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Well...we went to Peter Mac for a routine appt today - monitering appt. All I heard was 'No plan B', 'fingers xed' 'inoperable' and all our money is on the nose with the treatment he has had'.

Can someone tell me what we heard, & why we weren't told these quotes before treatment began? Saw 2 doctors, he other said the lymph node glands should have been gone after 4 weeks, which is today.

Rod said to me coming home, 'why did you cry at the doctors?' I said 'I didn't cry, I was just waiting on his answer as to when the PET scan would be'...bullshit, bullshit.....GOD????


Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
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Can someome please tell me what is 'inoperable?
Can someone please tell me what 'fingers crossed means?'
Can someone please tell me what 'No plan B' means
Can someone please tell me what 'all our money for a win on the nose; meand when they aren't relating to the first soft nose past the post in horse racing'??????????????????????????????????????

Last edited by Jeanna F; 08-25-2009 07:17 AM.

Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
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only edited a spelling error


Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
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Jeanna you need to calm down!!!!! Deep breath and count to one hundred.

I think you are a bright intelligent woman and you know exactly what they mean,it just isn't what you want to hear.Thats not going to change anything Jeanna and you have to get yourself together and digest this information and decide what you are going to do next.You an accept what they have said and get on with things and hope they are right,or you can get a second opinion and check that what they have told you is correct.Either way they are betting on the nose they got it right so thats good,but if you think you need to explore further options like surgery then thats ok too.Screaming and yelling is ok too but not for long .


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
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Liz, It took me more than 12mths, less than 18mths to read email...you obviously know what I mean. Guess my under lying question is why they didn't say all these things at the beginning?, not just '50/50.....I wanted to cry all the way home...couldn't, didn't....nearly..all the way. Surgery is not an option...according to what they said today.


Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
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Think I've been smacked in the mouth by the ball...


Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
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Thats why i tell everyone to keep their eye on it !!!

Right so surgery isn't an option.who said so ?one doctor,two ,three if david had his way everyone here would get at least four or five opinions before accepting somthing they are told,so why not go for at least one more?its your right and you just never know,another docotr may have more expertise or at least know someone who has.Maybe the doctors he is under really are happy that they have acheived a good result with the treatment they have done so far, but until he has follow up scans thats going to be hard to determine.

Whatever they said at the beginning doesn't really matter a damn Jeanna they told rob he had a 90% chance of a ten year survival its just crap when you turn out to be the other ten percent,but did they tell you that surgery wasn't an option?did you know that all along or did they say he would have surgery at some point?Its all a lottery hun and who knows where the dice will fall.

Any way lets not be gloomy lets focus on the news that they think they have done ok and tomorrow when you have slept on it think about another opinion.Two heads are better than one.


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
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Wear contacts.....glasses are acratched...hey Cookey, what are you're thoughts on a second opinion post Tx?


Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
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Oh goodness, I've just read youre entire post...silly Jeanna... yes, we'll go there....& yep, after the scans in Nov...so far they only have said surgery is an option in the lymph node....but thanks, will wait until post scans, & go for a 2nd opinion if & when needed.....thanks for listening...love ya...xx

Not giving up.


Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
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Jenna: I would get the second opinion NOW when another doctor, or hopefully another cancer team has the advantage of early assessment and hopefully treatment. Why are you waiting???

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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