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#111161 - 01/28/10 02:22 PM 3rd Annual Colloquium on Head & Neck Cancer
davidcpa Administrator Offline
Administrator, Senior
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 5773
Loc: Gulfport, Florida
Today I participated in my RO's 3nd Annual Colloquium on H & N Cancers at Moffitt. We have done this for the last 2 years. I can't believe this is our 3rd year. He and a teaching doctor from Moffitt give their presentations and then I get up and spend the next 2 hours giving the patient's perspective which is followed by a Q & A segment. This is done at Moffitt and the attendance is required of the med students so the turnout is a packed auditorium. Last year this presentation format received a student rating of 4.8 out of 5 and I'm sure this years went as well. I really enjoy the opportunity to shape future doctors into my way of thinking. lol

Anyway I was busy taking notes during the docs' speeches and here are a few things that I thought we would find interesting. These are not listed in any order:

1. My Ro is currently writing the research plan to compare the effects of limiting treatment on HPV+ patients. He's not sure what will be limited, i.e. less radiation or less chemo or less of both, etc but he wants to do the trial. All he will need is willing patients. lol

2. A node larger than 1.5 cm is assumed to be pathologic;

3. 95% of all H & N cancers are SCC;

4. There are over 2 million users of Betel nuts with the overwhelming majority coming from SE Asia and the majority of H & N cancers from India are associated with Betel Nut use. A student reported that you can buy a solution of tobacco and Betel nut juices in Tampa;

5. Cancers of the Oropharyngeal region (BOT and Tonsils) represented only 18% of H & N cancers in 1970; in 2005 that increased to 32% and today Trotti estimates it's over 50% due principally to HPV;

6.The first H & N cancer patient was treated with radiation in 1902 and he was an attorney. Trotti confessed that doctors even then made mistakes. lol;
_________________________
David

Age 58 at Dx, HPV 16+ SCC, T1N2bM0, Stage IV BOT and 2 nodes, non smoker, casual drinker and exercise nut, Cisplatin x 3 with concurrent IMRT x 35, (70 Gy), no surgery, no Peg, Tx at Moffitt over 8/28/06. June 2007, back to riding my bike 100 miles a week as if nothing happened.

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#111184 - 01/28/10 07:32 PM Re: 3rd Annual Colloquium on Head & Neck Cancer [Re: davidcpa]
wilckdds Offline
Patient Advocate (old timer, 2000 posts)

Registered: 04/20/05
Posts: 2119
Loc: Yardley, PA
David,

You never cease to amaze me with all that you do for "our cause".

You are truly one of my heroes.
_________________________
Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. 5 year survivor.

"Whatever doesn't kill me, makes me stronger"

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#111206 - 01/29/10 09:32 AM Re: 3rd Annual Colloquium on Head & Neck Cancer [Re: wilckdds]
Lostpassword Offline
Platinum Member (300+ posts)

Registered: 07/25/06
Posts: 345
Loc: Florida
Ditto what Jerry said.
_________________________
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)

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#111212 - 01/29/10 01:52 PM Re: 3rd Annual Colloquium on Head & Neck Cancer [Re: Lostpassword]
Malka Offline
"Above & Beyond" Member (500+ posts)

Registered: 11/26/07
Posts: 609
Loc: New Orleans
David,
You are making a wonderful contribution. This should be done in all the medical schools. I have discussed it with my doctors and they agre that it is a great idea but are under terrible time constraints and have not been able to carve out time for such a program.
_________________________
SCC stage II Partial mandibulectomy w. neck dissection 7/27/05. Renal cancer w. partial nephrectomy Jan04. 4/08, breast cancer discovered in routine mammogram. Sucessful lumpectomy, sentinal nodes clear. RT only. Reconstruction of mandible w fibula free flap Jan 5/09. Now cancer free.
Support OCF

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#111216 - 01/29/10 02:52 PM Re: 3rd Annual Colloquium on Head & Neck Cancer [Re: Malka]
davidcpa Administrator Offline
Administrator, Senior
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 5773
Loc: Gulfport, Florida
Malka,

This is a required attendance at Moffitt so I don't know how they fit that into everyone's schedule and we only do it once a year. The attendees really do enjoy it and even after our time is up many many come down and continue to ask Trotti and I questions. Yesterday we were even asked to leave so the next class could start. You know me, I would still be there talking if they would let me. Don't know if it's me but they sure look really young to be med students and doctors!!!
_________________________
David

Age 58 at Dx, HPV 16+ SCC, T1N2bM0, Stage IV BOT and 2 nodes, non smoker, casual drinker and exercise nut, Cisplatin x 3 with concurrent IMRT x 35, (70 Gy), no surgery, no Peg, Tx at Moffitt over 8/28/06. June 2007, back to riding my bike 100 miles a week as if nothing happened.

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#111244 - 01/30/10 08:13 AM Re: 3rd Annual Colloquium on Head & Neck Cancer [Re: davidcpa]
AnitaFrances Online   content
Gold Member (200+ posts)

Registered: 09/24/09
Posts: 290
Loc: Media, PA
David,

Your perspective as a patient/survivor is so valuable--here and at Moffit. I love that medical students get to learn about OC from your experience. No one can tell the story better than one who has been through it. Good going!

Anita
_________________________
Anita (56)
CG to husband, Clark, 66,
DX SCC R mandib trigone 11/07,
Resect, recon w/free flap, T4N0Mx,
trach, NG tube 8 wks, PEG 1/08,
RAD 6 wks, post rad infection 3/08,
surg, HBOT 40 dives, all PETs clear,
ORN, Surg 11/09 rebuild jaw, fibular graft
free flap redo 4/10, PET/CT 7/10

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