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#107318 - 11/18/09 05:21 PM PEGAPHOBIA: a guy thing?
Charm2017 Offline
Patient Advocate (1000+ posts)

Registered: 03/03/08
Posts: 1555
Loc: Alexandria VA
I am struck by how many guys like myself have major PEGAPHOBIA. None of the female cancer patients and certainly very few of the female caregivers express any concern about getting a PEG. Yet, I know that I was insanely opposed to getting a PEG. And yes, I believe that every male poster on OCF who got through TX without a PEG has swarded himself a mental medal.
This observation is based on reading hundreds of posts on the PEG here at the OCF forum. I know that when I failed my first MBS after surgery which meant that I needed a PEG, it was only the fourth time in 62 years that I ever cried in public (the other three were the funerals of my little brother, father & mother). I know all the psychological pain a PEG has cost me and why I rejoiced the first year in avoiding it. What I don't know is if this is somehow testosterone based. So were there any female die hard objectors to a PEG?
_________________________
62 yr Old Frack 07:Stage IV BOT T3N2 HPV 16+ 40 IMRT:72 GY 8 ERBITUX No PEG 08:CANCER BACK Salvage Surgery&G-tube 5 CyberKnife:25GY 3 Carboplatin Thyroid pills Can't swallow to eat or drink

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#107329 - 11/18/09 07:32 PM Re: PEGAPHOBIA: a guy thing? [Re: Charm2017]
Kelly211 Offline
Platinum Member (300+ posts)

Registered: 09/01/09
Posts: 329
Loc: Michigan
Charm,

When I had the dreaded first discussion with the RO concerning my treatment he left it up to his female nurse to very sternly impress upon me the importance of the PEG and how much it would be needed if things did not go exactly right. She gave me quite a talking to.

On my way out the male nurse that accompanied her and had held his tongue during the whole encounter approached me and said very matter of factley that if it were him he would also reject the PEG but it would be the wrong decision. Then he tried to tell me I should get it.

Seems this male Pegaphobia extends to the nursing staff as well.

Kelly
_________________________
Kelly

Male
48, SCC Oropharnyx (Soft Palet) Right side,
Stage 1, T3n0m0,
Heavy Smoker, Quit after Dx
Dx, 8-09, Start IMRT 35 x 70gy 9-2-09 finished 10-21-09
04-20-10 NED (No Evidence of Disease)

Life's challenges are not supposed to paralyze you; they're supposed to help you discover who you are.

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#107341 - 11/19/09 01:43 AM Re: PEGAPHOBIA: a guy thing? [Re: Kelly211]
WendyG Offline
Gold Member (200+ posts)

Registered: 07/01/09
Posts: 299
Loc: australia
Charm, Steve didn't want the peg, hated it when he got it and still hates it to this day. Must be a male thing.
_________________________
Wife to Steve 43. T4N2MO SCC tongue, floor of mouth, lymph nodes and jaw bone.
No surgery.
Teeth removed 06/07/2009
radiation starting 13/07/2009 x 7wks
chemo starting 15/07/2009 x 3
last TX 28/08/2009
25/11/2009 PET - lymph node activity.
08/01/2010 CT Scan - ALL CLEAR
03/03/2010 - Peg removed.

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#107352 - 11/19/09 06:14 AM Re: PEGAPHOBIA: a guy thing? [Re: WendyG]
Flip Offline
Supporting Member (50+ posts)

Registered: 09/29/09
Posts: 58
Loc: MI
Actually the main reason I did not get teh PEG was that my wife absolutly freaked out when the MO suggested it. I think it was too much an outward sign that something was wrong with me.
_________________________
Flip
_________________________________
Age: 54 SCC Tonsil + 3 nodes
Radiation and Carboplatin
Treatment 4/1 - 6/7/2009
No surgery, no PEG
Never smoked
Drink socially (brew my own beer and love wine. A bottle of scotch lasts me a couple of years)
CT 11/4/09 No sign of envolvement in Tonsil or nodes

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#107357 - 11/19/09 06:52 AM Re: PEGAPHOBIA: a guy thing? [Re: Flip]
Kevin - Memphis Offline
"Above & Beyond" Member (500+ posts)

Registered: 05/14/07
Posts: 533
Loc: Memphis, TN
I actually didn't think a thing about it. ALL of the doctors I talked to said definitely get it, so it was a non-issue....

