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Susan2992 #102268 08-24-2009 07:30 PM
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Jim
You kill me you really do...
only you would get the male nurse in the HBO chamber..I can't wait to hear about it.
Good luck my friend!!
Cheers,
Mike


Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
Susan2992 #102269 08-24-2009 07:32 PM
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Sussan, I will be at UPMC right beside Pitt. In the emergency room and straight to the hyper room, But todays news 1st, I am again like Christine and came home with the biggest headache I have had for years, I could only take 3% oxygen and it takes 20 on the dive to get you to 45 ft under water, I have to get tubes put into my ears Thursday and go back to UPMC friday to take the 1st treatment over. I couldn't even get my ears to pop in the chamber. I hope there isn't anything else this body will require LOL I hope Christine isn't too disappointed in my performance today. But everything she told me yesterday was right on the money today.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #102270 08-24-2009 07:58 PM
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Jim,

I had problems with my ears at first (and the first hospital I went to). Switched hospitals, and also used nasal sprays (prescription plus afrin), which helped. Also, the 2nd team of nurses were much better at helping with the dive part. They did mention tubes to me but I didn't want another surgery if I could avoid it.

I'm sure Christine won't be disappointed.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
EzJim #102271 08-24-2009 07:59 PM
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Jim.... I hope you got more than 3% oxygene!

Sorry to hear about your ear troubles..... I had that once midway (slight cold) it was not fun. I take it that they showed you how to equalize pressure properly. (squeeze nose etc... just like you do when diving?). Also, a decongestant might help as Susan said.

M

Last edited by Markus; 08-24-2009 08:08 PM.

Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Markus #102342 08-25-2009 05:34 PM
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EzJim Offline OP
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I have tried it all and we couldn't even get my ears to pop. I have no choice but the tubes and I had an appt scheduled with my Surgeon this Thursday. My head ached all day long and it was affecting my thinking, LOL which isn't that great anyway. Me and Denny Dumb Dumb. I took more percs last nite than I did after surgery along with xanax. I haven't touched any today but will at bedtime.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #102373 08-26-2009 06:46 AM
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Jim,

Have you tried taking antihistamines?

Has anyone looked in the ears to see if they are clogged up and need to be flushed out?

Chewing gum?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
EzJim #102378 08-26-2009 07:24 AM
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Sorry to hear you are still having problems. And since I'm in Pittsburgh today, I was going to try to track you down!!

I tried everything short of the tubes. I did the ear clearing technique the entire time I was diving, otherwise I had problems.

By the way, chewing gum is not allowing in the chamber. Can't take anything in with you (except water in an approved container).


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
EzJim #102379 08-26-2009 07:33 AM
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Geezzzz Jim - time for your to catch a break! Hope your ears clear up soon. It sounds very uncomfortable. Hugs

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #102387 08-26-2009 11:19 AM
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EzJim Offline OP
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My ears weren't congested, They even brought another Dr in tio check them, Just irritated forn the oxygen I guess. Yes I tried to relieve the pressure form the time he 1st turned on the oxygen a little at a time. To no avail. It's just one of the tougher things for me to get thru. I will make it tho.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #102388 08-26-2009 11:20 AM
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LOL Looks like I am dyslexic LOL Too big a hurry with this blasted damn headache.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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