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Joined: Sep 2009
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Joined: Sep 2009
Posts: 17
Likes: 3
Philipp,
Enjoy being back in the world of the eating it takes a while for foods to taste the same some may never be quite the same
but after 2 years of trying to get me to eat my MD is now saying enough already It is so nice to taste food again I have gotten carried away and have gain back more weight than I lost
best wishes and happy eating.

Joined: Mar 2009
Posts: 147
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Joined: Mar 2009
Posts: 147
I agree with Margaret. Eating is just like exercise - just do it. I ate smooth soft foods - eggs, mashed potatoes and soup. I was not able to swallow the "thick" liquids like Instant Breakfast, Ensure or milkshakes. Too much like the mucous I had suffered with during treatment. Still now, I only drink water. I actually lost more weight after treatment when I began eating than I did during treatment when I was using the PEG exclusively. My suggestion is just be stubborn! Make yourself eat several times a day, small portions and soft foot. If you wait until you are hungry you may wait a long time. Now almost 6 months post treatment, I still have no appetite. I eat because it is time to eat. No mental thought of "oh I am hungry". Eating is just something I have to do.


DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
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