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Maria, both are correct.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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Brian, Thanks for your hard for all at OCF, keep up the WARRIOR spirit!! Semper-Fi Bob


Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
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In addition to the toothpaste, it would be great if they could make an oral gel to replace Biotene's OralBalance.

With regard to the PBF productc, I just purchased these in the last couple of weeks. They contain Lysozyme, Lactoferrin, Lactoperoxidase, and Glucose Oxidase. So I guess the new ones have not hit my suppliers yet. But I'll pay attention to future purchases and see if the enzymes disappear.

My understanding now (based on reading other parts the OCF site) is Lysozyme splits the cell wall of pathogenic bacteria, Lactoferrin inhibits pathogenic bacteria by depriving them of iron, and Lactoperoxidase plus Glucose Oxidase create an antibacterial agent. It's ashamed that someone can patent this. These chemicals occur naturally in saliva. It's sort of like patenting blood.

Last edited by Andrew111; 01-26-2014 08:52 PM.

Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
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You guys are really too kind. I assure you that for me to spend my days and evenings doing what I do is also helping me. After all, I don't meet many people each day that get to work at a job where they can look back on each day, and be rewarded with the feeling that they are really living a life of meaning and purpose. It's not that I feel like I am changing the world or anything grandiose like that. It's really that each day I can find some small incremental progress in the fight. It's a rich life and a privilege.

Besides. If I wasn't doing this, I would certainly be getting into some kind of trouble. That would be following my life's previous MO. I would likely hang out at the airport, and if not tinkering with my plane, be "hanger flying" with my buddies there, who like to tell tales of daring do, (big lies) drink beers while doing so, and of course argue about meaningless things. Competitiveness is certainly a part of a pilots nature, and if the weather were bad, we would probably (between beers) just be seeing who could pee the furthest into the snow. Those regularly wasted afternoons would likely occasionally end up in the local pub, continuing an even more brash, obnoxious and loud diatribe about everything from who was the best and most daring pilot, who had flown the most challenging machine, and who had survived the most flying mishaps. Some discussion of prowess with the opposite sex would be needed, and without any members of the opposite sex present to deny the fabrications, the tales would involve feats that would certainly challenge the imagination of Don Juan. Of course shooting pool would be involved, and others from the bar would put their quarters on the table to play winner, and now the "mix" of people would include others who had likely had also had a few too many, and brand new arguments would in due course ensue about something not yet trashed verbally, perhaps some reflections on the nature of someone's mother who disagreed with a particular perspective.

About that time things would really go downhill. Obviously ,the discussion of the mother in question would be really brief, and someone would put their hand on someone else, and be right in their face. My mind, which has difficulty multitasking on the best of days since treatment, would lose control of my mouth, or at least not be keeping up with it. That would be the beginning of what could only be described as a really serious escalation of course. But worse, my brain would certainly have forgotten that it is no longer housed in a 25 year old body, (this is a major problem) but in that of a pretty feeble old dude. By the time it caught up the the reality of the situation at hand, things would certainly be moving in a direction that did not favor a positive outcome for me; I would be in some degree of pain, and given the extent of the group discussion now taking place around me, more similar conversations and outcomes would be taking place as well. Of course someone, perhaps the bar owner not wanting to see his establishment get totally destroyed, would have called the authorities, who by this time would be on scene.

I have always had a problem with figures of authority, and now have a brand new opportunity to express that displeasure, an non-winable discourse, (again probably very short) about the size of the officer's manhood would ensue, as clearly that is why he became a police officer in the first place. In due course after the appropriate amount of time for processing had taken place, I would find myself in some cage, with individuals that surely would be deciding if I was cute enough to e the object of their attention. Things would be seriously bad at this point as you can imagine. My brain has FINALLY, fully grasped the dire nature of my situation, and with some degree of haste I will need to urge my captors to give me that one phone call. This is where the ability to reason clearly really comes into play. Do I call my best friend to come and bail me out, (if can disengage himself from some TV re-run that he is right in the middle of while firmly planted on his couch) or do I call my wife? This is a serious dilemma. Obviously one has some degree of success, but it is based on the TV schedule of the evening - it does however have the advantage of me paying with a minimum of dues for my behavior and situation. The other choice has a guaranteed result of getting me out, but comes attached with some serious dues paying, (and promises of becoming a changed man, some groveling and the like, and an appropriate amount of time in penance for my behavior, where I may no longer complain about taking out the trash or other requested duties). Additionally, and at the very least, it will likely include a lecture on the nature of my relationship with my significant other, and why she, angel of mercy that she is, continues to put up with my incessant misdeeds. After an appropriate number of well behaved weeks, this kind of scenario would most likely play itself out again with diminishing positive returns, proportionate to how often it occurred.

So you can see that, given my proclivities to let the devil find things for my idle mind to do, that dedicating myself to the work of OCF is without any question, IN MY OWN SELF INTEREST. I am not as altruistic as you all think, and as you can see, many things hinge upon that decision, not the least of which is the longevity of my blissful marriage. Please do not think too highly of me, as this exercise clearly shows, I'm in it for myself�..


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Well . . . alrighty, then - but I still think highly of you. And of your angel of mercy that shares you with us.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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Personally I think "snow peeing" should be an Olympic Sport! After all it takes more athletic ability and would be more entertaining than curling smile

Last edited by EricS; 01-26-2014 09:17 PM.

Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Great post Brian but the accolades are all well deserved.

With regard to a 'snow peeing' Olympic event Canadian men (and some of our women!) would lift the sport to a true art form.

I have personally known some guys who could write their name in the snow ........ just sayin'! But then, that Stanislav always was a show off.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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Brian, after a careful reading of your fine discourse I've come to only one conclusion: you'd be doing 5 to 10 in Corcoran or Folsam without us fine folks to keep you on the straight and narrow.

You're welcome.

No, really, it's nothing. Not a bit. The least we can do.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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smile


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
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Sounds crazy! I hope you all throw the keys to the plane in a lock box before starting on ways to burn that idle time. my goodness. Glad you have OCF to keep you out of trouble.


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
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