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Pam M #108427 12-07-2009 10:57 PM
Joined: Jun 2009
Posts: 440
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Platinum Member (300+ posts)

Joined: Jun 2009
Posts: 440
Thanks for askign this question, I'm gonna get me a waterpik now!


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
Eileen #108640 12-11-2009 12:22 PM
Joined: Dec 2009
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I am 8 weeks post tx. Scheduled to have peg removed on 12/16. Started out eating good, but now feel nauseous, mouth so dry. Tongue hurts, feels like it is on fire when it pushed on roof of mouth, gums. Depressed, at first started cooking, feeling good, now depressed, tired. Went for scan, come back in two months to repeat. Said I was a little early having it done. Does any of this sound normal?

joanie #108641 12-11-2009 01:04 PM
Joined: Sep 2009
Posts: 60
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Posts: 60
It sounds about normal to me, and I had a relativly quick recovery. You need a signature, so we know what treatment you had, but you need to give the eating some time. I did not have a PEG so I had to keep it up.


Flip
_________________________________
Age: 54 SCC Tonsil + 3 nodes
Radiation and Carboplatin
Treatment 4/1 - 6/7/2009
No surgery, no PEG
Never smoked
Drink socially (brew my own beer and love wine. A bottle of scotch lasts me a couple of years)
CT 11/4/09 No sign of envolvement in Tonsil or nodes
Flip #108643 12-11-2009 02:09 PM
Joined: Sep 2006
Posts: 8,311
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Joanie,

Have you by chance stopped or decreased any meds recently?

Everyone can react differently to the Tx and we all have our good and bad days post Tx especially early on and 8 weeks is "early on" but I would pass this factual situation by your RO and see what comments he/she has.

If you have had recent blood work you might want your TSH levels checked. It's a tad soon for your thyroid to have crapped out (if it's even going to) but it's worth a look.

I know you are new but it's best to start your own thread instead of tacking on to someone else's. So next time you have a different question go to the Forum that best describes your question and then click on New Topic and post away.

As Flip mentioned above it also helps responders to read your Signature Line (see mine as an example) along with each post you make. It's easy to do just go to your Profile and edit your Signature Line.

Welcome to the site.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Pam M #109124 12-21-2009 07:21 PM
Joined: Jan 2008
Posts: 29
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Posts: 29
The Water Pik ROCKS!!!! It's a God send!!! Been using mine for years!!


32 Year Oral Cancer Survivor.CURED!!Right neck dissection.5000 rads plus radium needle implants in the tongue.Also had alternative treatment in Germany from Dr. Hans Neiper in 1982.The combination of ALL the treatments cured me.
Pam M #109137 12-22-2009 07:09 AM
Joined: Jul 2008
Posts: 507
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Posts: 507
I started using a water pik during Tx. Now I just use it once a day at night before the trays.

I put about a quarter teaspoon of 50/50 salt and baking soda in the (warm) water.

I have gone from getting cleanings every three months to every four months. Even at that there is hardly any plaque buildup, but it is good to get checked out frequently by the Dentist.





Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

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