| Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Life has once again staggered me emotionally these past few days. I once prided myself in being able to take anything that came my way...and now while I feel I still can/do, it just amazes me what life holds everyday.
Yesterday I had a wonderful day with the love of my life, my wife of 10 years. We spent the day Christmas shopping and enjoying each others company, which we surprisingly don't get to do very often. After a day of laughter, jokes and the joy of the season...I got a call that my youngest sister had taken her own life. She was almost 20.
I don't understand suicide, especially after spending the better part of two years fighting for my life. I of course was/am very sad, but also pissed off at her decision to end her life. I guess I'm just hoping that she finds the peace in death that eluded her in life.
Today was a great day, I just had all of the gauze, sutures, staples, stiches and almost everything else they left in me after having a XII-VII gloss-facial nerve graft and skin graft on Dec. 1st. My surgeon said the surgery went great and that to give me the best possible chance at restored facial function he used 100% of my tongue nerve to graft into my facial nerve. He said everything is healing well and I should be able to start to see improvements in the basics, eating, drinking, speech etc...
Throughout the day I was amazed at how I could drink without dribbling on myself, eat without most of it falling out of my mouth, swallow without as much water. My speech has been clearer but there is definetly work to do there...however if it keeps improving I can see myself back working in my old profession again.
I just see it as every breath is a gift...and where I feel the loss and my family is mourning my sister's decision, I'm going to continue to live appreciating each peak and valley. I'm going to focus on recovering what I've lost...which is just about everything but the most important things, wife, family and friends.
Putting this down has helped me get this out, as always I'm thankful for this forum and this group of people.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Eric, you are one strong young frack. I could not imagine going through what your are going through right now. I want to say thank you for being that encouragement to me. I will be praying for your family.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Eric,
I am so sorry about your sister. What a waste.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Eric
I am so sorry to hear of the loss of your sister. Its so unfotrunate that she was so troubled she decided to end her life. She was so young. Thats the same age as my son Travis, which makes it even more shocking to me. May you and your family find peace in remembering all the good memories of your sister.
What a complete turn around you are doing!!!! Just amazing what this surgery is doing for you. Keep up the good work with your speech and eating.
Condolenses and Congrats too. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | Eric,
Your strength and commitment to fight for yourself and your family are remarkable especially after the loss of your sister. Keep on forging ahead! And thank you again for your encouraging words. You have a lot of friends here who are cheering you on!
My condolences- Anita
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2009 Posts: 476 | Hi Eric. I'm so glad that things are going so well with your recovery. Suicide is so selfish and leaves so much pain to those that are left behind to try and make sense of it all. Continue enjoying your wife, kids and what is most important in life. I'm so happy that surgery went so well for you.
Wanda (47) caregiver to husband John (56) age at diag.(2009) 1-13-09 diagnosed Stage IV BOT SCC (HPV+) 2-12-09 PEG placed, 7-6-09 removed Cisplatin 7 weeks, 7 weeks (35) IMRT 4-15-09 - treatment completed 8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear 4-2013 - HBO (30 dives) tooth extraction 10-2019 - tooth extraction, HBO (10 dives) 11-2019 - Left lateral tongue SCC - Stage 2
| | | | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Aug 2005 Posts: 307 | Eric,
I'm so happy to hear you are recovering so well. That is great! My condolences about your sister. I don't understand suicide either. It is a permament solution to a temporary problem. I pray that she has found peace....You just keep loving that wonderful family of your's and continue to recover.
All the best,
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
| | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Eric, What a tragic ending to such a beautiful day. I'm sorry for your loss.
I am so glad to hear that your surgery was so successful. it must be a wonderful feeling to finally be doing all these things. Here's to a successful and speedy recovery.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | Joined: Nov 2009 Posts: 33 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Nov 2009 Posts: 33 | Eric,
I'm so sorry for you and your family's loss of your sister.
You are (another) inspiration to me. My family and girl-friend tell me I've been so brave and strong.
When I read so many of the posts from such fine people here--both fighters, and caregivers--I realize that they haven't seen what brave and strong is!
I wish you only the best of the best!
Joel
Age 49, HPV 16+ SCC, T1N2bM0, Stage IV R Tonsil, 2 nodes, nonsmoker, lite drinker, 100 mile/wk biker, workout, play hockey, Tx:10/26--12/15/09, IMRT x35 70Gy, no surgery, Cis 1st rnd til some tinnitus loss after day 2, carbo next 3 wks, Peg in 3rd wk;still ate some solids 6th wk. 2012/05 Still Clean
| | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 595 | My condolences on the loss of your sister. hope your recovery goes well!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Eric,
I was saddened to hear the news about your sister. I consider you one of the hero�s here on this board and your fighting spirit has inspired me on more than one occasion.
