| Joined: Sep 2006 Posts: 149 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2006 Posts: 149 | I saw an osteopath D.O. (cranial osteopathy) a few times. The first time he recommended an ayurvedic practitioner and the second time he said that I may have an issue at the soul level and wanted me to talk to someone in another state who could figure things out over the phone. I am fairly open minded but not sure about this one.
Has anyone done something similar and what were the results.
Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands. Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | The question my friend is not whether anyone here was gullible or desperate enough to try "phone healing" or any type of phony healing. The question is how can people like your osteopath or ayurvedic scamsters sleep at night? I am sure if you go onto one of the nutso unmoderated internet boards you can find some poor deluded fool who has mustered a minimal placebo effect with such fraud. I meditate, have done Reiki, projected Chi etc so I am open minded also. Just not simple minded My closest childhood friend is not only an Osteopath doctor but went on to be a fully certified Psychiatrist and he is a strong advocate of my getting the radiation, chemo and surgery because he is honest and forthright about the cold hard fact that currently none of the Eastern nor non-MD modalities work at all against cancer. Likewise my chiropractor does not offer false hope to his cancer patients. Another dear friend runs an Alternative Health clinic with the full panoply of healing arts and herbs, and while he does push some nutrients on me, they are only as supplements and he respects my decision to decline them. There is a problem on the soul level, but it is with the souls of those who prey upon us when we are most desperate for a miracle and therefore most vulnerable to sympathetic fake healers. there should be a special place in hell for people like the ones abusing you. Charm
Last edited by Charm2017; 07-26-2009 02:24 AM. Reason: toned it down
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Charm,
Well said.
TRT,
Listen to him, he is absolutely correct.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | There is a doctor who is tied to a local network affiliate's TV station who does periodic spots on selected medical topics. She just did a segment on "mood healing" and spotlighted a clinic, not my word but hers, that specializes on "mood healing" and the segment showed that their Tx consisted of a person in need laying on a bed with light blockers over their eyes (I guess so they couldn't see what a waste of money looked like) and they played relaxing music while rubbing "mood oil" over their entire body. This doctor, now a quack in my mind, lauded over the benefits that thus NEW Tx afforded those in need. IMO she could have spent her time and the viewers time with many more topics of a truly valuable theme.
Also I just lost a client, went broke, who's business was to come to their client's home or office and soak their feet in a solution guaranteed to suck the nasty evil spirits in your body (can't think of the exact word she used) out through your feet. She told me that had I used it regularly before my cancer, I wouldn't have gotten cancer. Now you might then ask why did I accept her as a client....her money, as it surely would do more for my cancer than her Tx would.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 718 | Hi TRT,
It sounds like you are exploring alternative options that are not related to your cancer treatments...is that correct? It looks like you are 2 years cancer free from your signature line.
Are you seeking options to deal with the emotional impact of cancer or are you dealing with a recurrence? Margaret ---------- C/G: Husband, 48 (at time of dx) Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3) Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | TRT
Not trying to be harsh on you but regardless of what sent you for help, the phone in cure route is not going to get you wherever it is you want to go. Whether cancer related anger, worry about recurrence, or emotional swings, your "soul" is not some cyber device that you can upload relief onto like you download updates to firefox or windows. It is true though that many of our problems, especially those of "coping/anger/fear" as this forum is titled, are at the soul level. The Catholic Church has in the liturgy preceding Communion a prayer that all say: " ...Say but the word and my soul shall be healed" harking back to a miracle by Jesus. But as I said, I have an open mind, so I will keep checking this thread to see if anyone answers your request about actually trying this unconventional approach. You will have better luck in my opinion simply posting what your problem is that has your soul troubled and then reap the wisdom of what really works from the good folk here Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Sep 2006 Posts: 149 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2006 Posts: 149 | Yes, this would be for treatment of fatigue and emotional impact of cancer. There is no recurrence.
The DO is treating me and would like me to see the others, then tell him what they said. When I saw the ayurvedic practitioner, the DO asked me if I was given any mantras. I was not. Spiritual practice was recommended though as were changes in nutrition, facial massage, and spices for cooking.
