| | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi all,
I have been sending letters to Oprah, Rachael Ray and all the morning talk shows for about a year now . . . . guess what, nothing!! But I don't give up too easily! You go Donna, someone is bound to get through to these people.
Maybe send a video letter to them and they can see first hand what oral cancer does to people and the courgeous battle being fought every day by all of you. Who can't be inspired by this?
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | hmmm, way back in the day I had a few contacts in Harpo, Oprah's production company...not sure if they are still active or if I can even find the numbers but I'll say they were really nice folks! As I remember they were just inundated with stories from all over so persistency is the key with these folks...and that was more then a few years ago, I'm sure it hasn't changed at all, maybe even worsened.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Please let us know if you get through - that would be a fantastic way of spreading the news to so many viewers!!!
Nancy T
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Donna,
I think Oprah would be a perfect host for this! Maybe share your thoughts with Blythe Danner as she might be able to push your idea ahead a bit since she is in that industry?
Great thinking!
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Jun 2008 Posts: 51 "OCF Down Under" Supporting Member (50+ posts) | | "OCF Down Under" Supporting Member (50+ posts)
Joined: Jun 2008 Posts: 51 | Good luck Donna....would go to the show also if I could get off my (presently) extremely depressed backside.....LOL
SCC Base of tongue stage 4. 10 hour operation Radical neck dissection and hemiglossectomy 23/10/06 35 Rad treatments and 3 high dose Cistplatin Dec 06 - Feb 07. Ex casual smoker 6 to 8 a day - casual drinker. Very fit and diet conscious.
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