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#100263 07-27-2009 09:52 PM
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hisnibs Offline OP
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After the first week = 5 doses are people generally able to carry on normal activities. People at work want me to attend a Music Fest with them on August 7, the day of my 5th rad treatment. My hobby is photographing musicians. They have set up rooms and done things so I would be comfortable. Some say I won't be able to and others say that early I wont even know I am being dosed.

I don't know dosages but 40-55 in back of mouth and 50 -70 in front.

I was wondering IF I could drive to West Virginia that weekend.

Wishful thinking?


Age 52, T2 N0 M0 SCC of left anterior floor of mouth. Esophagoscopy, Direct laryngoscopy, Resection of left anterior FOM lesion w/ lateral tongue. left selective neck dissection levels I-IV. 5x6cm skin graft coverng excision. Finished 33-35 rad Tx. False recurrence 12-22-10 last surgery 2-15-10
hisnibs #100267 07-27-2009 10:17 PM
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While things are individual the first and second week are normally non events**. Especially if you have no or just a small dose chemo. (so much so that one wonders.... so is that it? but it catches up later on...)

Are you getting a PEG as well? It will take some time to get used to that.

** of course there is the psychological component to consider too.

M



Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Markus #100270 07-27-2009 10:38 PM
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I was told first 2 weeks you feel pretty good but the 3rd week is when you start to feel it....then again I was told by people who have never gotten treatment!LOL


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
ESikon #100274 07-28-2009 02:53 AM
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For me the last 2-3 weeks were really harsh, but the first 1-2 weeks were absolutely fine. But as my doctors always say, everyone reacts to these things individually.


38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
hisnibs #100280 07-28-2009 06:19 AM
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With the usual disclaimer that everyone is unique: my experience was that the first two weeks of radiation were a breeze. I had not trouble driving, going out to resturants, even exercising at the gym. I had not yet found OCF so I was in for a very rude awakening the remainder of my treatment.
PS. Ask your radiation oconologist what your total treatment dosage is. The standard measurement is GY, each of which is 100 Rads (old measurement). The typical aggressive treatment is 72 GY. More than that can be very problematic. You might also ask the average dose planned for each week. My first round jumped up tremendously the last two weeks.
Finally, the worst part of radiation is the time afterwards.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #100603 07-31-2009 09:02 PM
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Hisnibs, Eat, Eat, Eat. And listen to all the folks here they know what they are talking about.


Dx: SCC lateral tongue April 09, Stage T1M0N0
PET scan clear April 09
Partial glossectomy April 09, no carcinoma present
IMRT started 7/9/09, finished 8/26/09
PEG inserted 7/30/09
PEG removed 9/25/09
ER Nurse


Keep the rubber side down....
HarleyKenny #100605 07-31-2009 09:21 PM
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John had symptoms right away--first day weird taste and some salivary changes, by third day nausea that hasnt' resolved since, and he completed rad tx on the 14th (even with trials of various meds, feedings, etc). That doesn't seem to be the usual, though, from what I've read on this site. Everyone's situation is a little different, though--hard to predict! Best of luck.


GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
mgmichael #100610 07-31-2009 11:49 PM
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Well here she comes the harbinger of doom lol.I posted a message ..CAN IT ONLY BE THREE DAYS? Robs skin was burnt,his mouth was burnt and all his plans to work every day up until he went for tx lasted 2 days.

I know he was not the norm,but thats the whole point.There is no norm,and no one knows till it happens .

love liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #100616 08-01-2009 05:07 AM
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Hisnibs -

I'm on week 3 of my radiation treatment, and it's my first week of discomfort, pain, and fatigue. Weeks 1 and 2 were, relatively speaking, a breeze. Why not plan to go and then see how you feel on that fifth day? You can always decline at the last minute -- everybody would understand.

Good luck with your treatments. I hope they go well for you!


Chrissy

Stage 2 SCC upper right palate
Hemi-palatectomy and maxillectomy 5/28/09
Six teeth gone
IMRT x30 starts July 13. Completed 8/26/09
Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.
mightymouse #100620 08-01-2009 08:31 AM
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The first two weeks went relatively well for Dan. He took a biz trip by plane after the first week. One big variable is chemo, are you getting chemo? If so, what is the type and frequency of your chemo treatments?


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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