Just not a big deal....
_________________________
3 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
Finished treatments (Chemo, Surgery, then Rad) 12/2006.
Clear CT @ 3 year anniversary 12-2009.


Don't let your nightmares cloud your dreams!

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#107360 - 11/19/09 07:27 AM Re: PEGAPHOBIA: a guy thing? [Re: Kevin - Memphis]
brickster Offline
Contributing Member (25+ posts)

Registered: 08/03/09
Posts: 32
Loc: TN
I certainly awarded myself a medal for getting through without a peg! My oncologist advised against getting one because he didn't want me to become reliant on it, my radiologist felt passionately that I get one. My rad and I made a deal that if I lost 10% of my body weight I would get one. I lost more than 10% but I would load down my pockets and took to even wearing boots to boost my weight! After treatment was finished, and I didn't care what my weight was, I hopped on the scale and my rad almost fainted because I had lost so much weight. He wanted to put a peg in after all my treatments and I had to break it to him that there was no way in hell that was happening.

Kevin, I'm a Memphian also. Had my rad at Baptist east and chemo at West Clinic. Curious if we share any Doctors. Lawson is my oncologist and Marks was rad.

George


Edited by brickster (11/19/09 07:27 AM)
_________________________
Dx 8.14.08. 42 at diagnosis. Stage IV Tonsil. Tonsillectomy 8.25.08. Induction chemo (9.29.08) (taxol and carboplatin) 5 weekly treatments. 35 rad and 6 concurrent chemos. Finished 12.22.08. No peg, no port. Neck dissection Feb. 09

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#107363 - 11/19/09 08:48 AM Re: PEGAPHOBIA: a guy thing? [Re: brickster]
Charm2017 Offline
Patient Advocate (1000+ posts)

Registered: 03/03/08
Posts: 1555
Loc: Alexandria VA
George

Great to hear that our strategies were so similar. I also wore my Danner Telson Scorpion class boots and put weights in my vest pockets and clipped on my Blackberry and cell phones for the scales to hide my weight loss of over 20%. Wear your medal proudly. You earned it.


Edited by Charm2017 (11/19/09 08:59 AM)
Edit Reason: typos
_________________________
62 yr Old Frack 07:Stage IV BOT T3N2 HPV 16+ 40 IMRT:72 GY 8 ERBITUX No PEG 08:CANCER BACK Salvage Surgery&G-tube 5 CyberKnife:25GY 3 Carboplatin Thyroid pills Can't swallow to eat or drink

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#107365 - 11/19/09 09:12 AM Re: PEGAPHOBIA: a guy thing? [Re: Charm2017]
Flip Offline
Supporting Member (50+ posts)

Registered: 09/29/09
Posts: 58
Loc: MI
I'm so glad to hear I was not the only one to wear heavy boots to the Dr's office.
_________________________
Flip
_________________________________
Age: 54 SCC Tonsil + 3 nodes
Radiation and Carboplatin
Treatment 4/1 - 6/7/2009
No surgery, no PEG
Never smoked
Drink socially (brew my own beer and love wine. A bottle of scotch lasts me a couple of years)
CT 11/4/09 No sign of envolvement in Tonsil or nodes

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#107367 - 11/19/09 09:21 AM Re: PEGAPHOBIA: a guy thing? [Re: Flip]
ChristineB Offline
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 2859
Loc: PA
Charm, I absolutely hate the PEG tube. Even though I understand I must have it, just like when I first got it, I still hate it. The pegophobia isnt just a male thing.
_________________________
Christine

Stg 1 SCC 6/15/07 L chk & by L molar, age45
2x cispltn-35 rad end 9/27/07
4/4/08 recur L cheek
surg 4/16/08 clr marg
125 HBO, trismus
3/09 teeth out
7/2/09 its back..Stg 4
8/24/09 trach, ND, 10hr surg L jaw removd
slowly recovering

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#107394 - 11/19/09 01:55 PM Re: PEGAPHOBIA: a guy thing? [Re: ChristineB]
Bob Whyte Offline
Platinum Member (300+ posts)

Registered: 06/26/07
Posts: 328
Loc: Vermont
The only reason I did not get a PEG was that that was the only control I had over what was happening to me!! No medals were rewarded as I have enough from Uncle Sam. Semper-Fi Bob
_________________________
Bob age 54, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Raising the battle Flag higher each month in victory. Semper-FI !!!

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