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Joined: Oct 2011
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"OCF Canuck"
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"OCF Canuck"
Supporting Member (50+ posts)

Joined: Oct 2011
Posts: 67
About a year ago, I was very upset about some posts in this forum. Brian Hill emailed me about my concerns, and asked me to call him to discuss it personally with him.
I will never forget that he took the time to try to contact me. I was unable to respond mentally or verbally at the time.
I might be one of the rare ones, as I had clinical depression before the cancer. I welcomed the cancer and embraced death - I came very close to it. I wanted to die of 'natural causes' so my husband would be able to claim my life insurance. He would find a new love and marry again.
This was not to be, as I survived. Much to my surprise. My husband took care of me throughout the whole ordeal.
I'm better now. It's been 2 years and I am still NED. Because of my 'cancer dance' I found out that I am bipolar. It's not an excuse, but it explains a lot of things in my life.
The good part about almost dying is I don't fear death. It was a warm and peaceful feeling.
I never did introduce myself, so that's why I'm posting here.
I miss Charm. xoxo




Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation.
Leukoplakia Bx Feb 2011 - Lichen Planus.
Bx May 2011 - Hyperplasia. Same sample retested as SCC.
June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia.
T3N1M0 Stage IV.
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Welcome back!!!!



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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"OCF Canuck"
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"OCF Canuck"
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Hey - welcome back! so glad you are doing do well two years out... Hugs..


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Welcome back, indeed. Very nice intro! I hope your good fortune continues!


My intro: http://oralcancersupport.org/forums/ubbt...3644#Post163644

09/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!
Joined: Jan 2009
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Shauneen,

I'm glad to hear that you seem to have found the calm in the storm we call life, and have found your way back to these forums.

Brian always amazes me with his commitment to help others, especially considering the schedule he keeps.

Like you I miss our cantankerous litigator. As the founder of the Frack Fraternity, and someone I considered a brother, there's not a day that goes by that I do not reflect on the time I was blessed with the man. I think it's safe to say that there would be no EricS, without both Brian, and Charm.

The amazing benefit of the written word however means that his wisdom and advice are never but a page view away, and I find myself going back over his posts and old conversations anytime I'm needing a dose of attitude, or a good laugh.

Welcome back to OCF and in the words of our beloved Charm�Keep the faith.

E


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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"OCF Canuck"
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"OCF Canuck"
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Eric are you speechless again??


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Nov 2006
Posts: 2,671
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So-o-o-o nice to hear from you Shauneen and thanks for such a lovely post about your experiences and the NED good news. Glad that Brian reached out to you with the much needed support and that your husband was so loving and caring throughout what was such a difficult time for you. Having very caring people around us, does go a long way in lightening the bad stuff that happens in life but it also intensifies and makes us appreciate the joys that come to us as well. Hope you continue to experiences many many joys and happy stuff!
Thanks for mentioning Charm.
I miss him, too.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Jan 2009
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Cheryld, as you well know I'm almost never speechless smile I wrote 2 responses to this thread, which to my disappointment didn't show up for some reason.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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"OCF Canuck"
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"OCF Canuck"
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What a great post and congratulations on being two years out. I do think that many of us have, through cancer, learned to deal with the inevitable consequence of living, and like you I no longer fear death. That is a huge plus for me as I move forward with the rest of my life.

I am so happy to hear that you are feeling better Shauneen.

Donna
(Winterpeg resident!)


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Joined: Jun 2013
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Posts: 262
Hi Shauneen, and thank you for coming back. Thank you also for writing frankly about depression. I think it's far more prevalent in general, and especially among oral cancer patients, than anyone realizes. I started an anti-depressant during treatment myself. There is a lot of pressure to act brave, wear a positive attitude, etc. that I think makes it hard for some to even acknowledge the possibility of depression, let alone thier own inner turmoil.

I'm glad that you've found a measure of peace and clarity, even if you had to wrest it from this terrible "cancer dance." And while I never knew Charm, I've stumbled upon his posts and gotten a taste of his wit and character. I sense your wit and character too, and hope you will stick around here and share it with us.

Hugs,
Lynn


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides

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