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Joined: Oct 2007
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Tammy63 Offline OP
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Posts: 71
Well I couldn't find a previous TSH T3 or T4. So all I have is my one test done on 1/29/09 that shows the following.
TSH - 1.29 and the range is .04 - 4.59
T4 - 7.3 and the range is 4.5 - 12
My next appt. I will request to have another TSH etc. done


Tammy 43 yr non smoker- Dx-10/11/07 Stage 4 Tongue Cancer Surg.10/17/07, 1/4 Tongue and 14 Lymph nodes 5 positive, Peg tube/Chemo port,Chemo 3 wks/Radiation 6 wks begins 11/07 end 02/08.Teeth removed prior to radiation. PetScan 05/08 CLEAR 09/09. 2011 diag. w/osteoradionecrosis.100 HBO's
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Actually Tammy, it may not be the thyroid with that level reading. I was a 1.6 before TX and you are near that now.
Are you getting enough calories & nutrition? Exercise also helps. All trite advice but still reliable
I just started making coffee again in the morning and putting it down my PEG tube and the caffeine is really helping.
Chronic fatigue post cancer TX is a hard beast to figure out even though it is so common amongst us. I do keep quite active but have to take naps - Hope some OCF family member here can be more helpful.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: May 2002
Posts: 2,152
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At 1.29 TSH, it doesn't sound like a thyroid problem, but that depends on what your 'old normal' was. If I get too low, I sometimes feel tired. Do you have all your blood tests from radiation? If not, I'd check with whoever has those records to see if they ran a TSH.

After radiation, the dietician put me on 500mg vitamin C a day, Zinc sulfate for taste and fast healing and a multivitamin. Are you taking any supplements? You might ask your doctor.

How is your diet and execise? If not good, has a dietician been consulted?

I hope you get to the bottom of this soon. That is too long to still be feeling exhausted.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Posts: 3,552
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If you had IMRT they would have programmed it to avoid the thyroid, if not then you may indeed have thyroid problems post Tx. This can be corrected with Synthroid or other thyroid medications. They will have to fiddle with it for a while to attain the proper balance.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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Gary

My understanding was that my RO programmed the IMRT to give my thyroid as little radiation as possible, but that he could not avoid "collateral damage" to the thyroid entirely and still hit my tumor hard enough due its location and size.
However, it was a different story with the Cyberknife treatment 18 months later as that was precise enough to actually avoid my thyroid entirely. The cyberknife pictures were awesome, almost psychedelic with these amazingly thin blue beams - and the computer monitored it real time to adjust them on the fly. I had asked if we could do Cyberknife the first time around and my RO had indicated that the downside of it's pinpoint accuracy was that it was impractical for a tumor as big as mine had grown, hence the IMRT. Since we caught the recurrence early, cyberknife was not only an option, but according to him, the only one as the rest of my face, throat, neck and shoulders could not handle any more IMRT radiation.
Charm

Last edited by Charm2017; 01-30-2010 10:17 AM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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