| | Joined: Oct 2009 Posts: 51 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Oct 2009 Posts: 51 | KILL THIS CANCER....I just had my ENT appointment for my surgery Wednesday 11/4/09.
The Dr explained his proposed procedure quite clearly; He has two tumors to concentrate on, one toward the back (top)of mouth--should be pretty routine; the one in my right jaw muscle will take a little more through approach. That one is in/around the nerves in the part of the jaw muscle for chewing (I don't recall, except the nerve group started with the letter "p"). KILL THIS CANCER.....Anyway he explained the procedure, in as much detail as I could grasp, to include a new flap made from my thigh...Monday is for checking my heart, etc. then Wednesday is my surgery.......KILL THIS CANCER...
I plan on a proactive approach and attitude all the way this time around, with only one purpose and goal in mind....KILL THIS CANCER...KILL THIS CANCER....
57 YO, Dx 10/08 with oral cancer, Surgery 11/08 followed by six weeks of RT treatment with the MASK.
Follow up on 10/15/09 found a soft spot, which turned out to be SCC. Don't know if I can receive more radiation or not since I've already received full dose.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Great mantra, Barry.
Could be pterygoid (sp)from what little anatomy I still remember.
I wish you good luck and a speedy recovery.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Oct 2009 Posts: 51 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Oct 2009 Posts: 51 | Jerry,
Although I can't even pronounce it, I think you got the word correct. KILL THIS CANCER...
I also found out, I will be able to take RT along with chemo along my jaw line, it seems that spot wasn't previously radiated.....umhuh? wonder why cancer showed up there??? duhh!
KILL THIS CANCER...KILL THIS CANCER...
57 YO, Dx 10/08 with oral cancer, Surgery 11/08 followed by six weeks of RT treatment with the MASK.
Follow up on 10/15/09 found a soft spot, which turned out to be SCC. Don't know if I can receive more radiation or not since I've already received full dose.
| | | | | Joined: May 2007 Posts: 132 "OCF Down Under" Senior Member (100+ posts) | | "OCF Down Under" Senior Member (100+ posts)
Joined: May 2007 Posts: 132 | Good luck with Wednesday's surgery! I had mine last Wednesday and am now back at home, after only 2 nights in hospital, although I didn't have any grafts or flaps to complicate things. I'll be thinking of you on Wednesday!
All the best
Sue
Last edited by Sue G; 10-30-2009 08:40 PM. Reason: typo
55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva
| | | | | Joined: Oct 2009 Posts: 51 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Oct 2009 Posts: 51 | Sue,
I have been thinking of you lately as well. I know you've been through so much already.
Angelia just got out as well. If she's up to it, try to send a PM to walknlite...we're all in the same boat right now...KILL THIS CANCER...
I'm trying to stay up on my blog...don't know how far that'll go, but....
Anyway, so glad to hear from you...I'll be about two weeks in the hospital so don't expect me back on line for awhile after Wednesday...KILL THIS CANCER.....
57 YO, Dx 10/08 with oral cancer, Surgery 11/08 followed by six weeks of RT treatment with the MASK.
Follow up on 10/15/09 found a soft spot, which turned out to be SCC. Don't know if I can receive more radiation or not since I've already received full dose.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hey Barry
great atitude!!!
All the best for wednesday.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Oct 2009 Posts: 51 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Oct 2009 Posts: 51 | KILL THIS CANCER...I can only do so much, but I'm going to do as much as I can....If that means only my attitude and approach, then so beit...the rest is in the skill and hands of my team and my God...
....one I can prey for, the other already knows the outcome.......KILL THIS CANCER....
57 YO, Dx 10/08 with oral cancer, Surgery 11/08 followed by six weeks of RT treatment with the MASK.
Follow up on 10/15/09 found a soft spot, which turned out to be SCC. Don't know if I can receive more radiation or not since I've already received full dose.
| | | | | Joined: Nov 2008 Posts: 14 Member | | Member
Joined: Nov 2008 Posts: 14 | I am with you Barry 100%. I just had my surgery on Wednesday the 4th also. Because they opened the chest wall, I look a little like Frankenstein, but I like your mantra KILL THIS CANCER. I see my RO and MO next Tuesday the 17th to start the Chemo and radiation. Like my ENT doctor said, without the surgery, I had zero percent, but with it he gained me 5%. I will take my 5%s anyway I can. My DW is so funny, she says, someone has to be in the 5%, why not me.
I seem to be healing well right now, and will start the next round next week. I hope and pray that you came through yours well also.
Male Age 65 non smoker, non drinker T2N1M0 2 Jun 2008 Partial Glossectomy & neck dissection; lymph node tumor right neck 27 Jan 2009 Modified neck dissection, 26 Feb-16 Apr 2009 Erbitux, 9 March - 20 April RT; 11 Sep 2009 lymph node tumor left neck; 4 Nov removal of manubrium and large tumor
| | | | | Joined: Aug 2009 Posts: 90 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2009 Posts: 90 | Good luck on Weds, Barry. Go in there fighting.
Keep in touch when you can
Nancy
caregiver to spouse, 55 yrs, dx 9/09 SCC BOT, T2N0,nonsmoker, nondrinker, HPV 16+ ,Lt hemiglossectomy, lt modified radical neck dissection, lt tonsillectomy,PEG 11/08 removed 2/09, 30IMRT, CT neg 4/09, neg CT 10/09
| | | | | Joined: Aug 2009 Posts: 90 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2009 Posts: 90 | Sue, just checking in with how you're doing. what exactly did they do this time?
Nancy
caregiver to spouse, 55 yrs, dx 9/09 SCC BOT, T2N0,nonsmoker, nondrinker, HPV 16+ ,Lt hemiglossectomy, lt modified radical neck dissection, lt tonsillectomy,PEG 11/08 removed 2/09, 30IMRT, CT neg 4/09, neg CT 10/09
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