Previous Thread
Next Thread
Print Thread
Page 4 of 4 1 2 3 4
Joined: Oct 2008
Posts: 251
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Oct 2008
Posts: 251
Lori,

I followed your blog and am in awe of the courage and love that you and Ron displayed. Your words were poignantly honest yet optimistic. I feel that you and Ron had a relationship that few are fortunate enough to experience. Thank you for sharing your lives with us.

My heart and my thoughts are with you and your family.


Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
RPCV #97076 06-09-2009 07:38 PM
Joined: Jan 2006
Posts: 756
Likes: 1
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2006
Posts: 756
Likes: 1
Lori,

I�m so sorry for your loss. I will keep you and your family in my prayers.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
Joined: Jul 2009
Posts: 3
Member
Offline
Member

Joined: Jul 2009
Posts: 3
lori
my heartfelt sympathy. I am watching my husband of 32 years wilt before my eyes. He too had tongue ca dx in 05 and recurred in aug 06 and again nov 07 and most recently infiltrating to FOM and in skin and bone of oral cavity. I just look at him wondering how long we have together. So painful for him, i pray he just go to sleep.
I am across the border in MN if you ever want to meet for some comfort talk
nancyh


nancyh caregiver to steve dx 2005, x3 recurrence...no further tx would be tolerated. Had radiation twice with chemo added the second round...cancer widespread throughout oral cavity.
NancH #99698 07-17-2009 08:58 PM
Joined: Jan 2008
Posts: 706
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2008
Posts: 706
Lori- So very sorry. If you need some advice or just someone who has gone through this send me a pm and I'll send you my number.

Sue


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
Joined: Jun 2007
Posts: 595
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jun 2007
Posts: 595
Lori, My condolences on Ron's passing, you and your family are in our thoughts and prayers! Semper-Fi Bob


Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
Joined: Apr 2006
Posts: 583
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Lori,

Sorry for you loss. Please feel free to come here and get the support you need any time you want. We all understand the loss and how this next year will be. So we are here for you.

Take care.. Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
Joined: Aug 2008
Posts: 96
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Aug 2008
Posts: 96
Thank you all again for your kind words and a special thanks to the ones who took the time to add a message to Ron's memorial site. It's coming up on 8 weeks now, and I swear it still feels like it was yesterday most of the time. We are slogging through, though. I am now up in central WI. with our oldest daughter. She and her husband just bought a home, so I am trying to help with furniture, painting, etc. It gives me something to do. I know I can come here for support and frequently do. I also will try to stay around to help those who I know will be coming here newly diagnosed.
Nancy, I can't PM you, I am wondering how Steve and you are coping. Please PM me if you need support. My prayers are with you.
Lori


Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer
Joined: May 2009
Posts: 114
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: May 2009
Posts: 114
I'm sorry lori. This is so hard to hear. Please take care of yourself now.


Age 52, T2 N0 M0 SCC of left anterior floor of mouth. Esophagoscopy, Direct laryngoscopy, Resection of left anterior FOM lesion w/ lateral tongue. left selective neck dissection levels I-IV. 5x6cm skin graft coverng excision. Finished 33-35 rad Tx. False recurrence 12-22-10 last surgery 2-15-10
Joined: Nov 2008
Posts: 72
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Nov 2008
Posts: 72
Lori,
We are all so very sorry to hear about Ron. I will be sending up lots of prayers.

Last edited by MrsGrant; 08-07-2009 05:45 PM.

*Shaylynn*
11.25.08 SCC of tongue diagnosed @ age 23 T2N2cM0
12.20.2008 Partial glossectomy & left neck dissection. Clear margins.
6.24.09-Pet Scans show 2 areas of concern
8.5.09-Recurrence-Perotid Gland and swollen node removal
9.29.09 Carboplatin & Taxol x8 Tomo x39
11.19.09 WILL COMPLETE TREATMENTS!



Page 4 of 4 1 2 3 4

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5