OUCH Sorry to hear about all that pain. I'm NOT a doctor but with all that Tylenol in your Percocet & the Vicodin, you could ask for oxycodone straight without any more Tylenol and add that to the mix. I found the 20mg sustained release ones balanced out the other pain pills well.
I assume you are on PEG?

I don't think I am on PEG. I am actually doing very well and had almost stopped taking pain meds. I find that normal pain from treatment tends to get worse over time if I stop taking pain meds so I was taking moorphine one a day or less. After Monday, the biopsy, it is a different story.

Today I picked up Tamerol(sp) and an nsaid. Tamerol is making nauseaous and I can feel the pain sneaking up on me. I got some control over it last night after taking two more vicaden.

I am waiting for Monday to call the doctor. I am going to ask him if I can talk to him for a while instead of residents. I don't think residents have the experience to understand this kind of pain.

I know several people with cancer histories and the one thing they do not complain about is accessibility to pain meds. I have been complaining about pain trying to get doctores to look at the reason but now am thinking that I should not have to endure this if medications are available. 4 months is enough of this.

Thank you. I mostly want to vent and appreciate getting to do so heer.

First of I am glad that you know a little more about Christ. I will tell you if it wasn;t for Him and all the prayers by my Christian friends I would not be making it today. Secondly, I am glad your biopsy came back negative and I am so sorry about your pain. I wish I knew how to help you. I know that since my surgery I hav experienced horrible pain, and have also found out that I am allergic, hydrocodone, oxycodone, anything in the codone family.

I have been seeking to fill a spiritual void for years. I have purposely looked for the unusual instead of what was in front of me. I am stufying the bible now. I like it. I put a study bible on my Kindle.

As for doctors and pain: I went back to the doctor to discuss pain I thought. They did everything to avoid that subject. They put me off of the medication discussion by ordering another scan. 2nd in 7 days.

The resident there refused to write a prescription and told me to take the morphine I have. Even though my doctor just told us both that morphine was not the best solution for oral pain.

My doctor told me to keep my mouth shut and not worry about asking too many questions.
I settled for strong nsaids and tramadol just to get something new to try for pain.

My counselor is not suggesting I see them again. She is arranging for my radiation oncologist to help me with life after treatments.

I am seeking a second opinion because the pain is not going away and my jaw is swelling, although slightly.