| | Joined: May 2009 Posts: 113 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: May 2009 Posts: 113 | 17 treatments down 16 to go! I have been counting up everyday and now I can finally start counting down! My neck is becoming very red and sensitive! Thank God I pretty much shave my head because I have 3 quarter size bald spots on the back of my head...lol! Just a quick update, still eating as much as i can possibly handle. I noticed myself getting nasious for about 3 days but felt really good today. Got up this morning and played some tennis, I am looking at all the sweating and exercise as buring out all the bad toxins in my body! Then of course I took a 2 hour nap! That might not sound like a big deal but I NEVER take naps! I have a couple sores on my tongue and my throat is pretty sore to swallow and eat but all in all I think I am still doing pretty well. I got the humidifier on thursday and it made a huge difference in the morning when I wake up. My throat is still very dry and sore but not near as bad as it was! I starting to take percocet about 2 times a day (5/325) by mouth late last week to make myself a little more comfortable thru out the day! Back to the Grind tomorrow! I started on July 1st at 198.8 and weighed in this morning at 194.5! Not to bad...no feeding tube either! Hope you all had a great weekend!
30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Wow, Jim, that's impressive!!
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Apr 2009 Posts: 22 Member | | Member
Joined: Apr 2009 Posts: 22 | Very impressive. Just goes to show everyone is different. I have completed 12 of 27 treatments and my mouth is full of sores and killing me.
I am ready to stop anything orally and beg for a PEG tube.
Dx: SCC lateral tongue April 09, Stage T1M0N0
PET scan clear April 09
Partial glossectomy April 09, no carcinoma present
IMRT started 7/9/09, finished 8/26/09
PEG inserted 7/30/09
PEG removed 9/25/09
ER Nurse
Keep the rubber side down....
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Jim, great job at your radiation treatment success!!! You are young so will have an easier time than most. Are you getting chemo too? Seems like the people who dont get chemo w/ rad also get thru it easier. Hang in there, things might get difficult at anytime. Being prepared never is a bad thing. Keep up the good work  Kenny, hang in there. Of your mouth is bad, ask for magic mouthwash, its a real lifesaver. Talk to your docs about the peg tube. Hope things level out for you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jim,
That's great and I hope this easy time continues. It was this week where things started to go south for me but I also got my 2nd big bag of poison on the start of my 4th week and that's when my nausea started and things just started to get out of control but of course I was almost twice your butt's age. lol
Playing tennis??? No comment.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2009 Posts: 113 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: May 2009 Posts: 113 | Lol, what David you dont like Tennis?
30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
| | | | | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 109 | I was just a little older, and that second chemo did me in. Up until then I was reading people's posts and thinking to myself how lucky I was that it seemed so easy. The last three weeks were very tough. As it's supposed to. And I was told I was handling it all beautiffully.
Good luck, Jim. It's awesome you're tolerating things so well. You're more than 1/2 way there!
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jim,
Didn't play tennis much at all. Racketball was my passion.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2008 Posts: 148 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2008 Posts: 148 | Yes, you're doing very well and bucking the "usual" effect of tx. Hope it continues and good luck to you - HarleyKenney.
Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
| | | | | Joined: May 2009 Posts: 113 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: May 2009 Posts: 113 | ohhhh David racquetball??? Well I guess 1 of these days we will have to play. Thats what I did play and still like too! But for some reason having fun playing tennis now. I played competitive racquetball until I tore my rotator cuff and was sponserd by E-Force!
30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Funny, I was just a B rated amateur until I also tore my right rotator cuff when someone hit me while riding my bike. Since then I haven't played to much because my overhead shot is unstable and not predictable.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2009 Posts: 113 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: May 2009 Posts: 113 | I tore mine in an open tournament in the morning serving overhead! I usually serve low but the walls were damp from the dew...obviously it was an outdoor double tournament! The pop was so loud the people on the other court heard it! That is some serious pain! Of course I need surgery to repair it and never did it!
30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I had the surgery and I still ended up with nerve damage so some of my muscles don't fire. I was given the option of an additional surgery where my doc said he would take a nerve from my leg THAT I DON'T NEED (don't you just love it when they say that?) and TRY to find the severed nerve and TRY to splice it together. Told me the rehab would be twice as long (appx 4 months 1st time) and said he gave me a 50% chance of success. YEAH RIGHT!!
Know what you mean about dew on a RB court. I tried to sneak on a closed, unairconditioned court in Fl and I had to jump down on the court to let my partner in so I hung from the viewing window and dropped down. Didn't think it was that far but when I hit the floor it was damp with dew and my feet slid out from beneath me and I landed on my TAIL...WHAM. Man was I sore. We didn't even play because everything was to slick.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2009 Posts: 113 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: May 2009 Posts: 113 | Yea Im out on the surgery also! lol I think I might have kept that story to yourself....haha! I am not going to tell you how many times I have hit the ball where I didnt want to and it came back off the wall at mach 8 and drilled me you know where!!!! lol
30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
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