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I am slightly over 3 mos post radiation and chemo and doing very well considering. I have gained back 15 lbs and have had feeding tube removed. Work out 3 days a week and have increased stamina and strength. All in all very lucky.
However I am having a unique reaction to spicey food I have never had before and that is excessive sweating when eating Italian, Mexican or Chinese food. I could understand the burning in the mouth but this is after I have eaten, any thoughts? My tongue is still sensitive and on occasion throat seems a little sore, is that normal? Thanks in advance for the reponses.


Age 63, occasional drinker, smoked for 40 years
Base of tongue, stage 4,T-2,N2B
Cisplatin 1xweek
30 RT ended 6/25
PEG removed 8/23
PET Scan shows scaring but believed no tumors 9/25
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My thought is Don't eat the spicy stuff for a while.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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I would try to hold off on spicy and hard foods, but I totally understand the craving that I had and nervousness to being able to eat again.. to be able to be normal its just all very stressfull. I didn't hold off I would just eat everything or at least taste everything, everything tastes different or like nothing...I hurt myself with hard or sharp foods and ge t blisters from spicy foods...take it slow...


37/female dx:1/15/08 SSC patial glossectomy of tongue and 7 lyphm nodes removed...6 weeks of radiation...
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My treatment ended in Aug. '08, and I still can't tolerate spicy food. I wouldn't even know if sweating afterward is normal or not!


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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I started sweating while eating spicy food about the time I turned 50. It was my only indicator if something would be hot to other people, but that was way before I had cancer. I have noticed several foods make me sweat now, but have not seen any pattern to it.

My worst reaction to peppers has been the side of my tongue, that the radiation burned off. That is slowly getting better, 5 months out.

And I say if you can tollerate it, eat the spicy stuff. We deserve some pleasure.


Flip
_________________________________
Age: 54 SCC Tonsil + 3 nodes
Radiation and Carboplatin
Treatment 4/1 - 6/7/2009
No surgery, no PEG
Never smoked
Drink socially (brew my own beer and love wine. A bottle of scotch lasts me a couple of years)
CT 11/4/09 No sign of envolvement in Tonsil or nodes
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I have been out of radiation treatment since 8/3/09 and do avoid spicy foods as they cause disconfort to my still sensitive mouth. Sweating from eating spicy food is not new to me, but much more pronounced since tx. My eating is challenged by reduced saliva, and the resulting advoidance of all bread is keeping my weight down, 25 lbs since beginning radiation tx and holding steady. Alcohol intake is also reduced. All in all, its a good thing.
Bob


Bob, age 64, reformed smoker since 3/85, moderate alcohol,
Right tonsil, 5/20/09 tonsillectomy, T2N0M0, IMRT started 6/17/09, ended 8/3/09, 33TX, no chemo, 11/6/09 & 7/21/11 PET/CT Scan clear
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12 months post radiation and I still can't eat anything spicy - even tomato sauce hurts (I think you guys call it ketchup) and forget chilli and any alcohol - no way it burns! I'm about to go through it all again so if I'm lucky I'll be back to yoghurt, eggs, milk and bland, bland, bland! (I do thank God for cheesecake and icecream, though).

Sue


55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva
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Take it slow, all in good time you'll be able to eat spicy foods again..I still sweat when eating it though...The back of my head gets all wet!..LOL

But nothing like those night sweats I had when I had the cancer...OH boy..memories.


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
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It was over 2 years before I could even tolerate a jalapeno again so don't worry. Time will eventually be on your side.


Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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Bill, you can eat jalapenos..... you are the man! I still have to be careful what sort of sub I get at Quiznos. I still have this silly trophy somewhere from a jalopeno eating contest eons ago (4 in 4.9 s). Of course they did burn like hell later on.

M


Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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