| | Joined: Nov 2013 Posts: 1 Member | OP  Member
Joined: Nov 2013 Posts: 1 | Hi - new to the forum.
I have just been diagnosed with lowgrade Muceopidermoid carcinoma. My dentist saw a lump on my hard palate and had me go in for a biopsy.
I have a PET scan this Friday and see the oncolgist on the 13th. I am being seen at the University of Minnesota.
This looks to be a great place for information and support! | | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Hi Bellopines - Welcome to the family, cause that's what we are, a really big, very supportive family.
I don't know anything about your type cancer, but I'm sure others here do and they will chime in soon enough, probably tonight.
In the meantime go to My Stuff and Edit Profile and fill out a signature line on yourself. It lets us keep up with who you are without having to reread your entire thread. You can look at my signature line or those of others to see what you want to add to yours.
From what you've written you sound like you're in pretty good shape emotionally after your diagnosis. We will try to keep you that way.
Again, welcome
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Sep 2010 Posts: 7 Member | | Member
Joined: Sep 2010 Posts: 7 | Hi Bellopines- I was diagnosed with low grade mucoepidermoid cancer of the sublingual gland in September 2009 and had surgery in December of 2009. No radiation or chemo recommended and continue to do fine with yearly checkups. I was very lucky!!
Mucoepidermoid cancer of the sublingual gland, diagnosed 9/09, surgery on 12/29. No radiation or chemo
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF. We have had several members with your type of cancer. Its treated the same as SCC. You are just beginning your journey. Dont worry, we will help you every step of the way. Best thing you can do is to be treated at a comprehensive cancer center (CCC). Sorry but off the top of my head I dont know if the center you mentioned was one or not. I just remember the top 5 or so like Moffitt, MDAnderson, Sloan Kettering, Johns Hopkins, etc. AT a CCC they will use a team based approach, all the specialist get together to give their treatment plan so everyone is on the same page. At the very least go to one for a second opinion. Very likely your treatment will be surgery with radiation and/or chemo. Just remember whatever specialist you are talking to (when not at a CCC) will always recommend their specialty (surgeons always recommend surgery, RO will always say you need rads, etc). Take your time to read and absorb info from OCF so you are an informed patient and a strong advocate for yourself. When you go for your appointments take someone along. Its too easy to hear some bad news and turn your ears off. Also write down questions and the answers when you have appointments. There is so much info that nobody is able to remember all of it. Some members will tape record their appointments, just ask the doc first. Best wishes with everything! List of Cancer Centers
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | HI there, and welcome - there are a few palate cancers here. I am sure someone will be along to give you the LD, on it - until then good luck with your tests...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | BP - adding my welcome. You're in very good hands here with our family and I wish you courage and all the best in your treatment.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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