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#106352 11-03-2009 10:57 PM
Joined: Jul 2009
Posts: 38
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Jul 2009
Posts: 38
well, this is more like a "between treatment" issue.

finished chemo and TX late September. Have been waiting ever since for "healing time" so that I can have a follow up PET scan and a neck dissection.

Got the PET scan Friday, no results yet. ND is scheduled next week regardless of the PET results. Still using the feeding tube in the evenings but having small meals of solid foods during the day.

At this point, I want to get the surgery over with and move on. I was so used to action, action, action my first couple months of treatments, its hard to just wait.


Mark
BOT Squamous cell, stage IIIa
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Good luck Mark


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #106385 11-04-2009 11:57 AM
Joined: Jan 2009
Posts: 71
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Posts: 71
Mark, nice to see you back on the board. My first foods were mashed potatoes and gravy with some ground beef or turkey or scrambled eggs.

Getting a PET in a little over a month is pretty fast. i had to wait a good 3 or 4 months. People have talked of false positives if they do them too soon.



57 @ Dx, Stg IV BOT (1.5cm), lymph nodes (lrgst 2.5cm), non-smoker, casual drinker and exercise nut, Cisplatin x 2, Erbetux w/IMRT x 35/70Gy, PEG, Treated in San Antonio @ CTRC 12/16/08-1/27/09.
3/5/09-CT
6/12/09-PET, PEG out
12/1/09-CT
12/6/10-PET
12-8/11-CT
1-4/13-CT
(all clean)
Joined: Nov 2006
Posts: 93
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Nov 2006
Posts: 93
Felt the same way after husband finished his rads.
We were going every weekday and seeing all kinds of Drs and nurses....... it was hard to not do anything.

Healing time is important.
Margaret


caregiver to husband
right tonsil stage 3
35 IMRT TX completed 1/5/2007
PET Scan clear 3/07
biopsy 9/07 clear
1st yr PET scan 12/18/07 clear
Joined: Jun 2007
Posts: 595
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jun 2007
Posts: 595
Good luck and best wishes!!! Semper-Fi Bob


Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!

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