Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#109164 12-22-2009 04:38 PM
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
OP Offline
Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
How many OZs were you guys able to put in your PEG at a time. I am miserable if I put more than 2 ozs at a time. I tried 4 ozs tonight and I feel terrible. It may not all be just that. It could be that I still gag when I talk at all, because of the uvula thing. It is miserable. UGH


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Oct 2007
Posts: 104
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Oct 2007
Posts: 104
Angelia do you have a feeding pump to deliver your feeds into your PEG? It can be set at different speeds and one usually starts at about 2 oz. per hour and increased each day until you reach your tolerance level. Feeds are usually tolerated better with this slow continuous delivery.


Caregiver to husband Dx. Stage 4 SCC of gingiva with 3 nodes pos. Partial mandiblectomy with bone graft from iliac crest Dec. 2006. IMRT x30, Cisplatin x3. Completed Tx. March 15, 2007. Osteonecrosis & removal of graft & plate Oct. 2007. Recurrence of SCC Dec. 2007. Deceased Jan. 17, 2008.
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
OP Offline
Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
No pump, just syringes. Should I ask about a pump? How do you get a pump? I know they are looking at getting me a suction maching for all the mucous, but never mentioned a pump.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Angelia

A mid way point between the slow pump and fast syringe is a gravity feed bag. I have been using the gravity feed bag since February with no problems. I occasionally use a syringe when out and am trying to acclimate myself to that as it much faster than the gravity feed bag, which is much faster than the pump.
An 8 ounce can of Jevity 1.5 takes from 30 to 40 minutes in my gravity feed bag depending upon how new my Y extender tube is.
My insurance pays not only for Jevity and the syringes but also for the gravity feed bags and the Y extender tubes
So after much digression, here is my personalized answer to your question: I have always been putting 8 ounces into my PEG tube
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
OP Offline
Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
I guess I could ask for a gravity feed bag. I have just been letting it for through the syringe using gravity and it doesn't take 5 minutes.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Nov 2005
Posts: 7
Member
Offline
Member

Joined: Nov 2005
Posts: 7
I put 2 cans of formula and 2 cans of water for a total of 1000 ml in a Kangaroo bag. It despenes in about 30 to 40 minutes. It all depends on what you can toleerate. My thinking was that I could drink a liter of German beer in 30 minutes so I should be able to handle the formula. I sometimes can't and my GERD acts up. BTW I use 2 cans of TwoCal HN for morning and noon, and 1 can of TwoCal plus 1 can of Jevity 1Cal with fiber for evening. The former is rather dense and slow and the latter can run a lot faster. You can adjust the speed with your tube clamp or the roll clamp on the bagg set up. A pump drives me crazy it is so slow.


DG squaomous cell carcinoma in neck tongue and palate 4/98;
T4N2CMO
bi.lat. neck disect. 7/98;
Max dose Rad 8/98 to 9/98. H&N Cancer free.
G-tube placed same time as disection. Changed to button after 2 years.DynaWrite
Severe trismus and unable to speak clearly. Use an iPad .
Joined: May 2007
Posts: 621
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: May 2007
Posts: 621
[quote=walknlite] I have just been letting it for through the syringe using gravity and it doesn't take 5 minutes. [/quote]

Everybody is different, this is the method I used all the way thru and I was doing 4 cans of "formula" plus 8 oz of water or Gatorade for each "meal" 3 times a day.

So I guess to properly answer your question, whatever is comfortable for you, and if one way doesn't work well, that ask your docs about another alternative. The goal is still calories, calories, calories and the more Protein the better !

Kevin


9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
OP Offline
Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
Thanks everyone. You have all been very helpful.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Nov 2009
Posts: 212
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Nov 2009
Posts: 212
Angelia,

I was a big guy and I could do only a can of jevity.
I had to have a "2 am: feeding every night so I could get enough in each day. I also needed Morphine at 2 am so it was dual purpose. Just give your self multiple 2oz feedings, whatever keeps you comphie!

Steve


70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now

Just way glad to be seeing the green side up!




Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Steve

Oh yeah, I remember those 2 am pain pill drills. Then I would also post on OCF making it a triple threat smile
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Page 1 of 2 1 2

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5