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#134326 - 05/19/11 02:41 PM Re: Fluoride Trays and Insurance [Re: ESikon]
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)

Registered: 03/03/08
Posts: 3082
Loc: Alexandria VA
Elisabeth

You are so right that you have to at least try. I know I feel better having appealed my insurance denial up thru two levels at OPM. It turned out just like Gary posted. Still it sucks and is patently unfair to us oral cancer patients.
Charm
_________________________
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13

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#134868 - 06/05/11 05:00 AM Re: Fluoride Trays and Insurance [Re: Charm2017]
klo Offline
"OCF Down Under"
"Above & Beyond" Member (500+ posts)

Registered: 05/18/10
Posts: 638
Loc: Sydney Australia
Question: Is the water fluoridated in the US? No one has said a word about fluoride trays to Alex and I here and I figured it would be a battle I could have with Alex in the future as he will not countenence any more "treatment" right now. It occurs to me that the reason no one has suggested it is because our water has fluoride added and maybe the US water doesn't???
Karen
_________________________
Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight

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#134879 - 06/05/11 02:11 PM Re: Fluoride Trays and Insurance [Re: klo]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8409
Loc: PA

Per Wikipedia.....A 1992 census found that, for U.S. public water supply systems reporting the type of compound used, 63% of the population received water fluoridated with fluorosilicic acid, 28% with sodium fluorosilicate, and 9% with sodium fluoride.

I know the above figures are not correct since it does not account for houses that use wells. The house I used to live in had well water as did everyone else within a 10 mile radius. When I attempt to find out how many households depend on wells I get several different figures, up to 10% of the population.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#134883 - 06/05/11 04:39 PM Re: Fluoride Trays and Insurance [Re: ChristineB]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4913
Loc: Toronto canada
We haver lurked in our water here in Canada and I was still told to get flouride trays - I would ask - it's important - your don't want to have to have a tooth pulled post radiation if you can avoid it.
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#134911 - 06/06/11 11:52 AM Re: Fluoride Trays and Insurance [Re: Cheryld]
mightymouse Offline
Senior Member (100+ posts)

Registered: 05/24/09
Posts: 124
Loc: Connecticut
The fluoridated water isn't enough to really protect your teeth. My surgeon and prosthodontist said the fluoride trays were a must, and for the rest of my life (it's not that big a deal to do daily). This all to prevent tooth decay and, as Cheryl says, to prevent your ever needing to have a tooth pulled post radiation.
_________________________
Chris

Stage 2 SCC upper right palate
Hemi-palatectomy and maxillectomy 5/28/09
Six teeth gone
IMRT x30 starts July 13. Completed 8/26/09
Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.

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#134926 - 06/06/11 06:42 PM Re: Fluoride Trays and Insurance [Re: mightymouse]
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)

Registered: 03/03/08
Posts: 3082
Loc: Alexandria VA
Karen

We definitely have lots of flouride in our Washington DC area water (along with an array of other chemicals) but my prosthodontist said the same thing: it's not enough flouride and not concentrated on the teeth and that flouride trays are the way to go.
If you do go that way, I recommend being sure to get a "gel" with a narrow nozzle and not a toothpaste type flouride - there was an interesting discussion here a while ago about using a syringe to make the toothpaste cream type work, but I find it easier to just buy the type that works right out of the little tube it come in.
Last but not least, while my insurance refused to pay for the flouride trays, they continue to pay for two full tubes of the prescription flouride each and every month with no quibble.
Charm
_________________________
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13

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#140737 - 09/29/11 12:31 AM Re: Fluoride Trays and Insurance [Re: Charm2017]
DonnaD Offline
Member

Registered: 08/08/11
Posts: 4
Loc: IL, USA
Sometimes the problem with getting these things covered has to do with the coding. Make sure the coding done in the dentist office is correct for cancer and not cosmetic. Don't know if it helps. We just had dental deny, turfing it to medical. I'm going to confirm coding with our dentist and then I'm going to medical next. On one hand, I can't complain as our insurance has covered almost everything. On the other hand - I pay dearly for 2 insurance policies and it is a necessity for head and neck radiation.
Donna - RN, BSN, COS-C
_________________________
Hubby age 65 -dx 6/11 SCC T4aN2bMX-floor of mouth
8/11 surgery- radical neck dissection, partial mandibulectomy, flap reconstruction
plan: radiation (300 rads x5d/w x 6), chemo (5FU, Taxol, Hydroxyurea) x 6
3/13 bilateral lung mets confirmed on biopsy - radiation
5/13 - no new lesions seen on CT, some size decrease in old lesions; 6 mm mediastinal node
9/13 New 12mm x 9 mm RLL lesion - radiation
1/14 - Prominent mediastinal lymph nodeS
1-2 PPDx40y smoker - SEVERE emphysema

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