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Joined: Nov 2009
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WOW!! this was a touchy subject. you all crack me up. but kelly was right, i wasnt talking about exercise as much as just SOME movement. i asked his RO, and she said if he could tolerate it, a SLOW walk would be ok. absolutely nothing that would raise his body temp or heart rate, just to stimulate muscle.
but as of his 19th and 20th treatment...he is in that dark tunnel. he will not be doing any walks. he needed help getting to the bathroom last nite.

he got a fever last nite 101.6..thought i was going to have to take him to the hospital, but it came down before the MO called me back.

i am going to repost last nights detail under another topic and start a new feed.


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
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I don't think fever is unusual but you need to get it treated. I spiked a 101. something on day 9 and developed a rampant case of thrush. Antibiotics brought the fever down. No amount of meds seemed to get rid of the thrush. It would be 6 months and I think steroids before I finally got rid of the thrush. Of course, no one ever told me I shouldn't be eating anything 'white'.

He's allowed to stay in bed with fever. Hope he's feeling better soon.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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I remember in the throws of my Tx comparing getting out of bed and taking a shower, drying off, putting back on bedware and returning to my bed akin to running a marathon!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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absolutely! I felt the same way. Day to day life is exhausting. Its hard to understand that concept until you've been that sick.


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
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I just have a hard time getting out of bed, I am always cold and staying under the covers and being cozy is always nice. I know that the next few days are going be harder as well since we are going to dip into the teens and single digit temps outside.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Jun 2007
Posts: 5,260
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I remember getting into the bathtub and couldn't get back out after a hot bath. I had to crawl over the side and felt foolish for getting the floor all wet. That was my 1st day home after the implants. Geez, talk about weak. From then on it was back to a shower daily. I never imagined I could get that weak. Had that damn thrush too for awhile. It's hard to imagine getting that frail and weak but it happened . Like everything else, it all takes time.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Posts: 396
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thank u all for the responses.
after emergency hydration, he is feeling better. still in bed, but better.


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
Joined: Sep 2006
Posts: 8,311
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I had to go to the ER twice to get a bag or 2 since Moffitt was 45 miles away and I always seemed to have to do it on a 3 day weekend. I'm sure we all have experienced the frustrations dealing with ER people in trying to get them to understand WE JUST NEED A BAG AND LEAVE ME ALONE!!!!

I was cold to and I was Tx'ed in July - August in Florida!

Last night the weatherman's forcast for Sat - low near 30, high 45 and a 40% of SNOW/FREEZING STUFF in the am with winds 15 - 25 mph out of the N. Then turning COLDER for Sunday. Is someone kidding me!! This better be one of the 99% of the time he is wrong as I get up every Saturday at 5am and set up a tent at our Saturday Mourning Market that goes until 2 pm. BTW this is for my wife's restaurant, was her idea and she sleeps in with the dogs snuggled next to her. Just saying...


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Jun 2007
Posts: 5,260
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David, How would you like to have about 18 inches on the ground and expecting maybe 2 to 4 tonite and the same for the next 2 days. This is ridiclous and hard on this old guy and his snowblower and snow shovel. Can I move in with the dog?? LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Joined: May 2009
Posts: 1,412
David, we are sitting at 15 degrees and 9 degrees is our high for tomorrow. I would love a high of 45.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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