| Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Nov 2009 Posts: 212 | I just thought I would run this by my friends here. I am 16 weeks and doing alright. Usual stuff, dry mouth, lack of alot of taste, weak, aches and painf, but truly OK. When I eat, no mater what it is ice cream or mexican food, I sweat a bunch. I just had dinner and I needed a towel to wipe off my head. My belief is that I have wo work so hard for every bite, chew chew chew, drink-swallow. Have any of you had a similar experience?
Steve
70 male, athlete...again SSC of undetermined orgin , early july 09 40 tx radiation, 8 chemo cisplatin and ebuterx finished TX in mid Sept 09 Clear at the 6 year mark! Back to swimming, biking and running! just a tad slower never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Many OC patients experience this after tx. Its something to do with your nerves. Check out some of these posts, they discuss the same thing... http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=106772#Post106772 ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | Yes- eating is literally exhausting. So much effot. I would come home from work every night and eat a batch of cupcakes in addition to dinner. Those days are over (boo hoo) now and eating is less of a stressful chore. It too me a long time for me to get up to speed. Make sure you suppliment with the Ensure for awhile until you can get enough nutrients.
Keep going!!! You will get through this and come out the other end.
KATE
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
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