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#101183 08-10-2009 05:04 AM
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Well I am going in for my last full week of treatment! I was supposed to totally end on friday however I have to go in mon and tuesday for my last 2 treatments since there machine went down twice during the course! I felt very very good saturday and of course did way too much. For the past week I have pretty much stayed home laying around in bed just letting the days pass me by. Well Sat. my wife was home I feel really good so of course we go out to brandsmart buy a new computer, new surround sound system (for football season) go grocery shopping and clean the house. I was up till 11pm basically putting stuff together and moving other stuff. Nothing too strenuous but wow did it affect me sunday morning. I woke up yesterday extremely sick! I couldnt put anything in my stomach till around 1pm. I was dry heaving, hacking, coughing up so much mucuous, blood, tissue and stomach acid I thought for sure that I was headed for the hospital for an iv! My throat hurt so bad from all the throwing up that I could barely put down a sip of water, of course I still couldnt take my pain meds cause it hurt so bad! Well I basically bit the bullet and said the hell with it, I am not going to do anymore damage to my throat then what is being done now and it cant hurt anymore than throwing up acid. So I slammed 2 CIB VHC, crushed up my percocet in a shot glass and took it with water. Then back to bed I went. Stayed in bed till around 730, crushed another percocet and took down 1.5 VHC and 3 bottles of water before going to bed lastnight! Was up this morning feeling 100 times better than yesterday morning! I guess that was my wake up call not to be doing much till all this is over! I noticed my neck is getting very very red and starting to get a little dry and pretty sore when I put the Aquafor on it. Its been a light red for most of the treatment but it is def. dark red and sore now. I have been putting on Aquafor and Hydrocortizone 3-4 times a day. I was also thinking about putting on natural aloe directly from the plant. My wifes mother has a huge plant in her back yard that if we ever get sunburnt we go over and take some...wondering if it works on this. Natural aloe seems to work on everything else cant see why it wouldnt. So today I am going to make every effort to put at least 5-6 cans down and just drink as much water as I possibly can all day long! Just need to get thru these next couple weeks and hopefully things will start looking up for once. Thanks for letting me vent, everyone around here heres me say yea my throat hurts, yea my mouth hurts but there really is no words to describe how bad this really feels throughout your entire body unless you have personally gone thru it!


30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
JIM BEERS #101184 08-10-2009 05:09 AM
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typo before davidcpa corrects me....heres??? lol, HEARS'S! I dont know what I was thinking there..typing to fast on this new computer that almost put me in the hospital putting it together...lol


30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
JIM BEERS #101191 08-10-2009 08:04 AM
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Posts: 8,311
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You are doing great. Keep up the good work.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #101215 08-10-2009 04:33 PM
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My Oncologist gave me pure aloe and it helped me. That and Aquaphor.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #101226 08-10-2009 06:44 PM
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Yea my wife brought home the plant today. She cut it open and put it directly on my neck......wow did that burn like a SOB! Yea I think I will stick with the hydrocorisone and Aquafor! That was brutal! lol, I think she got a little pleasure from that too! haha! 6 more left!


30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
JIM BEERS #101227 08-10-2009 07:08 PM
Joined: Jun 2007
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Good job Jim!!!! Only 1 more to go smile

Right now is the worst part of your treatments. It will take a couple weeks before you start to feel better. ang in there. Wow, am I glad I never tried the Aloe plant. I had thought the same thing that it should help. I was given beta-val cream. It worked great, didnt burn and I have no scarring of my neck. It had been open sores but it healed completely with the beta-val cream. There are tons of different kinds out there that you can use.

Best of luck wiht a speedy recovery.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #101240 08-11-2009 03:05 AM
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Jim, I'm proud of you my friend...way to go champ! As a lifelong wrestler/grappler I had a huge neck (19" compared to my 34" waist) and everyone marveled at just the sheer surface area of my burns. My mom put aloe from the plant on my neck and I about cried like a little girl it burnt so bad...so you are not alone there my friend.

anyway,see it through and good luck buddy

Be Well

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #101249 08-11-2009 04:55 AM
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I have aloe, but not in plant form. LOL I sure must have been lucky when the Dr gave it to me instead of my doing as you guys did. LOL This clear aloe jell is great and I have some left if anyone wants it.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here

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