[quote=mhupe]Hi TRT,
It sounds like you are exploring alternative options that are not related to your cancer treatments...is that correct? It looks like you are 2 years cancer free from your signature line.
Are you seeking options to deal with the emotional impact of cancer or are you dealing with a recurrence? [/quote]
Last edited by trt; 07-26-2009 12:22 PM.
Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands. Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Charm, I was laughing so hard at your post, I almost fell out of this too comfortable leather executive chair LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 718 | TRT,
I don't know what a "DO" stands for. I'm guessing you are a pretty spiritual person to be looking into these types of alternative options for fatigue.
I have several friends who are very spiritual, and also the types to look at life from a soul level...and I have several friends who are extremely religious and look at life from a purely theological perspective. Every one of these friends would tell you their option is the best. As a result, I have come to the conclusion that emotional healing is tied to the strength of each person's personal belief system.
I doubt that you will find anyone on this board who would have participated in dealing with a problem on a soul level...this board tends to attract and retain individuals who are looking for clinically proven practices. And, anyone not looking that way is generally run out off the boards by those who only work in the realm of conventional therapies.
I think this topic has been met with much controversy as no one here would want to see someone choose a spiritual treatment over a conventional treatment for oral cancer as there is great concern that individuals who do not follow proven, clinical practices are putting themselves as great life/death risk.
I think emotional healing is a little different. Certainly in every field and for every disorder there are people selling snake oils. And, that is where your idea of phone therapy will be met with great concern on this forum. So, you might have to follow your own instincts and look at what you have done before to decide which options to pursue.
Have you tried the more traditional therapies...like counseling or acupuncture? Did you not find that these options were effective for you?
Are you eating well, exercising regularly, working, interacting with friends and family daily?
Have you noticed any improvements since you started working with your osteopath?
Also, have you had your thyroid checked regarding your fatigue?
| | | | Joined: Sep 2006 Posts: 149 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2006 Posts: 149 | DO is Doctor of Osteopathy
I am not very spiritual.
I tried therapy and acupuncture; they do help to some extent but I am still pretty miserable.
I could be eating better, exercise makes me sick, going thru divorce, don't have many friends, family in another country, mostly spending time on my own: it's an effort to go out and be social.
I am not sure I felt any improvement yet; I've seen him twice.
TSH is low, but the other thyroid levels are ok. testosterone is low.
[quote=mhupe]TRT,
I don't know what a "DO" stands for. I'm guessing you are a pretty spiritual person to be looking into these types of alternative options for fatigue.
I have several friends who are very spiritual, and also the types to look at life from a soul level...and I have several friends who are extremely religious and look at life from a purely theological perspective. Every one of these friends would tell you their option is the best. As a result, I have come to the conclusion that emotional healing is tied to the strength of each person's personal belief system.
I doubt that you will find anyone on this board who would have participated in dealing with a problem on a soul level...this board tends to attract and retain individuals who are looking for clinically proven practices. And, anyone not looking that way is generally run out off the boards by those who only work in the realm of conventional therapies.
I think this topic has been met with much controversy as no one here would want to see someone choose a spiritual treatment over a conventional treatment for oral cancer as there is great concern that individuals who do not follow proven, clinical practices are putting themselves as great life/death risk.
I think emotional healing is a little different. Certainly in every field and for every disorder there are people selling snake oils. And, that is where your idea of phone therapy will be met with great concern on this forum. So, you might have to follow your own instincts and look at what you have done before to decide which options to pursue.
Have you tried the more traditional therapies...like counseling or acupuncture? Did you not find that these options were effective for you?
Are you eating well, exercising regularly, working, interacting with friends and family daily?
Have you noticed any improvements since you started working with your osteopath?
Also, have you had your thyroid checked regarding your fatigue? [/quote]
Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands. Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
| | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 718 | Well no wonder you are feeling down emotionally...loneliness can breed some rough times. Add a divorce to the loneliness and things can feel monumentally worse.
