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| Joined: Jul 2009 Posts: 31 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jul 2009 Posts: 31 | Getting into my last week of Radiation and actually feeling good physically. Emotionally the depression is still lingering. Anyway since they can't PET for 9 weeks how would I best spend my time planning and reseaching the next phase. My hospital is not a major CCC so I was planning to start making appointments with a couple in the area so I'm prepared with documentation and appts no matter what the next course of action. I think a second opnion would be prudent either way? Also is there any addtional treatment between now and the PET that I can take advantage of in the next 9 weeks? How have the rest found the cooperation of other hospitals, your current Doctors, and most importantly your insurance companies policy relative to second opinion.
Rick
Age 50 at DX July 13 2009. T1N2BMO, stage III BOT-2 nodes right side, HPV negative, drinker-smoker, cisplatin x 3 IMRT x 39 70 GY, pegged and ported. Started treatment on 8-3 2009. Selective neck disection 11/30/2009, 9 nodes removed-neg pathology
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Rick,
What are your doctors suggesting for your post Tx time. Most all of us just start our recovery and get checked out frequently by our docs?
Continue to consume large quantities of food and water and continue daily swallowing and wean yourself off the PEG as soon as you can while keeping up w/ the food and water.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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