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BJT #178142 03-10-2014 08:14 PM
Joined: Jan 2012
Posts: 42
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Jan 2012
Posts: 42
Bruce, glad you made a decision. No change in diet, already benefit from home cooked healthy foods. I'm keeping up the exercise which seems like the best medicine. Doing the over 50 daily vitamin, but not religiously. Light alcohol, which is no change for me.
Areas to watch closely are the tumor location, and the neck, especially down toward collar bone. Dr checks everything, I do the careful neck & upper shoulder check all the time. I believe HPV grows a bit slower than other forms, so the 1, 2, and even 3 year milestones are key. From what I'm told 5 years is the target to discontinue the regular dr visits.
Mike


Nov2011Tonsil Cancer Stage3 T1N1 HPV+, Non-smoker, slight drinker
Dec2011 Radical Tonsilectomy (TORS),
Jan2012 Neck Disection areas 2,3,4
Feb2012 Opinions from 5 RO's decision for No Rads/No Chemo
Jan2013 all clear at 1 year , continue regular check-ups
Jan2014 all clear at 2 years, less frequent check-ups
Jan2015 all clear at 3 years, MRI, chest x-ray, blood work all good
BJT #178181 03-11-2014 11:21 AM
Joined: Jun 2013
Posts: 262
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Jun 2013
Posts: 262
Hi Bruce, glad you've reached a decision. For me it was a huge relief just to have a plan. I think others have chosen the path you and Mike are taking, but may be less likely to participate in the Forum. Good luck in the new job, hope you check in from time to time!

Lynn


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
BJT #178271 03-13-2014 08:31 AM
Joined: Mar 2014
Posts: 28
BJT Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Mar 2014
Posts: 28
Thanks for the support. i hope and pray this issue will stay away. Being Positive and riding on my surgeon's comments regarding the low % of this cancer coming back again.

Bruce

56
10/31/2013 had super painful ear ache in right ear cancel
went to a normal ENT and he found nothing.
11/2/2013 pain subsided and went on with life
1/6/2014 discovered "cherry tomato" size lump on my lymph node in my right neck area
2/5/14 CT PET scan light up of tongue and tonsil
2/12/14 robotic surgery- to biopsy tongue and tonsil area for negative margins, then neck dissection to remove one lymph node and back the robot to cut out jelly bean tumor and affected tonsil. all area around removed cancer shown negative for cancer.
3/12/14 decided to go the observation of every two months route for now.


Bruce
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