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EzJim #105141 10-13-2009 07:44 PM
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Thanks, Jim. I haven't tried any beef or pork yet as I don't have the 'guts' yet to take these stuff, and I crave a lot when I smell these being cooked by the family. Your suggestions encourage me, however, to start trying these foods, one step at a time...

Jojo


Diagnosed: 16Feb'09
Pre-op Dx: Tongue SCCA Stage IVB (T4N2cM0)
Opn: 2Mar'09. Total glossectomy, Neck dissection (Levels I-V), bilateral; Anterolateral, Thigh flap recon'n; Tracheostomy; PEG
Decanullation: 24Mar'09
IMRT x30, concurrent with chemo (cisplatin) x3: May-Jun '09
PEG out: 23Oct'09
Joined: Jun 2007
Posts: 5,260
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Jojo, I went to the grocery here and got the butcher to cut me off a nice piece of fat, the good tasting fat from pork chops, LOL I brought it home and fried it because that usually melts in you mouth. THat was so good to have pork taste in my mouth, LOL The taste only lasted for one or 2 bites, but sure was worth going for. I wish I could get him to do that for me with the tail of a porterhouse or T-Bone.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #105157 10-14-2009 05:17 AM
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By the way, I can't chew but have to mash or just suck the juice out of foods. Right now I can't even do that with this pain.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: Sep 2009
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I received this via email from Everyday Health; 10 Cancer Fighting Foods; 1.Garlic 1 bulb per day. 2. Berries; Blueberries, blackberries & strawberries; handful per day. 3. Tomatoes (make marinara sauce pour over whole wheat pasta) 4. Vegetables; broccoli, cabbage & cauliflower. 5.Tea; Green(best) & black. 1 or more cups per day. 6.Whole Grains; Oatmeal, barley, brown rice & whole wheat bread & pastas. 7. Tummmeric (orange colored spice). 8. Spinach,lettuce, cooked;collard greens, mustard greens & kale. 9. Red grapes, grape juice & red wine. 10. Beans;pinto & red kidney beans.


BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"

*** Admin update --- Dianne has passed away on August 25, 2015 ***
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My relative is suffering from oral cancer, stage 1 or 2. He cannot eat anything solid, are their any suggestions for diet through mouth which he can swalllow straightaway, withour having to chew it.

RAGHAV #109712 01-02-2010 04:53 PM
Joined: Nov 2009
Posts: 92
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RAGHAV,

Lots of people here will be able to give you some helpful ideas on ways you can help. Do you have access to nutrition supplement drinks?

I do know that several people also have worked with blending or pureeing foods so that they can be taken as a drink, rather than chewing.

Wish I could be of more help. Others will be checking in later, who are perhaps not here because of the holiday. Perhaps they can be of more assistance.

I get info here by reading old posts, sometimes. Perhaps you could click on the "Hop to: Menus, food ideas" "Go" button near the bottom right of your screen and look at what some others have discussed.

It's good of you to want to help. I wish you well.

- Pam


44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS! ; March 2018 new SCC - Meet with surgeon 4-4-18
Pam M #109822 01-05-2010 01:33 AM
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RAGHAV,

I'm into my 3rd month now without a PEG and have been taking only blenderized / pureed food since I still can't take solid food yet. I can chew solid food but because of total glossectomy my tongue flap is permanently attached to the the floor of my mouth and therefore could not control the food in my mouth. Hence it's a lot easier for me to just swallow pureed food (for now, until I find the right technique).

If there are no dietary restrictions, your friend can practically have anything that can be pureed, for whatever is acceptable to your friend's taste. Your friend can try experimenting different mixtures. You will find this generic suggestion in this forum, as I have when I myself was asking similar questions.

Here is what I have for my meals:
Breakfast/Lunch - bowl of muesli with walnuts and almonds soaked overnight in unsweetened organic soy milk (flavor varies depending on my mood), added with various fresh fruits the following morning, with two hard-boiled eggs and some carrot juice. I also add a few scoops of Ensure. All these blended to a smoothie, adding some water (or more carrot juice) as needed to get the consistency I want.
Lunch/Dinner - blanched vegetables (usually: broccoli, green beans, carrots, other green vegetables), sauteed in a few teaspoons of extra virgin olive oil with minced onion and garlic, finally adding flakes of boiled fish fillet or chicken breast. All these are pureed in either chicken or beef broth, with a small banana, adding broth as needed to get my desired consistency. Occassionally, I would also add a few scoops of Ensure.

I have to say that between these two sets of pureed meals, I prefer the taste of the the first set by 3x...at least.

My weight has been constant between 63 and 65 kg, which is ideal for my BMI (body mass index). Except for slightly low iron level in my blood (which I augment by taking iron supplements), all my CBC results post-surgery have so far shown normal readings. And I haven't suffered from colds since then. So from these indicators, I guess I can safely assume that my pureed meals work for me.

Hoping that you and your friend find the right non-solid food meals.

Jojo


Diagnosed: 16Feb'09
Pre-op Dx: Tongue SCCA Stage IVB (T4N2cM0)
Opn: 2Mar'09. Total glossectomy, Neck dissection (Levels I-V), bilateral; Anterolateral, Thigh flap recon'n; Tracheostomy; PEG
Decanullation: 24Mar'09
IMRT x30, concurrent with chemo (cisplatin) x3: May-Jun '09
PEG out: 23Oct'09
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Joined: Jun 2007
Posts: 5,260
I fix dressing for turkey, chicken or to go with beef flavors. Then I make gravy and saturate it with this. It goes down pretty easy and gives you a break from the normals we seem to all eat. As for nuts and anything esle solid. That would tear my mouth apart or what is left of it. Nut flavored Cheerios is as close asI dare go. I made fatty ribs for the NY and let it cook all day in a crock pot. The fat was delicious and even managed a couple pieces of the well done pork.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #109864 01-05-2010 01:10 PM
Joined: Jun 2007
Posts: 5,260
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This was cooked in kraut for the flavor I love.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #109938 01-06-2010 05:49 PM
Joined: Nov 2009
Posts: 92
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Joined: Nov 2009
Posts: 92
MM, Jim - we do Pork and kraut for New Year's.


44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS! ; March 2018 new SCC - Meet with surgeon 4-4-18
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