fighting this. It works for me. We get no guarantees for anything except that one day we will die . They are going to have to drag me to my death when it's time.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: Nov 2009
Posts: 396
Platinum Member (300+ posts)
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Platinum Member (300+ posts)

Joined: Nov 2009
Posts: 396
two thumbs up!


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
Needed that! Thanks


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12

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