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Joined: Jan 2008
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Joined: Jan 2008
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[quote=fogelbergfan]I've been blessed to have survived life threatening tongue cancer 27 years ago with treatment from Germany's Dr. Hans Neiper combined with radiation.I had FIFTEEN YEARS of no side effects whatsoever except a little dry mouth.For the last 12 years,fibrosis and all the bad stuff associated with radiation has taken a toll on my tongue/throat/soft tissue area.This effects my swallowing and makes it difficult to pronounce certain words.I ram a "bougie" down my throat each day to keep it stretched out and that helps.If anybody knows ANYTHING that will help,please let me know.The Holy Grail to fix it completely one day will come from regenerative stem cell research. I hope to grow new parts that were damaged by radiation. If you haven't seen this,Google it....It will blow your mind. [/quote]

Here is my original thread and as you can clearly see my cure was the direct result of the "combination" of radiation AND Dr Neipers treatment..I've NEVER claimed anywhere on some "secret German cure" anywhere on this forum as you say.This forum is to share information from our experiences and issues with oral cancer. I'm sharing my experience and anyone can decide what,if any,information can be useful to them.I have nothing to gain by sharing my experience with Dr Neiper's treatment given to me 28 years ago.Just like any and all treatments,people will benefit in different ways to different degrees.I was fortunately one of those that benefitted significantly.That's one of the reasons I ask if anyone knew of ANYTHING that could improve issues associated with fibrosis. Someone may know of something and could share it with the rest of us and someone may benefit to some degree.Your accusatory tone Charm is VERY unfriendly,uncivil, and unnecessary.


32 Year Oral Cancer Survivor.CURED!!Right neck dissection.5000 rads plus radium needle implants in the tongue.Also had alternative treatment in Germany from Dr. Hans Neiper in 1982.The combination of ALL the treatments cured me.
Joined: Sep 2006
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OK lets play nice in the sand.

Remember we are all here to try and do our best to help each other so I think we have said enough.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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I agree with David, let's not get overly emotional about this.

I went to the link that Charm posted, and read the information with great interest. A lot of it is not that different from the information found in the book "Anticancer - A New Way of life" by David Servan-Schreiber MD. This book was recommended to me by one of my caregivers at MD Anderson, after he lectured there, and my husband and I have read it cover to cover. It's been mentioned here before.

So, while I admit that some of this doctor's methods and theories were not evidence-based, many don't seem that far-fetched...


Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
Joined: Jun 2007
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I know of noone that ever wnet to him but you Fogel nor have I heard anything good. I have to agree with Charm on this one.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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