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ChristineB #108722 12-13-2009 03:43 PM
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thanks christine!

we found out that he will be having both chemo and radiation at the same time starting two weeks from now (at first we thought it would be radiation then chemo).
has anyone had this kind of treatment or is this the best path to take? I heard it is very aggressive but works well.
I am keeping my fingers crossed that things go well, any advice any of you have on this kind of treatment is much appreciated.


*KATIE*
future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding
palmtree27 #108728 12-13-2009 06:36 PM
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I had rads and chemo combined then had to have my teeth removed for radiation seed implants a week after the removal. It is no fun and maybe it wasn't necessary. The rads and chemo were a pain but the rest I have doubts about. Good luck and I hope this works well for you.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #108735 12-14-2009 06:21 AM
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Most OC patients have concurrent chemo and radiation as the chemo is supposed to weaken the cells making them more receptive to the killing power of the radiation. I was told the concurrent chemo would increase the rads kill rate by 20 to 30%.

What type of chemo are they using?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #108754 12-14-2009 04:04 PM
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thanks jim and david.
what are radiation seed implants?
i have no idea what type of chemo they are using- as soon as i learn i will post here- i get limited info.
he already has his teeth/jaw on the one side of his mouth removed... would they remove the other half also? he went for his mask today...


*KATIE*
future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding
palmtree27 #108759 12-14-2009 06:30 PM
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The only reason teeth would be normally be removed is if they were already in poor condition. If his remaining teeth are in good shape, he might want to see a dentist to get floride trays made. I dont know if that is a possibility for him since he very recently had such major jaw surgery.

Best of luck to your FIL with his upcoming treatments.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #108821 12-15-2009 06:13 PM
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He's going to begin chemo (Cisplatin) beginning January 4th. He'll receive 7-8 weeks of treatments once a week and he'll be having radiation 5x week during the chemo treatments.
christine, what is cisplatin like, i see you had the same thing?
is this a normal duration of chemo/radiation? thanks


*KATIE*
future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding
palmtree27 #108823 12-15-2009 06:19 PM
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A side effect of cisplatin is hearing loss. I was not affected by this. Having the weekly chemo treatments make it easier to tolerate as it is given in a lower dose. I was scheduled to have 3 large doses, the third dose was cancelled due to my reaction to it. I was very ill. Davidcpa can explain cisplatin much better since he had his hearing affected. What your FIL will be getting is what most patients now get.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #108824 12-15-2009 06:21 PM
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great thanks- i have been talking to davidcpa about similar issues too- you guys are the best resources!!!! smile


*KATIE*
future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding
palmtree27 #108851 12-16-2009 07:17 AM
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I had Cis the older way which was 3 larger bags during radiation. We have recently seen more members say they got it in 6 weekly doses. The only "study" if you want to call it that since the 2 pools were not very similar, didn't conclude there was a benefit favoring one delivery method over the other. That said it does appear that the ones getting it in smaller weekly doses seem to fare better in the side effect arena. I don't remember many complaining about the nausea and none complaining about hearing loss. I did talk to my docs at Moffitt and they still favor the 3 dose method.

Re the hearing loss, if he experiences any "ringing" or a buzz in his ears then he needs to inform his MO immediately as that is the damage occurring. Not all of us (like everything else) seem inclined to get the damage but the ones, like me, that do have damage it is permanent and most always affects the higher frequencies. Of all my side effects it's probably near the bottom of my dislike list but certainly if it can be avoided it's better.

Nausea is another common side effect of Cisplatin. There are many different anti nausea meds out there. Some that provide instant or breakthrough relief and some intended to work in the background for longer lasting relief. Again what works for some doesn't mean it works for all and vice verse. I was one of the lucky ones that nothing seemed to work for me. I will also say that I didn't have the benefit of this site's wisdom during my Tx so maybe I gave up on some meds prematurely? I was such a stubborn pigheaded scared idiot during my Tx.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #108932 12-17-2009 07:29 PM
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My teeth were in good shape until the PC started to play with them, I was having teeth break off , fillings fall out, andwhole teeth were falling out of my mouth. I was one that went to my Dentist no less than 3 times a year pr every 3 months. He could,t bekieve how bad things got in my mouth. In implant is Radiation radiation seed implants that they insert into your tongue from beneath your chin. This is very miserable and I at times wonder about this decision from the Drs.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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