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#172164 10-06-2013 08:04 PM
Joined: Oct 2013
Posts: 2
JulieH Offline OP
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Hi Everyone

New to OCF Forum but not new to Oral Cancer and some other boards and probably know some of you from far off internet places.

Julie

JulieH #172165 10-06-2013 10:10 PM
Joined: Jun 2009
Posts: 875
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Hi Julie:

Welcome to the OCF. You will find a world of information and advice from other members of the Forum. Glad you joined us. What type oral cancer did you have? Hope you're doing well.

Julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
JulieH #172168 10-06-2013 11:00 PM
Joined: Aug 2013
Posts: 144
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Posts: 144
Hello JulieH, Welcome indeed, hope you are having a good day.

Shawn U.


. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
JulieH #172171 10-07-2013 01:48 AM
Joined: Oct 2013
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Hi Julie:
Another welcome from another new member. This forum has already done wonders to help remove the fear of the unknown as to what to expect and how to get through it. Here's hoping it will help you in the same way.

Take care


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good

JulieH #172177 10-07-2013 04:46 AM
Joined: Jun 2007
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Posts: 10,507
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Julie, welcome to OCF! You have now found the worlds largest and very BEST online forum for OC. The medical info is up do date and correct and the members are kind and compassionate. We know what you are dealing with as we have lived it ourselves.

Please check out the private message (PM) I sent to help you with navigating the forum. Look for the small flashing envelope next to the My Stuff tab up top in the middle and click on it.

Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
JulieH #172199 10-07-2013 11:51 AM
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Hey Julie... Welcome!!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
JulieH #172204 10-07-2013 02:16 PM
Joined: Aug 2007
Posts: 1,301
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Hi yourself Julie,
Welcome to OCF and yes we know each other " from far off internet places." wink
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

JulieH #172207 10-07-2013 02:54 PM
Joined: Jul 2012
Posts: 3,267
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Welcome Julie, and good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






JulieH #172211 10-07-2013 05:26 PM
Joined: Sep 2013
Posts: 94
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Posts: 94
Hi Julie, another welcome for a relative newbie here. Best of luck with everything.


36, female, left tonsil HPV+ SCC, T2N1
8/28/13 SCC in left tonsil
9/12/13 surgery:TORS and selective neck dissection (levels II-IV), 23 nodes removed
9/18/13 post surgery biopsy: 2mm clear margins, a 7mm lymph node positive in level IV, no ECL
10/28/13 rad begins, 30 treatments, tomotherapy
12/09/13 radiation ends!
2/10/14 papillary thyroid cancer
2/26/14 PET shows clear neck other than thyroid cancer, but with high uptake in an ovarian cyst
2/27/14 thyroidectomy
3/5/14 pelvic ultrasound



JulieH #178591 03-22-2014 04:13 PM
Joined: Oct 2013
Posts: 2
JulieH Offline OP
"OCF Down Under"
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OP Offline
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Joined: Oct 2013
Posts: 2
Oh HI again everyone ... didn't realise I had replies in here.

Gabe!!!!Hey smile Good to see you here and anyone else I know from far off places.

Julieann (same name as me except mine is two words and non hyphonated). I had BOT T4N2 - 3 Cisplatin, 39 hits of the ever giving radiotherapy and Erbitux aka cetuximab. 4 years out and no recurrence so far.



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