| | Joined: Oct 2010 Posts: 9 Member |  Member
Joined: Oct 2010 Posts: 9 | just found this thread. i just had to contribute with:
my mom's RO isn't big on giving details about her cancer or her treatment. everytime we wanted to know something, we had to ask twice, sometimes even three times. it's been like this since the very first meeting. his answer to almost every question that first day was:
"wow, you did a lot of research. don't study too much."
that's when i knew, as a caregiver, that i had to go to WAR.
soo. | | | | | Joined: Jul 2009 Posts: 280 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2009 Posts: 280 | That is so true. Our local oncologists don't even bring up treatments that they don't offer in their clinic.
While research is a good thing to be aware of options, IMHO it's also important to not get too caught up in all you read/find online and take it one day at a time.
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Standing in line at the store and one of the tabloids said, in bold headlibes, "Michael Douglas prepares for death". They even had a photo puportedly of the burial plot he has picked out. Do these people just make stuff up out of thin air?
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | CMMoore brings up a good point on not getting too caught up on what you read. Don't you just hate it when you open the newspaper or go to health website and there's a lead story about a big new breakthru in cancer treatment that won't require all the pain and suffering of radiation, chemo or surgery and then it turns out that its a research report on yet another cure for cancer in mice or in-vitro cells. And worse, when well meaning friends send you links to it or raise it in conversation.
Charm
Last edited by Charm2017; 12-14-2010 05:27 PM. Reason: typos
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jul 2009 Posts: 280 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2009 Posts: 280 | All the emails and links to "cures" are very frustrating. Even though I know my family means well, they still point out all the people who have cured their cancer naturally, just change his diet they say and it will work.... sheesh
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
| | | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | I guess we just have to tell people that we trust our doctors - and dentists as well. My dentist is the one who caught my cancer, and he has me doing the flouride trays every day one of my co-workers told me "flouride is bad for you." But I just told her that I trusted my dentist, and I wanted to keep my teeth as long as I could.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Right, "I heard about this place down in Mexico...".
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Jun 2009 Posts: 138 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2009 Posts: 138 | Hey, what happened to this thread? Now I get even more ridiculous remarks from people.
Most of you know I am now a colon cancer patient. My "friend" knows how to cure me - eat lemons. So if you guys ever get colon cancer, remember that!! lol
BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 |
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jun 2009 Posts: 138 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2009 Posts: 138 | She's the same one that told me to eat asparagus for oral cancer. Are you guys eating your asparagus??
BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
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