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Honestly...what is wrong with people? I was at my doc office (at the CCC) not a family doc. So I'm sitting there trying to read and it was nearly impossible to concentrate. The have been remodeling the hospital that I go to so I guess the people at the desk are getting tired of patients asking them where to go. So....the 2 women who were there start complaing about the patients and then they were cursing!!! Can you believe that?!? When I came out to schedule the MRI the woman was on a personal phone call and said "I have to go. The nurse is standing in front of me with a patient." I felt like saying "I don't mean to trouble you with my CANCER!!!! SO SORRY!!!" But I didn't...lol


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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Posts: 711
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Geez, I just remembered this incident. I was going in for my chem and feeleng really sick. I had to make a dash for the men's room down the hall and barely made it before throwing up. I guess it's a thin wall between the men's room and the ladie's and my Linda and her son had already gone in to the chemo suite to get me logged in and told me that a woman had come in all in a huff complaining about the noise of somone throwing up in the men's room. Imagine the nerve of me.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
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....you go in for PEG procedure, something they've done hundreds of times and the patient is asked "what if something happens during the procedure...do you want to be resuscitated....." needlessly scaring the hell out of you. Advanced Directive (I always keep a copy w/me) in hand and in medical record.

Deejer, aren't humans a strange species? Where did that woman think she was? A spa?

Linda


CG/Carol 57;SCC Stage IV L Tonsil T4N2bM0 12/2009
Recur 7/2010 - 2cm mass Invasive SCC L Floor Lower Jaw
Surgery 8/10 - Trach,ND,p. mandibulectomy,pec flap
ypT4aN0 HG Mucoepidermoid carcinoma
2nd Recur 1/18/11 - Tumor lower left lip
Surgery 2/9/11 - Canceled - Inoperable
3/29/11 - Died




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Posts: 225
"OCF across the pond"
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Sounds like one of the women at the hospital. Martin was just out of his neck dissection in the high dependency ward. The ward had 5 other people all recovering from operations to do with throat cancer. Anyway, this woman in a suit and high heels clumping around noisily, went to the nurses' station after a meeting and said at the top of her "IF I NEVER HEAR ABOUT HEAD AND NECK CANCER AGAIN IT WILL BE ONE TOO MANY TIMES" (the bold is to show the loudness). Everyone on the ward turned around and stared in disbelief. Then she swanned off, before anyone recovered from the shock. I couldn't believe it. I don't know who she was, but she shouldn't be allowed anywherre near a hospital.


Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
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SLAP, SLAP, SLAP
is what she needed!
or maybe
PUNCH, PUNCH, PUNCH!!


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
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IF I NEVER HEAR ANOTHER LOUD MOUTHED IDIOT SPOUTING OFF ABOUT CANCER AGAIN IT'LL BE ONE TOO MANY. So there.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Dec 2008
Posts: 1,004
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I'm not even sure what to say to that. Rude just isn't the word...you almost have to feel bad for someone so ignornat and rude. Almost....I hope she feel in the parking lot in those heels..LOL

Last edited by suzanne98; 01-28-2010 08:01 PM.

Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
Joined: May 2009
Posts: 1,412
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Posts: 1,412
That was rude.
I went to my PCP the other day to check in with her. She told me I was lucky as I have had it easy compared to her other patients. I was like O'Really! I did not say this, but I wanted to "Can your other patients still eat? Did they have to do chemo and radiation at the same time?"
Many other cancer patients I have talked to said they would not want to do chemo and rads at the same time and feel that they have it easy. In my opinion no one with cancer has it easy, it is all difficult.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
I have to share this web comment from Today's Washington Post.
The advice columnist had a question from a "friend" of a patient suffering from a chronic condition about how upset and disappointed the "friend" was about the patient disregarding alternative cures the "friend" found on the Internet and instead sticking with the doctor and regular medicine. The "friend" is called "LW2" (for letter writer two). I had to laugh out loud when I read this response from a reader (the internal quotes are from LW2's letter)
[quote]
As for LW2, ah, dear LW2: please know that I speak from the experience of someone who ALSO has fibromyalgia (among other things). I do my best to be reasonable and balanced in my posts, here and elsewhere; I may not always succeed, but I do try. So know that I speak from the heart, LW2 From California, when I say that you should be STABBED IN THE THROAT every time you open your mouth to your friend when you give her your UTTERLY IGNORANT "ADVICE". Thank you SO MUCH, Dr. Google, for your assumption that your friend isn't doing EVERYTHING SHE POSSIBLY CAN to manage her condition! No, really, you need to be punched. And "I think she should be more willing to listen to what I've found" - no, you need to be punched AGAIN, you self-satisfied egocentric LUNATIC. "I feel really unappreciated and am starting to wonder if she even wants to feel better." Well, you're partly right; your efforts are TOTALLY unappreciated, because they're ALL ABOUT YOU - but your friend WOULD like to feel better, so why don't you STOP ANNOYING HER, since you KNOW that's what you're doing ("She's gotten really annoyed with me for doing this"), and just SHUT THE FRICK UP ALREADY. You assume because she won't do it YOUR way that she doesn't want to get better? You WHINE that she sees her doctor and takes medication, but brushes YOU off? Way to make a really miserable condition All. About. You.

Shut up, LW2, just SHUT UP ALREADY.[/quote]
And NO, it wasn't me who posted the above reply to LW2 wink
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Oh, forgot to include the link to the original advice column:
Post advice column
Most of the comments are about LW1, but the other ones on LW2 are also good, just not as quotable or as suitable for "Don't you just hate it when" thread (Over 14 Thousand views)
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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