| | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | OP  "OCF Down Under" Gold Member (200+ posts)
Joined: Aug 2009 Posts: 207 | Karen, have sent you a PM - I think [technophobic!! LOL] let me know if there is nothing...Live in Mordialloc anyway...Bayside.... no surgery, hopefully future follow ups at Moorabbin after 1st scans in Oct/Nov.
David, fear is what does the damage, it is the worst thing in life...and being technophobic - what does JM2C's mean? - oh, and IMHO?...LOL...
Liz, I'm so sorry if you thought I though you were being judgmental...far from it, I'm very very good at hearing via email, have been trained to. If I need to read something 5 times before responding, I will. Emails can have tones...I'm so very sorry you experienced what you did with Rob. I feel we are all here for a reason. Rod & I met 4 years ago, my mum said today that even though it was a little while ago, I was meant to be here today. [and believe me, it almost wasn't]. - Can we share Queen of Bitches or does one of us have to move over??? LOL...see my next topic...
One day, one of us will win the lottery, provide all members of this site with web cams [& in my instance instructions] and we can all see each other blowing kisses xxxxxxxxxxxxxxxx
yes, my baby is asleep...we went to go away for the night to our 'Holiday Van' [in US this is a Trailer!!...] looking at putting it on the market, got 7 mins from home, had to come back. Anxiety. Dog - Patchie - looked at me when I opened the car to get him out again & said what the?????
I'm about to create a new topic on 'Grown up children of our partners/patients'...should be interesting...my blood was boiling earlier....ok now...
Will let all you guys know how next week goes...thanks for your love & support, I honestly don't know if I would be feeling the way I am at this point if not for you all...xxxx
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
| | | | | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | | OP "OCF Down Under" Gold Member (200+ posts)
Joined: Aug 2009 Posts: 207 | And lets not forget Mightymouse...Mighty, I may be physically strong, but emotonally & mentally I can be weakened so thank you for your thoughts & support too.
Cookey, there might be 100 Liz Reads, I cant't even find my own brother LOL!! I have 1 friend, in the UK believe it or not. She had just turned 4, I became her nanny, she is now 23. Lucy Carnaghan...easy!! Find her & you'll find me, then you can tell me what to do next LOL....
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Are you implying my name is common lol. cheek
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | | OP "OCF Down Under" Gold Member (200+ posts)
Joined: Aug 2009 Posts: 207 | LOL, not as common as Phil Foster!! What time is it there?
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | when you wrote this is was 8.30 am x.Have added you as a friend and passed it on to gabe,wendy,donna and a few others
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jeana,
JM2C's = Just My 2 Cents
IMO = In My Opinion
And yes, swallowing anything post Tx is something to be proud of and swallowing something bigger today than yesterday is a personal triumphant worthy of a gold star.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | | OP "OCF Down Under" Gold Member (200+ posts)
Joined: Aug 2009 Posts: 207 | Thanks guys, I need two books - 'Facebook for Dummies', & Technotalk for Dummies'...LOL!! I'll learn.....recently became an unofficial nurse, if I can do that I can do anything!! When the sun rises & I have more light [in lounge, Rod asleep on couch], I'll log onto Facebook. Have been awake since 3am, & up since 4.30am, b---dy barking dog over the back.....
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Ok now you can help me with
b---dy barking dog over the back....
What is that?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | | OP "OCF Down Under" Gold Member (200+ posts)
Joined: Aug 2009 Posts: 207 | LOL...bloody...mild Aussie expletive, commonly used as 'bloody hell', 'no bloody good' or 'someones bloody dog barking its head off at 3am in the morning keeping us all awake once it's woken us', etc. Our failed Aussie Tourism quote 'where the bloody hell are you?'....
'Buggar' is another mild expletive, borderline though and has to be watched how used - another meaning for it is 'darn'!!
No doubt I sound American as you read this, as you sound like an Aussie when I read your posts!!...funny that...
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
| | | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 216 | Jeanna - Liz and ChristineB sent me your name on Facebook today. If you look through the older (by a few months) posts, you will find mine, one of the more memorable ones - at least to me - is entitled "Rant", which it was. I understand the "grown children of patient" thread...if you want to start it, I'm there - LOL! Going back to work for me was hard as I only work part-time anyhow but have two grandchildren at home with us. I'm racing the time when our insurance coverage will end due to my husband not being able to return to work as he does factory work and no longer has the stamina for it. I had thumb surgery 1 1/2 weeks ago and scheduled foot surgery for Tuesday so I have been AWOL from the forum lately tho have been on Facebook as I can play games which equals "not thinking". Anyhow, just wanted to introduce myself and let you know you're in the best place for support and help and it appears that you have been getting that  Cheryl
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
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