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#145088 - 01/27/12 01:17 PM Re: Don't you just hate it when...? [Re: Charm2017]  
Joined: Jul 2009
Posts: 280
CMMoore Offline
Gold Member (200+ posts)
CMMoore  Offline
Gold Member (200+ posts)

Joined: Jul 2009
Posts: 280
MO, USA
We were in the ER a few months ago (minor issue with our son, all well now) but a nurse walked up to my husband and said, Sir, are you alright, please tell me you are under a doctors care.

Even those in the medical profession don't know when to just keep their mouths shut...

Didn't notice the radiation area where no hair grows? Or the thinness of a chemo patient?
DUH!!!!



CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
#145101 - 01/27/12 04:40 PM Re: Don't you just hate it when...? [Re: CMMoore]  
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Posts: 531
SUEZ Offline
"Above & Beyond" Member (500+ posts)
SUEZ  Offline
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Joined: Jul 2010
Posts: 531
AURORA, OH
wow really? How bout this. When Ron had his lung biopsy surgery, he was told in ICU that he could have something to drink, he got some Gingerale and sipped on that and I helped with it. So than I asked if he wanted a McDonalds Milkshake and he said Ya so the nurse called whoever and asked if he could and they said yes, well machine was down for milkshakes so I got him a Strawberry and Cream protien drink instead. He sipped that and than taken to step down. Well he was on the cardiovascular floor and I don't think anybody ever had an Oral Cancer patient, first the resp therapist came in and for some reason was told he had a permanent trach, Hellooo duh do you see one? Second the Dr on call was a B, she yelled at him really YELLED for drinking the protien drink said he was not allowed while he was IN BED. Needed to be in a chair. Next the STNA came in to take his temp, under his tongue! He told her he don't have a tongue BUT she came in everytime heading that stick to his mouth! Than that wonderful Dr again, Ron was talking to her and she was saying "uh huh" "uh huh" until Ron asked her 'Do you understand me when I'm talking" you know what she said? NO! WTH??? A DR just agreeing with the patient cuz she can't understand him! THAT is why he made the great escape out of there the day after surgery, he said he was afraid he was going to die there! I have yet to complain about this.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
#145530 - 02/07/12 05:47 PM Re: Don't you just hate it when...? [Re: SUEZ]  
Joined: Jul 2009
Posts: 280
CMMoore Offline
Gold Member (200+ posts)
CMMoore  Offline
Gold Member (200+ posts)

Joined: Jul 2009
Posts: 280
MO, USA
OMG Suez! That's terrible treatment from a hospital! Matt had a similar experience on a cardiac wing after lung surgery with the staff not understanding that his condition was NOT heart related.


CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
#145532 - 02/07/12 07:35 PM Re: Don't you just hate it when...? [Re: CMMoore]  
Joined: Jul 2010
Posts: 531
SUEZ Offline
"Above & Beyond" Member (500+ posts)
SUEZ  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
AURORA, OH
Ya think? They were lucky that I found this out AFTER a couple days after he came home and not when I went there to pick him up the next day, that is why he wanted to get out of there. He was afraid for his life.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
#145980 - 02/16/12 09:33 PM Re: Don't you just hate it when...? [Re: Charm2017]  
Joined: Feb 2012
Posts: 26
mick Offline
Contributing Member (25+ posts)
mick  Offline
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 26
boston,ma
i was really encouraged by the man telling me to "just fight it" one day after my last radiation treatment. if it was a football speech i could have said rah rah


after 3 sarcma flr mouth,fially removed, reconstruct from thigh muscle. 1/2 saliva glands removed, plus more glands than i can remember
#145981 - 02/16/12 10:10 PM Re: Don't you just hate it when...? [Re: mick]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
It's so good he told you that, Mick! If you can get into the fight mode, it really helps motivation and puts you more in control. And it certainly helps lower the stress level, too. Getting into the fight mode is what got me going when I was caring for my son and he's doing great, now!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#146136 - 02/19/12 06:05 AM Re: Don't you just hate it when...? [Re: Pandora99]  
Joined: Feb 2012
Posts: 26
mick Offline
Contributing Member (25+ posts)
mick  Offline
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 26
boston,ma
how am i doing? thankfully my honicidal tendancies have waned


after 3 sarcma flr mouth,fially removed, reconstruct from thigh muscle. 1/2 saliva glands removed, plus more glands than i can remember
#146149 - 02/19/12 12:56 PM Re: Don't you just hate it when...? [Re: mick]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
Mick - I can tell just by looking at you - You are doing GREAT! grin


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#147156 - 03/15/12 05:01 PM Re: Don't you just hate it when...? [Re: Charm2017]  
Joined: Feb 2012
Posts: 38
seattlepaul Offline
Contributing Member (25+ posts)
seattlepaul  Offline
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 38
Washington
I didn't have the time for others' pity, I was too busy feeling guilty about being less than I had been, about being sick, not able to swallow at all, walking around with a peg tube in my chest, carrying a feeding backpack, drooling, having to retire from my 22year bus driving job, because I could no longer enunciate clearly.
I know my squamous cell cancer is the result of my own lifestyle, no one else to blame, just me, so I didn't have anger about the cancer. Denial is what kept me from the surgeon's knife for an additional two years, but finally let him carve on me. I don't think he did a very good job, but I chose to let him cut me, he didn't force me.

That's the Beauty of personal freedom: you have it, you exercise it, you live it.
Of course, perhaps I am just 'Not Rational'.

Last edited by seattlepaul; 03/15/12 05:04 PM.

69yo male, Steam Engineer, Me=4,SCC=0, loving wife, living life as it comes (no other option)
We are all born from Mother, but live and die alone.
Make the best of it, Mommie did all she could, daddy was just a guidance councelor, the rest is ALL up to you.
...and now, 3rd occurance: Surgery 5/1/12
#148263 - 04/14/12 01:04 PM Re: Don't you just hate it when...? [Re: AmyK]  
Joined: Apr 2012
Posts: 32
KenEggman Offline
Contributing Member (25+ posts)
KenEggman  Offline
Contributing Member (25+ posts)

Joined: Apr 2012
Posts: 32
VA, USA
Funny. Some much of what people say is rhetorical and do not warrant an answer lest they get a truthful answer and run away crying. How are you? Do you really want to ask that question?

I have been a very sarcastic person most of my life short, usually not verbalizing all my thoughts, but later enjoying the stupidity of mankind as a reflection of WTF.

Not sure how I will respond when the questions roll in, sure do not want to offend those with good intentions.


48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer
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