| Joined: Oct 2009 Posts: 51 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Oct 2009 Posts: 51 | As we go through this stuff, we tend to notice others going through the same. I've noticed at least 4 others, currently, very recently having a recurrence. Anybody else? Any suggestions from those that have been there?.........
57 YO, Dx 10/08 with oral cancer, Surgery 11/08 followed by six weeks of RT treatment with the MASK. Follow up on 10/15/09 found a soft spot, which turned out to be SCC. Don't know if I can receive more radiation or not since I've already received full dose.
| | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Reoccurence!!The elephant in the room for every oral cancer patient.Something every one lives with day to day.Reocurrence rates in this particular cancer seem to be much higher than in others so in a forum solely for OC you are going to see a lot of reocurrence stories.You haven't received all the treatments available to you,so i am sure they will come up with a plan,and you can have surgery again combined with chemotherapy and maybe even something like cyber knife rads.Nearly every day sees new things being tried and proven,so this is just another leg of your journeey to being cancer free.It sucks barry but you can do it,just try to stay positive and keep your fighting spitit up.
love Liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Barry
I am living proof that you can take much more than the "maximum" radiation. Two years ago, I was told that 72GY was the max although one doctor said 77GY. With 97GY cumulative radiation, I do have a lot of radiation damage (swallowing, trismus, mucous, petrified neck, etc) but if you do join our club house, there is still hope for treatment. Charm
Last edited by Charm2017; 10-28-2009 07:04 AM. Reason: typo
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Oct 2009 Posts: 51 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Oct 2009 Posts: 51 | This is exactly the positive types of inputs I was searching for...thanks for all the words of encouragement... | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | I think mine was a new occurence rather than a reoccurence but I'm still around here alive and kicking without extra radiaiton or chemo.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | |
Forums23 Topics18,166 Posts196,921 Members13,103 | Most Online458 Jan 16th, 2020 | | | |