| | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Jan 2009 Posts: 253 | Angeleia:
Thanks for posting your feelings. I've been hesitate to voice my worries, but you've made it seem a lot easier.
You, all of us, have been through a lot physically and emotionally, so accept those down days. Having friends who have had the same experiences really helps to lift your spirts.
I'm glad you came here.
It might also be nice to look for a support group locally. Here in VA, we have a support orgization which has all different types of classes. I'm thinking about signing up for some so that I can meet other cancer survivors. You may want to look into that also.
Congratulations on your clear 7/9 Pet Scan. Try not to worry for awhile. Please continue to share when you need to...
Sandyst
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter
| | | | | Joined: Mar 2009 Posts: 48 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2009 Posts: 48 | I know that your post was a couple of days ago and this may be corny for you but I thought I would share, whenever my mom would have a day like that I would sing the song from Charlie and the Chocolate Factory-Cheer up Charlie. It is something that she would say to me and she told me that if I wasnt there and she had a bad day she would think of that and it would make her smile.
It might not be a song it could be just about anything that you could think of just to get you over the hump. I witnessed first hand the depression and anxiety that comes along with this disease. It is relentless, hang in there!!!
26
Mom 48 diagnosed Sep 08 Stage IV SCC
full glossectomy, neck dissection traech and peg Nov 08
35 radiation treatments and 3 chemo
Mar 09 mets to lungs
Started Erbitux 3/09/09
06/26/09 mets to rib
Stopped Erbitux 6/26/09
Start erbitux/taxol 7/06/09
Started Hospice 7/24/09
Passed away 8/09/09
| | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Angelia
I'm glad to see your are doing better.
You may doubt me but, if you go back and read your posts you will see the same progression and success that I have.
It ain't easy!!
It's different for every person but, we are all here for you!!
Vent, laugh, cry spit or whatever...it's all part of recovery.
If just one thing is better tomorrow than today that is a good thing.
If I can offer any help or suggestions just ask.
Cheers,
Mike
Last edited by Dr. Mike; 08-24-2009 06:38 PM.
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hey Mike longtime no see how the hell are you?
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Cookey
As they say in the woods, " Busier than a 3 peckered owl!"
Glad to hear from you now give me back the owl.. Hehe
Cheers,
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Hey Sandy,
Where is Va are you?
I am in Roanoke, Va
Just curious.
Good to hear from you
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 253 | Debbie:
It would be nice if we were closer, but I'm just outside of Washington DC. However, talk to your onocology nurse; she probably knows of some support groups in your area.
Sandyst
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | My youngest son's best friend is finishing up his residency in Columbus Ohio and then him and his wife are moving to Roanoke Va permanently, The Hospital there gave him a great offer.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Dr. Mike, Thanks for that. I know that I continue to freak out every time I have a little sore or even sometimes a sore throat. I don't want to bombard my dentist with every little thing. I have gotten to where I will wait a few days and see how it feels. Most of the time they are gone within three days. some of them take a week. I have another 2 month check in two weeks and I think I get more nervous the closer it gets. I know, I am craxy. Life at my house has been crazy as well. Have not been on here as much since school started back and I am back to work.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Angelina...first of all, you are NOT crazy. Normal? Yes...crazy? No....we all get nervous before are appointments in the beginning. We need time to have several appointments when they tell us everything looks good before that nervous feeling goes away. I'm still nervous, that's for sure!!
Just remember you have gone through a lot and you are a strong woman, give yourself some credit. How are things going at work for you? I hope nobody is saying stupid things to you anymore...I'm going to need to write a letter to them if they keep it up!!
Just keep your held high and remember that you're awesome:)
xoxo
Last edited by suzanne98; 08-30-2009 07:01 AM.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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