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#104356 09-28-2009 06:51 PM
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Dr. Jerry, if I called my dentist to have him see me before my next appt on oct. 9th, do you think he could tell if there was anything wrong in my mouth if my ENT did not see it two weeks ago. I am getting desparate here and can not get in until my Oct. 9th appt. I now have pain in my gum area, but there is no open sore or redness. I can move my tongue across the back right side of my gum, and it hurts. I can not feel any lump and i do not see any lump. I do not want to hear that no one is worried about this. I am tired of hearing those words. Anyway, could he give me some insight as to what it might be as well? Thanks.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Apr 2005
Posts: 2,219
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It certainly is worth trying to get an appointment. Hopefully, he will be sympathetic to your concerns and fit you into his schedule. I have had patients with symptoms one day and we could find nothing and then the next day something showed up. Also, dentists and ENT's can look at things from different perspectives.

Go for it.

Good luck and let me know what happens. You can send me an email if want, as I check there more often than the forum.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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Posts: 1,412
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Thanks, I will call him first thing in the morning.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Sep 2006
Posts: 1,357
Likes: 5
"OCF Canuck"
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Waiting to hear how you make out Angelia. Is there anything worse than people telling you that you don't feel what you CLEARLY DO??? Good for you for pursuing the pain. I think the pain is your body telling you that something is wrong - maybe its just a renegade nerve or two but somewhere from someone you need an answer.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Joined: Sep 2009
Posts: 229
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Posts: 229
The one thing I've learned from being a member here, you can't ever ignore anything. I sure do hope that someone can help you out. It must be really frustrating!


Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
Joined: May 2009
Posts: 1,412
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Thanks guys. I will have to call the dentist tomorrow as i had a workshop all day today and did not get home until after they ahd already closed. Don't you hate that?


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Joined: May 2009
Posts: 1,412
I called and left a message for my dentist to call me back. Do not expect to get a call until tomorrow. I am freaking out here. I now have pain on the roof of my mouth, but I can not see anything. I can not get into my ENT until Oct. 9th, and I wish it would hurry up and get here.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Joined: May 2009
Posts: 1,412
Just wanted to update you all, I went to the dentist today and he said that a biopsy would be warranted, but he is not too concerned. He did say there was a definite lump on the back of my tongue, and said that it gets a little dicey with places like that. I do not know if that was good or bad, I will be talking to my ENT next Friday about another biopsy or MRI or something to figure out what all this pain is from. UGH!


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Joined: Jun 2007
Posts: 5,260
To me dicey makes it awfully close to a big maybe . I hope it isn't and am wondering why he would tell you that and raise doubts in your mind. I hope you are alright Angelia. I know you hate to worry like this.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Posts: 1,412
Thanks Jim, I am okay. I just try to remember that no one says it is yet, and I am trying to focus on the facts of a clear PEt scan 3 months ago. I have now had to start taking pain meds and I am losing weight like you would not believe. I event tried to eat as much as could one day and see if I still lost weight and guess what I did. Normally, I am one who gains weight just looking at a brownie. Don;t get me wrong I love that my pants are too big now and i am going to get a completely new wardrobe, but I didn't anticipate 10 pounds in one week. My teacher assistant and I have be talking about all this and she said I am handling it rather well. She also shared with me that her grandmother lost her life to oral cancer. I am like, that doesn't help me out here. Anyway she did say one of the first signs her grandmother had was weight loss. I go back to my psychologist next Thursday and maybe I can get some help with the anxiety. I did take a Xanax last night just so I could sleep. Oh and my blood pressure is extremely high with me stressed about this all the time. I guess i need to send some more prayers up to heaven.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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