#107254 - 11/17/09 07:16 PM
Does anyone else find this strange?
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Patient Advocate (old timer, 2000 posts)
Registered: 04/20/05
Posts: 2119
Loc: Yardley, PA
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Megan posted this link on Facebook to a news article in the News Section of this site. I keep re-reading it and it says nothing about how the diagnosis was made and why there were no treatment options. What vital organs? I think he was misdiagnosed and did not have "mouth" cancer as they call it in the UK. http://oralcancernews.org/wp/terminal-cancer-patient-is-given-the-all-clear/
_________________________
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. 5 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#107299 - 11/18/09 01:04 PM
Re: Does anyone else find this strange?
[Re: wilckdds]
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Administrator, Senior
Patient Advocate (old timer, 2000 posts)
Registered: 09/28/06
Posts: 5773
Loc: Gulfport, Florida
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Weird!!
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David
Age 58 at Dx, HPV 16+ SCC, T1N2bM0, Stage IV BOT and 2 nodes, non smoker, casual drinker and exercise nut, Cisplatin x 3 with concurrent IMRT x 35, (70 Gy), no surgery, no Peg, Tx at Moffitt over 8/28/06. June 2007, back to riding my bike 100 miles a week as if nothing happened.
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#107310 - 11/18/09 04:45 PM
Re: Does anyone else find this strange?
[Re: davidcpa]
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Patient Advocate (1000+ posts)
Registered: 03/03/08
Posts: 1555
Loc: Alexandria VA
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Obviously it was the BEER THERAPY referred to in the article that cured him. I keep posting here that the one and only advantage of having a PEG with oral cancer is that you can SAFELY with no fear of damaging your mouth's cells, DRINK ALCOHOL This formal OCF post just proves it.  Charm
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62 yr Old Frack 07:Stage IV BOT T3N2 HPV 16+ 40 IMRT:72 GY 8 ERBITUX No PEG 08:CANCER BACK Salvage Surgery&G-tube 5 CyberKnife:25GY 3 Carboplatin Thyroid pills Can't swallow to eat or drink
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#107311 - 11/18/09 04:50 PM
Re: Does anyone else find this strange?
[Re: Charm2017]
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Patient Advocate (1000+ posts)
Registered: 03/03/08
Posts: 1555
Loc: Alexandria VA
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As a postscript to my prior post. Let me clear up a common misperception that Ben Franklin said that Beer is the proof that God love us. Here is the actual writing of Ben Franklin For the record, here, in a letter addressed to André Morellet in 1779, is what Benjamin Franklin actually did say:
Behold the rain which descends from heaven upon our vineyards, there it enters the roots of the vines, to be changed into wine, a constant proof that God loves us, and loves to see us happy. Which works for me, since beer is a bit too fizzy for my PEG while WINE works wonderfully. charm
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62 yr Old Frack 07:Stage IV BOT T3N2 HPV 16+ 40 IMRT:72 GY 8 ERBITUX No PEG 08:CANCER BACK Salvage Surgery&G-tube 5 CyberKnife:25GY 3 Carboplatin Thyroid pills Can't swallow to eat or drink
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#107406 - 11/19/09 04:33 PM
Re: Does anyone else find this strange?
[Re: Charm2017]
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Contributing Member (25+ posts)
Registered: 08/03/09
Posts: 32
Loc: TN
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As a postscript to my prior post. Let me clear up a common misperception that Ben Franklin said that Beer is the proof that God love us. Here is the actual writing of Ben Franklin For the record, here, in a letter addressed to André Morellet in 1779, is what Benjamin Franklin actually did say:
Behold the rain which descends from heaven upon our vineyards, there it enters the roots of the vines, to be changed into wine, a constant proof that God loves us, and loves to see us happy. Which works for me, since beer is a bit too fizzy for my PEG while WINE works wonderfully. charm Charm, I haven't spent a lot of time on this board until recently but I can tell you're my kind of people.
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Dx 8.14.08. 42 at diagnosis. Stage IV Tonsil. Tonsillectomy 8.25.08. Induction chemo (9.29.08) (taxol and carboplatin) 5 weekly treatments. 35 rad and 6 concurrent chemos. Finished 12.22.08. No peg, no port. Neck dissection Feb. 09
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#107411 - 11/19/09 04:58 PM
Re: Does anyone else find this strange?
[Re: brickster]
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"Above & Beyond" Member (500+ posts)
Registered: 12/05/08
Posts: 897
Loc: NJ
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That is weird....
_________________________
Suzanne
***********
T1 SCC on right side of tongue
Age 30...27 when diagnosed
4 partial glossectomies
No chemo or radiation
MRI Clear-1/25/10
Biopsy on 2/2/10-Clear
It's not what we CAN'T do..it's what we CAN do:)
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#107551 - 11/21/09 12:28 PM
Re: Does anyone else find this strange?
[Re: suzanne98]
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Senior Member (100+ posts)
Registered: 01/07/09
Posts: 181
Loc: London suburbs- United Kingdom
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Maybe he was misdiagnosed in the first place, or they mixed up the scans?
If not it's miraculous, it must be the English beer or real ale. Good because i drinl ale and stout, and our consultant said it's the least harmful alcohol.
_________________________
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
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#107681 - 11/24/09 05:13 AM
Re: Does anyone else find this strange?
[Re: Cecilia]
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"Above & Beyond" Member (500+ posts)
Registered: 01/02/09
Posts: 605
Loc: Idaho
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You know I don't find this wierd or miraculous. Cancer is a disease and our immune system battles cancer cells everyday. The issue is that cancer is our own cells, not a foreign body so if our immune system doesn't recognize it as a threat then it does nothing to stop it. If it does recognize it as a threat then it will fight and possibly irradicate the disease.
Is it likely once a life threatening tumor has developed no...has it happened before? I think so. This guy is a lucky b*st*rd and if I were him I'd be thanking my lucky stars.
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Young Frack, SCC T4N2M0 right molar diagnosed 1/24/08. 33 at diagnosis, nonsmoker, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche
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