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#100176 07-26-2009 01:26 AM
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trt Offline OP
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I saw an osteopath D.O. (cranial osteopathy) a few times. The first time he recommended an ayurvedic practitioner and the second time he said that I may have an issue at the soul level and wanted me to talk to someone in another state who could figure things out over the phone. I am fairly open minded but not sure about this one.

Has anyone done something similar and what were the results.


Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
trt #100178 07-26-2009 01:59 AM
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The question my friend is not whether anyone here was gullible or desperate enough to try "phone healing" or any type of phony healing. The question is how can people like your osteopath or ayurvedic scamsters sleep at night? I am sure if you go onto one of the nutso unmoderated internet boards you can find some poor deluded fool who has mustered a minimal placebo effect with such fraud. I meditate, have done Reiki, projected Chi etc so I am open minded also. Just not simple minded
My closest childhood friend is not only an Osteopath doctor but went on to be a fully certified Psychiatrist and he is a strong advocate of my getting the radiation, chemo and surgery because he is honest and forthright about the cold hard fact that currently none of the Eastern nor non-MD modalities work at all against cancer. Likewise my chiropractor does not offer false hope to his cancer patients.
Another dear friend runs an Alternative Health clinic with the full panoply of healing arts and herbs, and while he does push some nutrients on me, they are only as supplements and he respects my decision to decline them.
There is a problem on the soul level, but it is with the souls of those who prey upon us when we are most desperate for a miracle and therefore most vulnerable to sympathetic fake healers. there should be a special place in hell for people like the ones abusing you.
Charm

Last edited by Charm2017; 07-26-2009 02:24 AM. Reason: toned it down

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Charm,

Well said.

TRT,

Listen to him, he is absolutely correct.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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There is a doctor who is tied to a local network affiliate's TV station who does periodic spots on selected medical topics. She just did a segment on "mood healing" and spotlighted a clinic, not my word but hers, that specializes on "mood healing" and the segment showed that their Tx consisted of a person in need laying on a bed with light blockers over their eyes (I guess so they couldn't see what a waste of money looked like) and they played relaxing music while rubbing "mood oil" over their entire body. This doctor, now a quack in my mind, lauded over the benefits that thus NEW Tx afforded those in need. IMO she could have spent her time and the viewers time with many more topics of a truly valuable theme.

Also I just lost a client, went broke, who's business was to come to their client's home or office and soak their feet in a solution guaranteed to suck the nasty evil spirits in your body (can't think of the exact word she used) out through your feet. She told me that had I used it regularly before my cancer, I wouldn't have gotten cancer. Now you might then ask why did I accept her as a client....her money, as it surely would do more for my cancer than her Tx would.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Hi TRT,

It sounds like you are exploring alternative options that are not related to your cancer treatments...is that correct? It looks like you are 2 years cancer free from your signature line.

Are you seeking options to deal with the emotional impact of cancer or are you dealing with a recurrence?


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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TRT

Not trying to be harsh on you but regardless of what sent you for help, the phone in cure route is not going to get you wherever it is you want to go. Whether cancer related anger, worry about recurrence, or emotional swings, your "soul" is not some cyber device that you can upload relief onto like you download updates to firefox or windows.
It is true though that many of our problems, especially those of "coping/anger/fear" as this forum is titled, are at the soul level. The Catholic Church has in the liturgy preceding Communion a prayer that all say: " ...Say but the word and my soul shall be healed" harking back to a miracle by Jesus. But as I said, I have an open mind, so I will keep checking this thread to see if anyone answers your request about actually trying this unconventional approach. You will have better luck in my opinion simply posting what your problem is that has your soul troubled and then reap the wisdom of what really works from the good folk here
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Sep 2006
Posts: 149
trt Offline OP
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Yes, this would be for treatment of fatigue and emotional impact of cancer. There is no recurrence.

