| | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Paula- SO sorry to hear of this news. You and Jim ar ein my thoughts and prayers.
K
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | I read your post earlier this morning, Paula, then I went away for awhile, hoping that somehow I would find - somewhere - some words to help you through this. I didn't find them. From your messages in the past it seems that you and Jim have a special bond that few people find, and I can only imagine how difficult this process is going to be for you both.
All I can say is that my thoughts and prayers are with you.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Paula,
I feel Like Donna because I know there is nothing I can say to help you. I can offer you support and prayers and that is what I will do for you. I'm sorry you are going through this, it is so hard to watch someone you love be in pain.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Feb 2009 Posts: 88 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2009 Posts: 88 | Paula,
I am so sorry to hear your news and I will be praying for you and your husband and family. I know those words seem trite at a time like this but will keep good thoughts going for you. God bless.
Bonnie
CG to daughter Brandy age 31 initial dx 10/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 |
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Dec 2006 Posts: 147 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Dec 2006 Posts: 147 | Thank you everyone for all of your kind words and prayers. We had a garage sale this weekend - he put up all of his tools and saws, truck, smoker, everything that says "Jim" up for sale and not many takers - basically a flop. This really depressed him as he feels like such a failure - can't work and can't even as he says - give things away...depression is surrounding me everywhere; it's all I can do to come to work and concentrate here without my mind wandering back to "it"...Tom, as far as the PET, our Dr. has made it very clear that the PET in oral cancer is just a guide to give them some inkling of what is going on...the uptakes that happen can be due to all sorts of various things...as far as the chemo, Jim pressed her very hard that he thought he could stand more, but she said no more as his liver results aren't good and that further chemo would render him sicker than he has been and once the liver and kidneys begin failing, there isn't any turning back....so for the quality of life that Jim wants, that he needs to refrain from further chemo. The pill that he is taking is causing a horrific rash (worst than the Erbitux) and he is very red, itchy and swollen. Thanks again everyone for all of your heartfelt prayers and healing well wishes. Paula
Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009
Lost the battle November 23, 2010
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Not much I can say except you are in my thoughts and prayers full time. Jim is no failure, people just want things FREE and not pay for them. This is the generation of GIMMIES.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2008 Posts: 100 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2008 Posts: 100 | I am so sorry Paula, wish there was something I could do to help. I know what you mean about having trouble going to work and trying to concentrate. All I want to do is be by my wife's side and I experience a lot anger at anything, including work, that takes me away from spending time with her. Our thoughts and prayers are with you and Jim.
Tom-CG to wife, Pam 46@dx
Stage IV Tongue Cancer T2N2C
Dx 6/08, Surgery 7/08, 3 nodes positive
9/08 33IMRT/7Carbo/Taxol
4/09 node biopsy positive, mets to lungs/stomach
5/09 Cisplatin or Cis/Alimta study
6/09 Cis/Taxotere
9/09 Taxotere
1/10 Xeloda
3/10 Cetuximab weekly
6/29/10 lost battle
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Tom and Paula,
As a patient I want you both to know how important your part is in this to your loved ones. I'm sure you already know this, but...by husband always treats me the same way and is just there for me. That is best thing that a CG can do..don't treat us differently. We still watched our same shows on tv and he would rub my shoulders and play with my hair. It was always relaxing. I know my treatment is different but just know how much we appreicate our CG's
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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