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| | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Linda...you should be able to find one at Best Buy:)
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Dec 2006 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2006 Posts: 147 | Scott,
My husband tape every conversation with the Dr. as he did not want me to go with him in the beginning. I transcribed everything and words that I didn't understand, I researched them on the net. That was invaluable to me as Jim is extremely private and sometimes he just didn't want to hear, so he let the recorder be his ears.
As far as SSI - I did the paperwork and it was EXTREMELY THOROUGH. I had all my ducks in line and he was still declined. We then went with what Linda is suggesting and had a previous employee for SSI complete it and she took her one time fee out only if approved - it got approved and she took her fee immediately and he received the rest. IT WAS WELL WORTH IT, TOO! This forum has saved me sooo many times. Visit us often as there is so much to learn. Have your sister keep a notebook in the beginning as the meds, treatment and trying to filter ones way thru this maze is overwhelming to say the least.
Good Luck!
Paula
Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009
Lost the battle November 23, 2010
| | | | | Joined: Jul 2006 Posts: 7 Member | | OP Member
Joined: Jul 2006 Posts: 7 | My BIL Matt's surgery was today. I was not able to be there since I am about 6 hours away and currently have no transportation.
They removed 2/3 of Matt's tongue (SCC tumor) and also lymph nodes both sides of his neck. The surgeon said they won't know the lab results until next week but that Matt would "definitely need radiation treatments" in a few weeks--the tone of which scared my sister to pieces.
They said he will be in the hospital at least until Sat/Sunday.
Now we wait.
Thanks, everyone, for your support and for all the wonderful information found on this forum.
Last edited by Scot55; 01-13-2010 05:14 PM.
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