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tristeve #108595 12-10-2009 04:52 PM
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Steve,

Mine has been out for over 3 years now and is what I call my second navel. When I'm around small kids without a shirt, on rare occasions, I tell them it's an old gunshot wound. They always respond with "REALLY??!!". I have even been asked if that's what it is, usually by nursing folks, when going to other docs offices. Can't fool the docs though, the ones I have seen for other issues usually speak up and ask, "what did you have a PEG tube for"?

Bill D.


Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
William Dozier #108598 12-10-2009 06:21 PM
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So, the hole doesn't go away, then?


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #108599 12-10-2009 06:25 PM
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The hole heals very quickly. There will be a small scar left.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #108605 12-10-2009 08:04 PM
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I have 5 holes from Nissen Fundiplication surgery and have had a few Drs and Medical people ask if they are scars from my being shot. LOL I guess they do look a lot like bullet holes from years ago. LOL . Damn jealous husbands anyhow..


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #108624 12-11-2009 04:53 AM
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I learn something everyday here on OCF -besides EZJim's amorous past wink. So if I ever do get this PEG out, the scar won't just disappear like the trach hole did? Still, it would be a very small price to pay.
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #108627 12-11-2009 05:29 AM
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Posts: 453
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Steve is still waiting to get his peg out. Hasn't used it in about 6 weeks now but still his doctor says no. After all of the issues we had when it was first put in they are reluctant to put Steve through that again incase we need it. Very disappointing for Steve as he hates the rotten thing although he has gotten used to it. It must be very liberating to have it gone and to then be able to sleep on your stomach again for the first time in months.


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
WendyG #108632 12-11-2009 08:08 AM
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Posts: 212
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I did get it out Wd, not only is it nice to sleep on my bellie, I can scratch my stomack without messing with the tube!

Steve


70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now

Just way glad to be seeing the green side up!




tristeve #108635 12-11-2009 09:23 AM
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Posts: 493
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It's nice to be able to dress without having to have a pocket to put the end of the PEG into. Also, to be able to tuck a top in. If the hole stays, maybe I'll just put a jewel in it:)


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #108636 12-11-2009 09:29 AM
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Posts: 212
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Hey, that is a hot idea, instead of a bellie buton ring a PEG hole ring....HOT HOT HOT!

Steve


70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now

Just way glad to be seeing the green side up!




tristeve #108644 12-11-2009 02:11 PM
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Posts: 8,311
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No I like the jewel approach better than the ring.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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