| Joined: May 2009 Posts: 113 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: May 2009 Posts: 113 | Just to let you all know today is my last day of treatment! I have lost 19lbs total to date so far and am still eating by mouth...somewhat! I have driven myself everyday to and from treatment which is about 45 mins! I will concentrate these next couple weeks on recovery and hope all goes well from here on out! Thanks for all your support and I will keep you informed!
30 yr old M non-smoker (stuborn ass italian) SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09 Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread) Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo "On the long road to recovery 1 step at a time" | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | Congrats Jim...getting to the end is such an accomplishment..now it's on to healing and getting back to some normalcy. I still remember our last treatment day..it was a milestone!
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | Joined: Oct 2007 Posts: 104 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Oct 2007 Posts: 104 | Congratulations on making it through treatment and doing so well. I hope you have an uneventful recovery and continued good health.
Caregiver to husband Dx. Stage 4 SCC of gingiva with 3 nodes pos. Partial mandiblectomy with bone graft from iliac crest Dec. 2006. IMRT x30, Cisplatin x3. Completed Tx. March 15, 2007. Osteonecrosis & removal of graft & plate Oct. 2007. Recurrence of SCC Dec. 2007. Deceased Jan. 17, 2008.
| | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | Congratulations! What an accomplishment! Rest up and enjoy life!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
| | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2008 Posts: 507 | Congratulations Jim.
It is so good to hear from people who sucessfully get through TX, especially without a PEG.
I know a didn't see any improvment for a couple weeks, so take it easy and get lots of rest.
Don TXN2bM0 Stage IVa SCC-Occult Primary FNA 6/6/08-SCC in node<2cm PET/CT 6/19/08-SCC in 2nd node<1cm HiRes CT 6/21/08 Exploratory,Tonsillectomy(benign),Right SND 6/23/08 PEG 7/3/08-11/6/08 35 TomoTherapy 7/16/08-9/04/08 No Chemo Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jul 2006 Posts: 388 | Jim - Good for you losing only 19 pounds during your treatment with no PEG! Hang tough for the next couple weeks and do keep us informed. Warmly, JaneP : )
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Boy all I got to say is they must take it easy on the east coast people. lol
OK OK... that's really great to have finished and lets hope the next couple of weeks goes just as well. Playing golf tomorrow?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2009 Posts: 113 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: May 2009 Posts: 113 | Thank you everyone....lol, no golf tomorrow David! I have to be ready to make the road trip to NC to watch Philly VS Carolina opening day on sept.13th! I figure I have 26 days to get my body ready for that trip! Hoping to go back to work full time Oct. 1st! They far from took it easy on me thats for sure. My mouth is 1 gigantic sore, I cant talk and when I do you can hardly understand me, I gag and choke all night, can barely eat and drink to the point that it hurts so bad my eyes water but I force it down and move on! Thank God for Percocets...that of course I have to crush up and mix with water to take! Just looking forward to some sort of normalcy soon. Just being able to swallow, eat and drink without it hurting so bad will be a huge improvement! We see how this goes! I know usually by sunday after having 2 days off I am feeling better and just the fact that I know I dont have to have that gag shoved down my throat and have to get dressed, showered and drive 45 mins is a relief in its own right there! Will keep you all posted!
30 yr old M non-smoker (stuborn ass italian) SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09 Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread) Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo "On the long road to recovery 1 step at a time" | | | | Joined: Apr 2009 Posts: 128 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Apr 2009 Posts: 128 | Jim,
I am seven weeks out and I sure know how you feel. CONGRATS on the completion. Rest up and take it easy for a while you deserve it.
WFC
Age 57 at dx on 3/30/2009 by Dentist SCC of R tonsil S2 Poorly Differentiated - 2.5 cm Rad - IMRT 5x a wk for 8 wks starting 5/4/2009 No Chemo Last Rad treatment was 6/26/2009. Two years down as of 3/30/2011! God bless all affected by this monster called cancer!
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Yeah the next couple of weeks can be difficult. We all think that since the daily Tx is over, that we must start to get better but in fact many of us actually got worse as we have told you. Couple that with the daily opportunity to visit with your docs gone and you can feel a little scared especially if things do get worse so just be on the lookout for this possibility.
Even when I walked out of my tunnel in my 3rd week post Tx I was weak as a kitten for months so don't be to stubborn about taking that road trip to NC. Oh wait a minute, maybe Michael will give you a lift??
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Dec 2008 Posts: 1,004 | That is wonderful!!! Yipee!!!
Suzanne *********** T1 SCC on right side of tongue Age 31...27 when diagnosed 4 partial glossectomies No chemo or radiation Biopsy on 2/2/10-Clear Surgery needed again...no later than April 2011 Loving life and just became a mother on 11/25/10 It's not what we CAN'T do..it's what we CAN do:)
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Great news...Hope you are feeling better with every passing day.
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 718 | That's a big milestone, congrats! Margaret ---------- C/G: Husband, 48 (at time of dx) Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3) Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Way to go Jim!!!!
Congrats on completing your treatments. Hope you have a speedy recovery so you can enjoy your upcoming road trip. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | "OCF across the pond" Gold Member (200+ posts) Joined: Jan 2009 Posts: 225 | well done! Congratulattions.
Girlfriend to Martin 49 years old at diagnosis Diagnosed with SCC unknown primary June 2008. Cancer found in single node Stage N2A (3 to 6cm). Tonsilectomy 16th june, Radical modified neck dissection left side 30th june. 30 TX radiotherapy ended 9th October First comparative study scan came back clear
| | | | Joined: Mar 2009 Posts: 32 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Mar 2009 Posts: 32 | Good work, Jim. I am six weeks out of radiation and brachytherapy. Got my first mouth ulcer yesterday. Not problematic, just an annoyance. Every day after treatment gets better and better. I lost 50 lbs. but don't miss it at all. Anyway, hope you have endless good golfing days ahead (assuming you are a good golfer).....
John Retired US Government (DoD) Age: 61 SCC/BOT discovered neck mass 11/08 Removed neck mass 09/01/09 Final Diagnosis after scoping on 02/08/09 Chemotherapy and Radiation: Paclitaxel and Carboplatin, 8 weeks of chemo (1X weekly) and daily radiation both sides of neck). First treatment 03/02/09
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