From what I have witnessed, doing soul work requires a deep-seeded spirituality. This is just my humble opinion, but I don't think you should waste your money on that route if you aren't all that spiritual.
What can you do to move past the loneliness? How far away is your family, when is the last time you saw them?
Why is it that you get sick when you exercise? Have you tried any milder forms of exercise...like yoga or pilates? Both are nurturing for the body and the mind.
I'm sorry you are going through such a difficult time. I wish there was a simple solution, but working out of a depression and loneliness takes some concentrated effort.
Are you an animal person? Have you thought about getting a dog? Or volunteering at a shelter where there are other wonderful people?
I hope others here have some ideas that might be useful for you.
What are your interests? Margaret ---------- C/G: Husband, 48 (at time of dx) Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3) Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Im sorry you are going thru so many things at once. OC isnt easy but when dealing with after effects along with other hi stress things in life can make someone feel pretty miserable.
Have you tried exercise? You said it makes you ill. I was never an exercise person either, but recently found that I enjoy bike riding. I hadnt done it for about 30 years and went for a ride with my son. We had such a great time that I went out and bought a bike. Its amazing how much better you feel when doing something active. We went on a 26 mile ride and I felt a huge sense of accomplishment which boosted my self confidence. I bet if you would try, you could find some type of activity, even walking.
By doing something positive and completing an activity will give you a sense of pride. That is going to lift your spirits. Hope you find an activity to get involved with.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | TRT,, I live alone but I sure don't need any of that garbage to keep my old ass moving about and happy. Go outside, hand dig a garden and take care of it, go for log walks and enjoy what you see and talk to people you meet along the way. If you see someone having a problem, stop and help. Just do things as they come and life is great.Apparently you have a compute . Thera are a lot of places to chat on these without the porn trash, but some very nice people. Maybe some of your neighbors even. Go to a mall and walk around and watch people and things they do. Man there are many ways to add to your life wothout some Quack reaching into your pocket or bankbook.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 716 | Trt,
#1...don't get a dog to make you feel better....SORRY Margaret!
Sometimes, I get moody, sad, angry, depressed, upset..whatever--my emotions are endless, all of our emotions are endless....I also have a lot of good moments. Basically, though...this cancer is hard...cancer in general is hard because it's a reminder that everything we know and have can be gone tomorrow. There are a lot of things I think of because of my cancer and tx's that I never would have ever contemplated for myself before I went through all of it...it happened and I have to move forward.
Trt...you have to look at yourself and figure it all out...Be honest with yourself and try to move forward and do whatever makes you feel better.
What makes me feel better? Family, my GF, friends, my dog, animals in general, my lousy barely hanging on garden, living in general makes me happy among a lot of other things too...
Find something that makes you happy and develop that and move forward...Be grateful, after-all...you're two years past the hardest part of your life...
It can always be worse...now I gotta go to bed before I drop my half-empty glass!!
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer 8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35 11-4-08 Recovering & feeling better | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | I'm going to chime in hear and share a pretty funny story. I've always considered myself an accepting kind of a guy when it came to other people's beliefs as long as they didn't preach at me or try to convert me to some religion in any way.
I was brought up in the church and went to bible school for a short time, but then my studies led me to the path of Deism and freethinking. I, like most of the people that subscribe to Deism and Freethinking do not believe in the healing power of prayer or a other "healing" rituals. I've always allowed people to pray for me however as I respect their belief in it.
My uncle's new wife however is some sort of new age healer and uses peoples hair or personal articles to run through some sort of machine and then does phone healing. At the request of my uncle, I allowed him to take a lock of hair and submit myself to one of this gals "phone healings"...and only because I love my uncle dearly.
It actually cracked me up as the gal was using cold/warm reading techniques. I found out later that she charges $500/healing session and makes a comfortable living...man people are idiots.
I'm with Jim and Charm, if you need something for your "soul" do something good for somebody else...makes me feel good.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | "Someone else" includes all animals.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | |
Forums23 Topics18,166 Posts196,921 Members13,103 | Most Online458 Jan 16th, 2020 | | | |