It is hard to understand the pain that drives some to suicide, but I know it is very deep and intense as I have a brother who barley survived an attempt a few years ago.
My thoughts are with you.
Kelly
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
| | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | Oh Eric- I am so sorry. Suicide is so hard to understand. I htink that for whatever reason- emotional termoil- overwhelming sadness or dissapointment that just consumes someone or a chemical imbalance at the moment the person feels there is no other choice to make. It doesn't make sense but for that person it seems the only way out at that moment in time. I'm sure that this must be heartbreaking for you and your family. As difficult as it may be I hope that you will only have happy memories of her time here with you on earth.
I'm so very glad your hear that your surgeries went well and that you are making progress. You've sure been through a tough time with all of this and this doesn't make it any easier I am sure. Wishing you a very successful recovery and peaceful and healthy 2010. You deserve it!
Sincerely,
KATE
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Eric
So sorry to hear about your sister. Depression is also a terrible disease, in many ways worse than Cancer since no one expects you to just "cheer up" to cure cancer. The subject line of your post evokes this year's Bob Dylan album's (Together Through Life) final track: It's All Good [quote] Brick by brick, they tear you down. A teacup of water is enough to drown. You oughta know, if they could, they would Whatever goin' down, it's all good.[/quote] The rest of the song has that same ironic quality that seems fitting. I lost my younger brother over 22 years ago and still miss him terribly. There are no words I know to comfort you. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | I want to thank everyone for their kind words, they mean so much to me. This forum means so much to me.
I find strength in the warriors on this forum that fight to the end...like sobradley who lost her fight...but fought with heart and determination. Those are who I mourn for, the people that chose to face death down and spit in its face even if it takes them.
To hell with cancer, I'll continue to fly my middle fingers to this disease and it's life altering effects to the day I'm put to rest.
Thanks again my friends and brothers and sisters in arms.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Eric,
I just read your post about your sister. She was so young � such a waste. I�m so sorry that you and your family have to face this tragedy. My thoughts and prayers are with you.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: May 2009 Posts: 35 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: May 2009 Posts: 35 | Eric,
Sorry to hear about your sister. If I had one wish this Christmas, it would be: that you infect readers and posters needing the same attitude you have towards life, considering the situations you've faced.
You, as well as others, certainly exemplify Commandment #'s 6 to 8, of "The Ten Commandments for Cancer Survival":
============================================= 6. Thou shalt be a comfort to thy fellow-cancerites, providing knowledge, encouragement, understanding and love. You shalt give them hope where there may be none, for only in hope lies their salvation. And by doing so, thou providest comfort for thyself, as well.
7. Thou shalt never relinquish hope, no matter how thou may feelest at that moment, for thou knowest, in the deep recesses of thy heart, that thy discouragement is but fleeting and that a better day awaits thee, perhaps tomorrow, perhaps the day after tomorrow - but certainly it shall come.
8. Thou shalt not regard thy ailment as the sum total of thy life but as merely a part of it. Fill your life with other diversions, be they mundane, daring, altruistic, or merely amusing. To fill your life with your ailment is to surrender to it. =============================================
Jojo
Diagnosed: 16Feb'09 Pre-op Dx: Tongue SCCA Stage IVB (T4N2cM0) Opn: 2Mar'09. Total glossectomy, Neck dissection (Levels I-V), bilateral; Anterolateral, Thigh flap recon'n; Tracheostomy; PEG Decanullation: 24Mar'09 IMRT x30, concurrent with chemo (cisplatin) x3: May-Jun '09 PEG out: 23Oct'09
| | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | Eric, i am so very sorry for the loss of your sister. my prayers are with u and ur family at this difficult time.
i lost my older brother to suicide on dec 13 several years ago. i have spent soo much time asking why??? and even more time mad as heck. when there was so many people that loved him so much. there isnt any answer out there. u can drive urself crazy trying to figure it out. the one thing i know is u will never figure it out and u will never truly know why.
there isnt anything i can say that will make u feel any better, trust me, i know. but please know that i feel your pain. it will never pass, but will get easier with time.
please accept my virtual hug XXX and know that i am praying for you and wishing u peace.
u are a huge inspiration to me on this site.
teresa
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
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