The DO is treating me and would like me to see the others, then tell him what they said. When I saw the ayurvedic practitioner, the DO asked me if I was given any mantras. I was not. Spiritual practice was recommended though as were changes in nutrition, facial massage, and spices for cooking.

[quote=mhupe]Hi TRT,

It sounds like you are exploring alternative options that are not related to your cancer treatments...is that correct? It looks like you are 2 years cancer free from your signature line.

Are you seeking options to deal with the emotional impact of cancer or are you dealing with a recurrence? [/quote]

Last edited by trt; 07-26-2009 12:22 PM.

Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
trt #100191 07-26-2009 01:14 PM
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Charm, I was laughing so hard at your post, I almost fell out of this too comfortable leather executive chair LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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TRT,

I don't know what a "DO" stands for. I'm guessing you are a pretty spiritual person to be looking into these types of alternative options for fatigue.

I have several friends who are very spiritual, and also the types to look at life from a soul level...and I have several friends who are extremely religious and look at life from a purely theological perspective. Every one of these friends would tell you their option is the best. As a result, I have come to the conclusion that emotional healing is tied to the strength of each person's personal belief system.

I doubt that you will find anyone on this board who would have participated in dealing with a problem on a soul level...this board tends to attract and retain individuals who are looking for clinically proven practices. And, anyone not looking that way is generally run out off the boards by those who only work in the realm of conventional therapies.

I think this topic has been met with much controversy as no one here would want to see someone choose a spiritual treatment over a conventional treatment for oral cancer as there is great concern that individuals who do not follow proven, clinical practices are putting themselves as great life/death risk.

I think emotional healing is a little different. Certainly in every field and for every disorder there are people selling snake oils. And, that is where your idea of phone therapy will be met with great concern on this forum. So, you might have to follow your own instincts and look at what you have done before to decide which options to pursue.

Have you tried the more traditional therapies...like counseling or acupuncture? Did you not find that these options were effective for you?

Are you eating well, exercising regularly, working, interacting with friends and family daily?

Have you noticed any improvements since you started working with your osteopath?

Also, have you had your thyroid checked regarding your fatigue?

Joined: Sep 2006
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trt Offline OP
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DO is Doctor of Osteopathy

I am not very spiritual.

I tried therapy and acupuncture; they do help to some extent but I am still pretty miserable.

I could be eating better, exercise makes me sick, going thru divorce, don't have many friends, family in another country, mostly spending time on my own: it's an effort to go out and be social.

I am not sure I felt any improvement yet; I've seen him twice.

TSH is low, but the other thyroid levels are ok. testosterone is low.

[quote=mhupe]TRT,

I don't know what a "DO" stands for. I'm guessing you are a pretty spiritual person to be looking into these types of alternative options for fatigue.

I have several friends who are very spiritual, and also the types to look at life from a soul level...and I have several friends who are extremely religious and look at life from a purely theological perspective. Every one of these friends would tell you their option is the best. As a result, I have come to the conclusion that emotional healing is tied to the strength of each person's personal belief system.

I doubt that you will find anyone on this board who would have participated in dealing with a problem on a soul level...this board tends to attract and retain individuals who are looking for clinically proven practices. And, anyone not looking that way is generally run out off the boards by those who only work in the realm of conventional therapies.

I think this topic has been met with much controversy as no one here would want to see someone choose a spiritual treatment over a conventional treatment for oral cancer as there is great concern that individuals who do not follow proven, clinical practices are putting themselves as great life/death risk.

I think emotional healing is a little different. Certainly in every field and for every disorder there are people selling snake oils. And, that is where your idea of phone therapy will be met with great concern on this forum. So, you might have to follow your own instincts and look at what you have done before to decide which options to pursue.

Have you tried the more traditional therapies...like counseling or acupuncture? Did you not find that these options were effective for you?

Are you eating well, exercising regularly, working, interacting with friends and family daily?

Have you noticed any improvements since you started working with your osteopath?

Also, have you had your thyroid checked regarding your fatigue?
[/quote]


Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
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