| | Joined: Sep 2009 Posts: 1 Member |  Member
Joined: Sep 2009 Posts: 1 | Hi,
I am new to all of this as my father has been diagnosed with Tonsil Cancer and just started his radiation last week. He lives in Northern California and I in Southern California. Is anyone in this same situation where you cannot be a caregiver on a daily basis? I feel so helpless but this forum has given me so much already...I have a list of items to purchase and a ton of great advise to give my poppa.
He is living with my grandparents so he is not alone but they are older and won't be able to give him the attention he needs. I plan on going home at least once or twice a month but feel it's just not enough...any suggestions on how I can still be a good caregiver...from afar?
Thank you so much. | | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Care giving from a distance will be a difficult job,but if you keep in touch by phone and e-mail your moral support will be much appreciated i am sure.Its when relatives distance themselves from loved ones that things get really rough.
good luck
Last edited by Cookey; 09-13-2009 06:40 AM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | MS
Try and get him to post here. Depending on him and his Tx, he may very well need some concentrated caregiving for a good period of time during and post Tx. Each of us can respond differently but the majority of us suffer from the 4th week into Tx till about the 3rd week after Tx with the weeks AFTER Tx being the worse.
If he just started Rad encourage him to eat like crazy because soon his taste may go and along with that his desire to eat. He also must consume around 3000 cals each and every day and drink 48 ozs of water each and every day starting now and lasting at least until he is one year post Tx.
If he won't post here see if you can get him to call me at 727-322-5669 during the day. I'll be more than happy to sgare with him or you.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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