| | Joined: Jan 2014 Posts: 8 Member | OP  Member
Joined: Jan 2014 Posts: 8 | Has anyone tried Soylent (not soylent green) meal replacement ? Their website has a 5 month waiting list for this product (1st order only), but I am very encouraged that this would make my life & others much more manageable.
58 yr old male, SCC left side of tongue 2/13, partial glossectomy, flap, 30 IMRT, 6 Chemo. Recurrence 10/13, lymph node removal, Brachy therapy 100, pec flap.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | To me it doesnt seem quite right. Im always overly cautious when it comes to these types of things. My line of thinking is if something sounds too good to be true...
Before trying anything like this have a good discussion with both your physicians and a nutritionist.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2014 Posts: 22 Member | | Member
Joined: Mar 2014 Posts: 22 | The idea of Soylent certainly sounds intriguing. I appreciate that the inventor is living off his product. Frankly, I'd like to see the creators of Jevity or TwoCal living off their formula.
However, since it was only recently invented (I think they just started marketing it in 2013), I think the jury's still out on long-term effects. In my opinion, nothing beats a diet of real food. It seems like I see articles about beneficial compounds that have been discovered in the food we eat almost weekly. How could the inventor of Soylent have thought of 'that one special disease-fighting ingredient in lettuce' if it hasn't been found yet? Just my two cents.
Brian Liebenow, Stage 2 NHL survivor (left tonsil), I eat everything through a PEG tube. http://travelingtubie.blogspot.com/2013/04/why-i-tubie.html11/03 - started CHOP chemo 12/03 - remission 1/04 - finished chemo 4/04 - started 25 rads to make sure they got all the cancer 5/04 - stopped rads after 20 due to severe reaction to radiation 5/05 - began seeing damaging effects of radiation 7/08 - PEG 4/09 - 5th unsuccessful jaw surgery Smile!! Laughter is the best medicine!
| | | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | A registered dietitian wrote about Soylent in the Washington Post a few months back.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | | Joined: Jan 2014 Posts: 8 Member | | OP Member
Joined: Jan 2014 Posts: 8 | Thanks to all of you for the very helpful oomments & the article. I will try it with caution & maybe at least use it to help me when I just can't handle the ordeal that eating has become.
58 yr old male, SCC left side of tongue 2/13, partial glossectomy, flap, 30 IMRT, 6 Chemo. Recurrence 10/13, lymph node removal, Brachy therapy 100, pec flap.
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